My name is Christel I am 32 years old, married and have two kids. My oldest, Jennifer has had Alopecia since she was two. My husband has Vitiligo also an auto immune disease. We have been trying different things, now we are trying DCP treatment. At christmas Jennifer's hair was growing really well, but now it has all fallen out again. She has no hair at all. She is pretty good about it, but every now and then she says that she wishes that she had hair. That is really hart breaking. We do not have much hope of Jennifer's hair ever returning, unless there is some medical breakthrough.
Are you 18 or older?
Yes
Comment Wall (24 comments)
You need to be a member of Alopecia World to add comments!
Hi Christel,
I was wondering how the DCP was going if you were still doing it. Samantha is still doing the sister treatment and is having regrowth now. Even her brows are starting to make a slow appearance.
Nice tot talk to you this way. I know you have to start again with the treatment, but I am a bit sceptic about the results. So it will be not such a delusion when her hair failed to grow back
Hello! Thanks for the comment! This year at school I didnt wear a wig. I just used dark eyeshadow to cover the spots and always wore my hair down. I only got teased a few times because I kept it very private. My teachers knew which was a big help because my seat was always at the back of the room where no one could look at my head which was perfect and made me feel better. This year I am going to wear a wig though because my spots are getting bigger and harder to hide. I love Keith Urban and Rascal Flatts too! Im actually going to see Taylor Swift and Rascal Flatts in September! Its my third time seeing Rascal Flatts =D I'm a huge fan of theirs. Country music is amazing<3 It has helped me so much. Thats so cool that you're from Australia! I live in New England. Keep in touch! Send Jennifer my hope and love =]
Amber is doing great and has now have almost total regrowth. We are happy but at the same time...I am not exactly celebrating as I really don't know what is going to happen around the corner.
I still tell her straight out about what could happen so that she is prepared no what matter happens.
To be honest, the only thing that is keeping me sane is the prospect of knowing that a wig like Jennifers exist.
Hi Christel..Popping by to say hi and see how Jennifer is doing with the DCP. If I recall she regrew and lost again. Sam is doing SADBE and after several months we are starting to see some hair coming in. We go to the doctor later this month and hope to see lots more by then. Sam is a trooper, but now that she sees the hair she is getting excited. How has your daughter been able to cope with her AA in relation to peer relationships as she has gotten older? Sam wears a wig to school and headbands with hair sewn in during the summer. This is our first summer with no hair. We are starting to make our way. I do have to say we let her go bald at times during our recent trip and I did not like the thoughts that people had. We keep her head covered in our area. I am private about her condition, but her close friends know. I don't feel that my daughter's medical issue is the towns business. I live in a small town of busy bodies and I don't want the gossip. If we get to a point that we need to share then I will, but for now we are doing our thing, going about a life..Cindy
You daughter sounds so confident that is so great. My daughter is 6 and wow they sound so much alike Olivia has no hair at all as well she is very confident and wears wigs at school has lots of friends but now summer is here she would rather go without which we say sure if she feels like it why not. There are somedays she says she wishes she was like everyone else and had hair but the next day she says she likes being bald. I know what you mean about being skeptical that her hair will return we feel the same way as well but who knows maybe someday they will find a cure.
take care, stacey
Hello again Christel thanks for the info re the wonderful suction wig you found for your daughter, its amazing you know, I work in a primary school and today whilst flicking through magazines with a grade one student I work with as an aide, I came across an article in the womans day 2003 issue about a woman called Martine Richards who has lost her hair twice and now has set up her own business called FREEDOM WIGS..... there was a phone number 0419534695 and a website www.freedomwigs.com.au it seems like she is based in NSW going by the web site. I'm going to try the number tomorrow, otherwise we'll be taking a trip to Melbourne to the place you recommend these holidays hopefully its an expense that we will just have to budget for, as anything to aid in Cassies self esteem at this stage will be a big plus. the $1000 government rebate sounds good!!! Catch you later Regards Di
Amber says that to me and her aunties all the time but I just treat it like something that is not really important so that she can sense that it is a irrelevance to me. I am hoping that she can learn from that and not place too much emphasis on hair as she grows up.
Jen's got a great wig and it suits her and as you can see from a lot of people on this site, they look fantastic. Have she seen the people on the site yet? I think she is lot stronger than you think she is and I know that she will get stronger and stronger over time. Strength comes with alopecia and now she just needs to experience all this to become a beautiful adult.
Thank you! The kids at her school did not know exactly what was going on but they did notice the spot. The rest I was able to cover. She goes to a small school so they were very good and did not tease her. she basically told them she did not want to talk about it because it was a long story. I think it was harder because i knew what could happen and what was to be expected. Well she has been blessed and her hair came back within a matter of months in her initial spot and has stopped shedding. The treatments worked for her and I am just really thankful.
Comment Wall (24 comments)
You need to be a member of Alopecia World to add comments!
Join this network
I was wondering how the DCP was going if you were still doing it. Samantha is still doing the sister treatment and is having regrowth now. Even her brows are starting to make a slow appearance.
Nice tot talk to you this way. I know you have to start again with the treatment, but I am a bit sceptic about the results. So it will be not such a delusion when her hair failed to grow back
Adrienne
love and hugs
Caroline
Amber is doing great and has now have almost total regrowth. We are happy but at the same time...I am not exactly celebrating as I really don't know what is going to happen around the corner.
I still tell her straight out about what could happen so that she is prepared no what matter happens.
To be honest, the only thing that is keeping me sane is the prospect of knowing that a wig like Jennifers exist.
Are you coming down in August?
take care, stacey
Amber says that to me and her aunties all the time but I just treat it like something that is not really important so that she can sense that it is a irrelevance to me. I am hoping that she can learn from that and not place too much emphasis on hair as she grows up.
Jen's got a great wig and it suits her and as you can see from a lot of people on this site, they look fantastic. Have she seen the people on the site yet? I think she is lot stronger than you think she is and I know that she will get stronger and stronger over time. Strength comes with alopecia and now she just needs to experience all this to become a beautiful adult.
Thank you! The kids at her school did not know exactly what was going on but they did notice the spot. The rest I was able to cover. She goes to a small school so they were very good and did not tease her. she basically told them she did not want to talk about it because it was a long story. I think it was harder because i knew what could happen and what was to be expected. Well she has been blessed and her hair came back within a matter of months in her initial spot and has stopped shedding. The treatments worked for her and I am just really thankful.
View All Comments