Changing our world one head at a time!

treatments? no treatments?

I posted this in the kids with Alopecia group but want to hear from those that have been dealing with Alopecia for many years.

If/when it comes to it, i'm undecided as to whether to get treatments for my 2 year old or not. I can't imagine putting her through pain for something that might not help in the long run. So I want to know how you decided if you were going to do treatments or not, those that wish they had done treatments but didn't early on or at all, and vice versa.

Thanks and I'm looking forward to reading you responses.

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Permalink Reply by Cindy and Samantha on July 6, 2008 at 10:46am: Nicole, there is no right or wrong answer as to which direction a person should pursue. My 6 year old daughter has had Aleopica for just over a year. She went from having a gorgeous head of hair to nothing and she lost her brows and lashes. My daughter has embraced it, accepts and has had no social issues due to her hair loss. She has never shed a tear or seriously asked me why she has no hair. At times she laughs and says I wish had my hair or I miss my hair. Samantha has been wearing a wig since Dec and wears headbands with hair and LOVES them.

Samantha has tried several topical treatments since May with no avail. In December she started seeing a new derm at the Children's Hospital in Boston. We since started a treatment called squaric acid immunotherapy. After several set backs and months it appears as though she is starting to experience regrowth. It is a harsh treatment and some are not for it, but it has good results. I feel that the doctors there would not suggest we try something that would not be save for a child to try. I am opposed to shots and would do nothing if that was my only choice. I continue to find natural supplements and things we can do try to stimulate her hair follicles. In the end, whether or not you chose a treatment and the kind you try is a personal choice. Alopecia is an awful mysterious condition with no exact cure. What works for one may not work for the other.

Your daughter is young and beautiful and her hair can grow back at anytime..I keep telling myself that, despite all the tears I shed.
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