Godz Girl

Hi guys, if you've read all these posts, you know that there has been some discussion about the purpose of the National Alopecia Areata Registry and how our information and blood samples will be used. I went back and read more carefully myself on the MD Anderson site. My purpose in posting this particular blog is not to cause a reaction or upset anyone who may disagree with what I am writing. I just feel that there is signifcant reason to believe that the registry will be doing more than jus… Continue

Hi everyone, I should clarify what I wrote in my previous blog. I got way ahead of myself and skipped over details that I feel it is only right to share with you. The Alopecia Registry is not directly researching for a cure. They are only data collecting at this point. I feel, however, that without participation, no progress can be made in our cause. And that progress can possibly lead to a cure. I spoke with my rep at MD Anderson today. She stated that answers I provide on their questionnaire… Continue

Have you registered on the Alopecia Registry? http://www.mdanderson.org/departments/alopecia/ It will help MD Anderson with research on the exact causes for Alopecia. It is also possible that you will be asked to go to level 2 and actually partcipate in a research study. I was surprised when I was asked to participate in the research. I am now in that process and would appreciate your good thoughts and prayers for it to go smoothly. I must fill out paperwork, visit a dermatologist and get blood… Continue

I am so amazed by what is happening in my life right now...some passions and hopes that have been unfulfilled for many years are starting to come true one after the other. One of them happened today, and all thanks to AW. We had our first support group meeting here in the Phoenix area. I guess there was a meeting many years back that fizzled out. But I have been here 7 years and looked a few times in the past 7 years and there has not been one. Five of us ladies came and we had a ball. It's… Continue

It's so funny how God works - everything has its own time and only He knows when the time is right. God comes along and says "OK, you're ready to receive this change and grow." I don't always want these changes. And sometimes, I have been praying for them for years and wondered why they were taking so long to happen. My journey from AA to AU started at four. Bald spots and thinning were a part of my life pretty much every spring of my childhood. I had no idea though, that ALL the hair on my h… Continue