What is Alopecia World to you?

18 Comments

Comment by tamgirl on July 6, 2008 at 7:09am

Dear Cheryl and Richard

I am really happy that I got an invitation to join Alopecia World.
I think it was through Facebook.
A few years ago when I had a hard time because my Alopecia, I joined a wonderful Alopecia forum in the UK.
Than I have learned that talking to others with Alopecia helped me face my fears and talk about my feelings and thoughts.
When I had a look around this site, I felt that I wanted to join this site to. The concept is different and I could have my own page here and it noticed me about discussions etc.
So for me it was really handy to log in and remember where I left reading the last time.
Within a few days I felt really welcome to this site and I met lots of really wonderful people from all over the world.

Even though I have Alopecia for so long, I still had some ghosts what I haven’t been sorting out and the members of Alopecia world helped me with that.
I also have learned that sometimes I need to be alert and don’t forget my Alopecia.
I pushed my Alopecia away for many years in the past and pretend to be just a bald girl. It worked for 20 years but than it got to me all of the sudden.
Now I have a place to go to and feel like Tam with Alopecia, instead as Tam with a bald head which I am to my friends and people who know me circle.

I have also learned because of staying in contact with Alopecia people that I like the Tam with Alopecia more than the Tam with a bald head. I feel more completed and take myself, including my Alopecia more serious. At the end of the day I still have Alopecia and before meeting Alopecia friends I didn’t took my Alopecia that seriously, so when I look back, I knew I wasn’t taking Myself serious.

Thank you all for making me feel welcome, helping me out, being honest to me and for being my friend.
Because of this site and my other favourite site, distance has disappeared for me.

Comment by nathalie on July 6, 2008 at 7:43am

since I know this wonderful website , for the first time of my life I feel normal even if I'm different because every person on this website is kind and has a particular sensibility and meet people like me reassured myself and help me to see that alopecia is not a shame and it's also beautiful
thank you each other for being so kind and lovely
this website brings me sincerity, friendship and faith
thanks a lot and excuse my english!
take care of you and go on you're not alone anymore

Comment by paula on July 6, 2008 at 8:59am

i wish i had had a support such as this when i got alopecia 25 years ago. i was scared, embaraassed, and there really was no where to turn. i was only 28, single, and didn't know how to tell my dates about my condition so i just preteneded it wasn't happening.
i went to a therapist and he told me i needed to explore my relationship with my mother to better understand why i was losing my hair! ugh! i am so thankful that we have so much information, support, and technology these days so that we can all talk amongst ourselves, attend seminars and support groups, and wear beautiful naturual looking hair pieces if we choose to! i love you all out there and i hope we all can be there for each other in times of need! paula

Comment by Larry on July 6, 2008 at 11:39am

As a person with hair, I sympathise with those who have lost theirs through no choice of their own. At the same time, I find hairlessness attractive and have enduring waxing etc in attempt to remove hair. It is an interesting paradigm to consider. I hope for the day when people are accepting of everyone no matter how they appear. This place brings some of us together.

Comment by as on July 6, 2008 at 1:39pm

I have got baldness only several months.Have had bonanza, that the at once on beginning his bald walking,am found this inspired place.Much me helped reading commentaries members.Mostly but view of beautiful bald women,their bravery and inner eye - appeal,are for me big instance,how manage its baldness and no feel other.I would like you that much tell,unfortunately I I don't know English,so for me please not to be angry.Thank you,thank you to all!!! as

Comment by Nicole on July 6, 2008 at 8:20pm

I've only been apart of Alopecia World for a short time but to me it's a place where I can get some information on AA (and all Alopecia types) from those who have it (and have had it many years). It's a place where I can get support from other mom's who have Kids with Alopecia and are feeling the same as I am and also from the rest of the AW members.

Comment by Carol on July 7, 2008 at 7:47am

If it wasn't for Alopecia World, I don't know if I ever would have been able to find the inspiration to start my local support group. Thank You!

Comment by Mandy on July 7, 2008 at 10:34am

Alopecia World means sooo much to me. I am so grateful to have found this website right away when I was diagnosed. Because of this website I was able to learn so much from real people...rather than just reading facts (and some fiction) on other websites. Because of this I was able to accept my condition very very quickly and for that I am so grateful. I tell everyone I meet about this website. This website has also allowed me the opportunity to create a group for those in Chicagoland which in turn has allowed me to meet others with Alopecia in my area. I can't say enough. Thank you!

Comment by chelsi on July 7, 2008 at 11:27am

I would like come in more often , but i speak only in french and it's too difficult to read in english. Thanks

Comment by Emma on July 7, 2008 at 5:20pm

I am so grateful i was told about this website, everyone is so supportive of everyone, it has helped me - in the last 3 months this photo was a "never gonna happen" and look at me in these short months i have been a member of this community i have become so much more content within my self, i am wearing my wigs less and less - i don't think i will ever stop wearing them because i like the way i can change my look in an instant. Thanks

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