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Michelle (mom of Sam)'s Page

Michelle (mom of Sam) 40, Female York, PA, United States: 2uutxvc1rjzlj; Share

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Parents of Children with Hairloss (85 members)

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Michelle (mom of Sam) commented on the photo tribunepalopecia May 12

Miranda left a comment for Michelle (mom of Sam) May 7

Michelle (mom of Sam) left a comment for Miranda May 7

Miranda left a comment for Michelle (mom of Sam) May 7

Michelle (mom of Sam) left a comment for Miranda May 6

Miranda left a comment for Michelle (mom of Sam) May 6

Cheryl Carvery left a comment for Michelle (mom of Sam) May 5

Profile

Relationship Status:: Married

About Me:: Hi, my name is Michelle. Our family lives in Dallastown, Pennsylvania. One of our 4 year old twins were recently diagnosed with AA by our pediatrician and we will be seeing Dr. Cohen at Johns Hopkins on June 5 to confirm what we already know. I am a Pennsylvania Unlocking Autism Rep. I also am the moderator of ASD_Kids@yahoogroups.com My husband, Steve, is a police officer. You can visit us at...
www.myspace.com/armymom05
I am the Proud mom of;
PFC Amanda Rembert, 21, stationed in Hawaii
PFC Gregory Belcher Jr., 19, deployed to Afghanistan
Ashley, 16, dx of PDD, a Mixed Receptive/Expressive Speech and Language Disorder, ADHD, combined type, Reading Disorder, Writing Disorder, Mathematics Disorder, is Borderline to Low Average overall cognitive functioning, has a Moderate to Severe Sensoneural hearing loss in her left ear and has a wheat/lactose intolerace.
Jesse James, 13, dx of ADHD & ODD, PAVCS homeschooled
Twins Stevie Jr. and Sammy, 4, dx of Mercury Induced Autism, Social Interaction, Language and Repetitive Behavior Impairment, Global Developmental Delay involving Fine, Gross, Oromotor, Speech/Lang. and Social Interaction, Regressive Encephalopathy, hypotonia, a carb intolerance, a severe peanut and egg allergy, Reflux Esophagitis, Gastritis, Colitis, Lymphoid Nodular Hyperplasia, Low enzymes (Autistic Enterocolitis) and mitochondrial dysfunction. Samuel has the added dx of Reactive Airway Disease as the result of an enviromental trigger and Alopecia Areata.

Are you 18 or older?: Yes

Website:: http://www.babyhomepages.net/thegillespiefamily/

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At 2:05pm on May 7th, 2008, Miranda said…: YEAH! Only one of my twins are effected as well. We have a cousin that has alopecia as well, but when he was a child (he's 21 now) he used to pull his hair out.

The link is: http://www.mdanderson.org/departments/alopecia/

At 10:58am on May 7th, 2008, Miranda said…: I don't know if you are willing to do this, but I just registered for the National Alopecia Research at MD Anderson. They contacted me back right away because Della is a twin. I guess they are in real need of twins where only one is effected. I guess they get so much more information this way. Anyways, Della will be top on the list if they find a cure or a promising treatment. But, I read that you don't like to use medications much, unless it is life saving. But I bet it would be great if you could sign up your boys. All they need are some pictures, a history, and some blood samples. I am hesitant about the blood samples, but I figure maybe they will find a cure in Della's life time.

At 10:51am on May 7th, 2008, Miranda said…: Hi Michelle! Yes my twins are identical. They had Twin to Twin Transfusion when I was pregnant. I was diagnosed when I was only 13 weeks along and had surgery to fix it. This only effects identical twins. Have you heard of this before?

At 12:20pm on May 6th, 2008, Miranda said…: Hi Michelle! I have twins as well. I want to thank you for the invite. I also want to say welcome to our group! Feel free to make an introduction! It's nice for everyone to know where everyone is coming from! Are your twins identical or fraternal?

At 9:24am on May 5th, 2008, Cheryl Carvery said…: How many kids do you have? LOL! I am glad you are here and I look forward to getting to know you. Take care, Cheryl

At 8:35am on May 5th, 2008, Janine said…: Thanks for the friend add- I have two boys one has alopecia- the other has mild sensory integration disfunction-My hat is off to you!

At 7:33am on May 5th, 2008, Carol said…: My goodness, don't you have your hands full! I have three daughters and thought I was busy! You deserve a medal! I went to a high school where the year before I went there were twin girls with alopecia. It was amazing how they coped, they had such strong self-esteems. I think that a major part of that was they were going through it together and constantly had someone just like them to pull them through. Does only one twin have alopecia? Is anyone concerned about the other twin having it as well?

At 12:33am on May 5th, 2008, Karen said…: Hi Michelle,

Thanks for inviting me. It is always good to have a friend that knows what you are going through. I have been reading your blog about your children and I take my hat off to you. You are such a wonderful mother who I can see is going through so much yet it seems that you have such strength.

Karen

At 11:20pm on May 4th, 2008, Jennifer - Mom of Scott said…: Hi Michelle,
Another mom with twins with one twin with AA. Are you twins identical? I would love chat with you!

Jen

At 8:38pm on May 4th, 2008, Cheryl Carvery said…: Hi Michelle, I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us. If you look under the groups above there is a French group. - Cheryl, co-founder

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