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Laura added 4 photos. View Photos

Jun 5

KIM - Jessica's Mom left a comment for Laura Jun 5

Laura joined the group Children's Alopecia Project Jun 3

LeslieAnn Butler left a comment for Laura May 26

MARIA (mom of Savanna) left a comment for Laura May 20

Laura joined the group Parents of Children with Hairloss May 15

Maria, Mia's Mom left a comment for Laura May 4

Carly left a comment for Laura Apr 28

About Me:: I am mother of Ashlyn and Audrey, Ashlyn has had Alopecia Areata since she turned two. New to the site, looking for support for my family & better understanding of Alopecia.

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At 9:27am on June 5th, 2008, Laura said…: Thank you! We are dealing well with this so far. We started losing in June of 07 and by October we were completely bald. I say we as if it's both of us, I think it bothers me more than she ever thinks of it. With her being 2 when she lost her hair, I don't think she really understands and most of the kids her age don't comment much about it....I am glad to hear your daughter handles this well, I cannot imagine being 6 years old and this happening. I only try to keep very positive and hope Ashlyn will continue to be positive and confident with her Alopecia. We started visiting with a support group in St. Louis which made Ashlyn more aware of Alopecia, about a month after our first meeting, she was playing with one of her friends and the girl made a comment about her not having hair, Ashlyn just said "I have Alopecia" of course the other 3 year old had no idea what that was and just looked completely stunned and never said another word. I think understanding Alopecia and being able to discuss it with family and friends helps a bunch, I have to say the first 9 months were rough, the hardest thing to handle is that I have no control over what happens. Do you try any treatments?

At 6:35am on June 5th, 2008, KIM - Jessica's Mom said…: What a cutie! Love the headbands. My Jessica was diagnosed with AA when she was 6, almost exactly 1 year ago. She's had some regrowth and some new loss pretty much consistently for the last year. She's handling it all pretty well.

At 8:08pm on May 25th, 2008, LeslieAnn Butler said…: Hi Laura,
I've done a lot of research for my book and I've found that kids who have alopecia grow up to be much more kind and sensitive than others...
If you want to know more about my book, go to my page. A chapter is devoted to kids with alopecia.
Take care.
LeslieAnn

At 4:53pm on May 20th, 2008, MARIA (mom of Savanna) said…: Hello Laura, what a beautiful lil girl you have, my daughter too has AU, she is 6yrs old and has had it for 3yrs now, some days are better than others and now that she is getting older her feelings about the condition has changed some what. I just want you to know that you are not alone and if you would like to talk feel free to comment me...Maria

At 8:51pm on May 3rd, 2008, Maria, Mia's Mom said…: Hi Laura, my daughter Mia has alopecia she is almost 5. How old is Ashlyn? She has her days. There are days I think shes ok and days she cries about. Sometimes I think we feel it more than they do. Email me if u feel like talking. Stay strong.
Maria

At 10:39pm on April 30th, 2008, Cindy Samantha's Mom said…: Hi Laura..Your daughter looks happy beautiful..I read that your daughter tried SADBE..My daughter started the treatment in March..I have alot of bad days and she has had NONE..My daughter has been a trooper and has never said she wants to stop the treatment. She is willing to try anything that mommy tells her to try and I have to say she has not complained about the itchy scalp. In fact, I constantly offer to put lotion on and she refuses because she thinks it will prevent the meds from working.I am hoping that this will start working for her soon..I hate seeing her this way..I hope you find some comfort in your support group..Cindy

At 7:23pm on April 28th, 2008, Carly said…: Laura,

your kids are very cute- NAAF really helps with everything-their DVDs and Magazines.

Carly

At 12:56am on April 28th, 2008, Katie said…: Laura- thanks for the message! I actually contacted NAAF and they sent me 2 DVDs about alopecia and a school packet that helps you explain the disease to children. Have you gotten it? It is a great resource. I also found a coloring book online: http://136.165.150.3/alopecia/alopecia-cb.html. I am trying to find as many resources as I can, which is actually really difficult. I went a year untreated b/c I had no idea what was happening to me. My first doctor visit- the doctor was so hopeless and was sooo sure that my hair would never grow back b/c I waited too long to get help. Fortunately, my hair proved him wrong! Almost all of it grew back. I feel there is such a need to educate people about this disease. However, I am not ready yet- I am so scared to tell anyone that I have it. Only a small number of people know. I really need to be more brave and strong! I am hoping that being able to talk to others that are dealing with this disease will give me strength.

At 10:30pm on April 25th, 2008, gerald said…: What a darling little girl!

My wife was like her, a beautiful little bald girl.

Now my wife is a beautiful bald lady! Alot of beautiful bald women on this website!

At 5:24pm on April 25th, 2008, Orbit said…: Hi Laura! Ashlyn looks so much like me when I was little! :-) I didn't have any hair until I was almost 3 (and no one that that was unusual?!!) I guess it was just a glimpse of what was meant to be! She is such a sweetheart! Its great to see you on hear trying to educate yourself and others with regards to Alopecia. Good luck hon, and if I can help in anyway just let me know :-)