Alopecia World

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Lee 27, Female
New York, United States

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julie left a comment for Lee 6 hours ago
Lee and Kabrey Miller are now friends7 hours ago
Lee Kabrey Miller
Lee left a comment for julie 7 hours ago
Lee commented on the blog post Oh dear. 1 day ago
Lee commented on the blog post NEED help with insurance company!! Oct 8
Lee left a comment for Stacie Duda Oct 8
Rose Marie' left a comment for Lee Oct 8

Profile Information

Relationship Status:
In a Relationship
About Me:
hey Im Lee! I have had AU for 10 months now and it sux but I am dealing! I tried everything...nothing is working...so I gave up and I'm doing things that make me happy ; ) I love talking to people about this because it makes me feel like I'm not alone. I live in NYC and I LOVE music..its my life! I'm in a band where I sing and play guitar. I guess thats me in a nutshell ; )
Are you 18 or older?
Yes
Website:
http://myspace.com/leanna1127

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Lee

NEED help with insurance company!!

If anyone has any input...please help. I am trying to get reinbursed for my hair prosthesis through United Healthcare. I already appealed it...sent them a bunch of paperwork...and they denied it! I'm not sure what to do at this point. Should I try to get a letter from my doctor saying I need a scalp prosthesis, not a wig? What else can I do? I cant beleive this crap!! Its bad enough we have to go through this...and they have the NERVE to say that this is COSMETIC!!! ; ( Thanks for your help

Posted on July 14th, 2008 at 8:33pm — 14 Comments

Lee

Pretty Alopecian women

When I see a beautiful woman that has alopecia, that keeps me going. I am newly diagnosed with AU and at this point, I just don't want it to be noticable, I want to cover it up. I'm sure someday I will accept it..and I don't look bad bald. I have seen a bunch of women here that are beautiful and it gives me hope that maybe I can look like me again. In many of your pics, I can't even tell that you have alopecia! Not that I'm saying people should hide it...but for me, right now, I need to. So if a… Continue

Posted on April 16th, 2008 at 2:46am — 7 Comments

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At 11:33pm on October 11th, 2008, julie said…
you ARE beautiful. Thanks for your comments, I just have to hold on.
At 4:46am on October 8th, 2008, Rose Marie' said…
Hi Lee

We must have been messaging each other at the same time. Blue Italian hair - I have never heard of that one. I'll ask the experts at Freedom and see if they have heard of it. (Jeez, why don't they just tell people the truth about he hair they are using and why it is what they suggest for their hair piece)

Good luck with your investigations :)

Rosy
At 4:43am on October 8th, 2008, Rose Marie' said…
Hey Lee

Libby just got her hair cut - come and check out her new wig style. I was a little freaked out because I love long hair but I think it looks great.

Tell me what you think? She's a little rocker at heart that baby of mine. I'm more the blonde innocent daughter look LOL. Oh well. :)

Rosy
At 3:14am on October 7th, 2008, Rose Marie' said…
Hi Lee

I have to be honest with you Lee I don't know a lot about bonded hairpieces. What I do know is that they are usually used in the mens market in NZ for male pattern thinning. I really have no idea if they work very well for full hairloss or not. What I could see for the downside is the hair becoming damaged (if you sleep in it) and it having to be maintained. The advantages are that you can sleep in it :).

Sorry - I don't know much . Talk to the places in your area and ask the questions that you need to get answered. Like, how much, what is the maintenance, how do you look after them, what are their advantages etc.

Hope that helps.

(so pleased that you are feeling more confident in front of your bf. I knew he'd be cool. But I also knew you had to feel beautiful before you did that - and of course you are beautiful with or without your hair).

Catch you again soon

Rosy
At 3:12pm on October 6th, 2008, Rose Marie' said…
Hi Lee

Things are going well with Libby. She is in the middle of major studying as she has her end of year exams in five weeks. This is her last year at high school. Then she's off to University. She's a little stressy but doing ok I think.

How are you and your lovely boyfriend. Everything good there???

Hear from you when you get a moment.

Rosy
At 1:48pm on October 5th, 2008, julie said…
Hi Lee. I admire your courage as I do not have that and am working on it. In your pics your hair looks like mine altho dr diagnosed me with female pattern, but I truly thinks its AA.. I guess it doesnt matter, its all the same.... I am thinking of shaving mine all off and wearing a good wig but that scares me as I know it will LOOK like a wig but what else can I do... I've been hospitalized over this and have not done well...... I feel if I shaved it off it would make me accept it and I would always have to wear something but I feel I will LOOK so bad.. with it..... but what can we do Everyone on here looks good in wigs but I have such an ugly face I cant carry it.... thats what makes it harder.. what do i do? Do you know what they could do for me at a hair replacement place I go to Tues nite, as if I dont have to shave it I dont want to but I'm sure they will say to do that.... I'm scared to tell my sister as she says for me NOT to do that and do nothing, but she doesnt live this daily..... we have to do whats right for us not what others tell us right? I'm just scared as I feel everyone in my family not to mention others, will think I'm crazy but I have to have relief and I dont even know if this will give me relief.. maybe just a new anxiety.......
At 4:47pm on October 3rd, 2008, Rose Marie' said…
Hey Lee

Just thought I'd pop in and say hi. How are things going??

Rosy
At 8:00pm on September 20th, 2008, Terri said…
Hey Lee:

Your pictures are great. Your hairpieces look wonderful. I have a 12 year old with AU. She has had this for 3 years. I am not currently pleased w/ our hairpiece. Where do you get yours from? I like what you told Inez about a high pony tail. That is the one thing that my little girl misses so much. She wears a vacuum sealed wig with real hair, but I just dont like this one. It is frizzy and wavy and thin. It was about $2600.00! Tell me more about your hair pieces!
Terri
At 7:26pm on September 16th, 2008, Inez Bikic said…
Hi Lee thanks for the advice :)
I'll keep you posted on what does on with this head, hehe
Take care
xxxxxxxxxxxxx
At 8:18am on September 16th, 2008, Orbit said…
Hi Lee! Thanks for the kind compliment! Its sometimes hard to tell online but I think that with your complexion you could certainly pull off being a redhead :-) (even if its just for a few nights of fun with the beau!!). Hope all is going well for you down in NYC. Have yourself a great day beautiful!
 
 

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