Maria, I logged on and saw you as featured member..I love your new photos. Did you have a great time at the play. I have a tentative trip to NY planned for Aug 21 for a few days and hope we can meet up..I hope things are going well. Miss chatting with ya..Sam gets her new hair on Aug 12th....Cindy
Hi, Maria and Mia. Just thought I would come by and see how you're both doing. I hope to hear from you soon. Wishing you great joy and good success, rj. :-)
That would be awesome Maria! Spent many an evening in HS hanging around Bensonhurst..went to Bishop Ford so many of my buddies were from Bay Ridge and Bensonhurst...say hello to the old neighborhood for me!
Maria, how is it going? I am having Maria withdrawal. Where have you been? I took Sam back to my friend in CT and she had a great experience, but no crying this time. I decided to start up again on Sat. Today she has a mild rash just on her legs, but I am not going to stop. She appears to showing signs of regrowth and I am afraid to stop now. I will see how she is by the weekend. Today, I saw a small area of colored hair and she has lots of white hairs coming in now in small groups and some colored strands.I am hoping this could be the beginning..I hope we can chat soon.Please let me know how Mia is doing and your mom.
Cindy
Hi Maria
thanks for your comments....and I am thrilled to see a fellow Brooklynite on the site.Where are you from? I live upstate NY now, but grew up in Windsor Terrace and most of my family is still in Bklyn....small world huh? Your family is beautiful, and Mia is absolutely adorable. Look forward to chatting more.........
Eileen
Your kids are beautiful, must be a blast celebrating halloween in America. My husband has travelled all over the U.S. but has not been to N.Y. yet. We hope to go to the U.S. maybe next year, to travel around. Anyway, my daughter Jennifer is now 8 and she has had Alopecia since she was 2. She wears a Freedom wig with real hair its fantastic. How is your daughter feeling about having Alopecia. Jennifer is now used to it, but we have had some bad times. We are using DCP treatment on her head every week. Over Christmas she had a lot of hair growing, but a couple of months ago it all fell out. So we keep going with the DCP and hope for the best.
Maria, is everything okay? It is not like you to post during the week..
Anyway, Sam broke out in another rash 2 days after her Tue application. I called the derm and they saw her yesterday. The doctor said she had good news and bad news for me when she came in. Sam saw the resident first. She said the bad news is she has a rash. The good news is that this good be a good thing. That she believes it is the result of meds. She said her body has been upset and is reacting and that she has seen patients begin regrowth after such a rash. Sam practically has a full body rash. So, now we need to clear up the rash, give her immune system a chance to settle down and in about 2 weeks we will do another application at a lower dose. We cut the dosage in half. If she gets a rash after the next application we will have to stop the treatment. And then you will see me go BATTY.. Cross your fingers that it does not happen..It was good thing I brought her in, and not to her pediatrician. Have a good weekend!!!! GNO today to see thee movie...Cindy
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Cindy
thanks for your comments....and I am thrilled to see a fellow Brooklynite on the site.Where are you from? I live upstate NY now, but grew up in Windsor Terrace and most of my family is still in Bklyn....small world huh? Your family is beautiful, and Mia is absolutely adorable. Look forward to chatting more.........
Eileen
Your kids are beautiful, must be a blast celebrating halloween in America. My husband has travelled all over the U.S. but has not been to N.Y. yet. We hope to go to the U.S. maybe next year, to travel around. Anyway, my daughter Jennifer is now 8 and she has had Alopecia since she was 2. She wears a Freedom wig with real hair its fantastic. How is your daughter feeling about having Alopecia. Jennifer is now used to it, but we have had some bad times. We are using DCP treatment on her head every week. Over Christmas she had a lot of hair growing, but a couple of months ago it all fell out. So we keep going with the DCP and hope for the best.
Anyway, Sam broke out in another rash 2 days after her Tue application. I called the derm and they saw her yesterday. The doctor said she had good news and bad news for me when she came in. Sam saw the resident first. She said the bad news is she has a rash. The good news is that this good be a good thing. That she believes it is the result of meds. She said her body has been upset and is reacting and that she has seen patients begin regrowth after such a rash. Sam practically has a full body rash. So, now we need to clear up the rash, give her immune system a chance to settle down and in about 2 weeks we will do another application at a lower dose. We cut the dosage in half. If she gets a rash after the next application we will have to stop the treatment. And then you will see me go BATTY.. Cross your fingers that it does not happen..It was good thing I brought her in, and not to her pediatrician. Have a good weekend!!!! GNO today to see thee movie...Cindy
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