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Developing alopecia at a young age

Replied Mar 19

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tony left a comment for Janna Jul 31

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Janna added 8 photos. View Photos

Jul 13

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Relationship Status:: Married

About Me:: I'm a mommy to two beautiful girls, Isley and Lynnea and have been married to my best friend, Graeme, for 9 years. We live in sunny western Canada. I'm just entering my 30's and life has never been better. I'm very blessed and I look forward to each day.

Alopecia touched our lives when my youngest daughter, Lynnea, developed it at just 8 months of age. She's now 2 and a half, and we've been seeing a naturopath and have been seeing some improvement in her immune system activity. She's even grown her eyebrows back! We know that this might be temporary, but she's beautiful with or without hair. She has a sparkling smile and a personality that just shines.

Are you 18 or older?: Yes

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My hands are shaking as I try to type this blog post. Not because I'm upset or scared about anything, but because I'm elated. I've just finished an impromptu dance party with my girls, and I'm exhausted. I was surfing this site, and decided to let my playlist run through all 16 songs. The three of us turned it up loud, crammed into the tiny computer room, and danced ourselves silly. I'm so glad that we had time to be crazy together! I'm so glad that I took the time to be crazy with them.… Continue

Posted on March 23rd, 2008 at 12:13am — 6 Comments (Add)

Learning from My Children

Tonight, while putting Nnea to sleep, she asked me to stay and cuddle for a minute 'on her pillow'. I thought I'd share our conversation... "Mom, can you stay a yiddle bit?" "No, Sweetie. You need to go to sleep now." "Pease? Just one cuddle on my pillow???" (??? denotes this little high pitched thing she does at the end of her questions) "Alright. Just for a minute..." "Sanks, Mom." Nnea then starts to caress my face and cheeks. She says "You have pretty cheekses, Mom." "Thank you, Baby.… Continue

Posted on March 8th, 2008 at 10:00pm — 7 Comments (Add)

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At 12:10am on July 31st, 2008, tony said…: Hey there been very busy but looking forward to a appointment we have sept.8th with a derm. at sick kids hospital in Toronto who has done many studies on alopecia. Like we mentioned me and my wife try to keep both my kids off of bad foods like Mcdonalds and try to cook homemade healthy food for them, so after the appointment we will ask to see a allergist or maybe even homeopath route. Her eyebrows are slowly coming back on there own but has had a sort of peach "fuss" all over head for a while and wonder if thats coming but its been awhile, she was at a week long camp and they were great with her but even putting on a T shirt she did it as fast as possible so ahe can put her hat back on "broke my heart" but didn't show her, but around neighbours and family shes out there with no hat and feels comfortable so hopefully if anything else she'll be strong and confident to feel at ease all situations............ will let you know what the specialists says hopefully we'll learn something has come up in treating this or something on a trial basis, hope your summers great will chat soon, all the best to you and your family.

At 9:49am on July 21st, 2008, tony said…: Hi Janna my daughter has had alopecia for a yr. now shes comfortable most times but wears a hat when shes not so we let her do what she wants but always tell her shes beautiful either way. Things are getting easier but we know challenges will come "if she stil has no growth", at teen yrs. We have an appointment with a leading doctor in alopecia in Sept. From what I've learned expect the unexpected with this so were thinking of seeing a homeopath. By the way my wifes originally from Calgary, great place but Bolton Ontario is home now litlle town north of Toronto...........Thanks for sharing.

At 2:32pm on July 14th, 2008, Roger said…: Hi! Im here =) You have so wonderful daughters! I love them if I can say so? Im fine thanks! Im miss my new friends from Louisville (NAAF conference). It was an amazing time for me there. I just start my new job too here in Sweden.

How are you? =)

At 11:30am on July 13th, 2008, Roger said…: Cute new photos.

Roger.

At 3:42pm on July 10th, 2008, YoKasta Martinez (aka kastababy) said…: I can't wait to see the new pictures!!! Has Lynnea got any new growth???

At 9:53pm on June 17th, 2008, YoKasta Martinez (aka kastababy) said…: Hey Janna,

I thought I would stop by and say hello and see how you and the girls were doing this week. Besides, I had to stop and see the little girl who just may be the happiest-looking baby on Alopecia World!! You know that a picture of Isley and Lynnea are featured on the front page of Alopecia World right? Every time I see that picture of your girls I just smile because Lynnea looks to be just ridiculously happy and that is wonderful to see!!!

You guys continue to rock on!!!

At 1:06pm on June 1st, 2008, LeslieAnn Butler said…: Hi Janna,
Sometimes I think aa is harder for the parents than it is for the kids, don't you? Good luck with the naturopathic remedies.
I've had aa for 30 years and in my new book I talk about kids with aa. (www.leslieannbutler.npauthors.com)
Anyway, I wanted to say hello and hope you are doing well today!
LeslieAnn

At 8:04pm on May 15th, 2008, Helen's Mommy said…: Hi Janna,

Your family is beautiful, especially your little one. My youngest is about the same age at 2. My oldest, 4 years old, though is the one with alopecia. I hope you continue to have success with the treatment. I noticed from the pics she has what looks like the hip hat underhair piece? Is this what it is? I was thinking of ordering one and wondered if it was comfortable, natural looking, etc. ? thanks. Lynn

At 9:55pm on April 3rd, 2008, Tammy Carlin (Mom of Leah) said…: We like Calgary for different reasons, but do miss the coast. We were just in Vancouver over Easter, and it was cold for the WC.

I will definately let you know of anything of the WC. I am currently trying to work with the NAAF support contacts. Are you going to NAAF conference?

T

At 7:22pm on April 2nd, 2008, Tammy Carlin (Mom of Leah) said…: Hi Jana,

My daughter's hair fell out when she was about 10 months, she will be 3 in July. I am just starting to reach out to those who have children with the same condition. We too live in Western Canada, we just moved from Vancouver to Calgary.

Let me know if you hear of any conferences, fund raisers, etc. in Western Canada!

Tammy

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