hi my name is brandy an my daughter has alopecia her hair startd coming out n december an nw she hardly has any she is 6 yrs old her name is jazmin an she doesnt want to wear a wig to school bt she loves hats .last year she gt pickd on alot .i never heard of alopecia b4.an nw it has changd our lifes she is stronger than me an most of my family we cry mre than she does.we live n lyons ga .do u have any advice wld love to hear any u have .thank u
Thanks! I don't use anything to bond my wig down. Well, I have some body glue that works great if I know it's really windy or I think I may be doing something that could cause my wig to flip. That has never happened to me though... and my wig has never come off because of wind even when I didn't use glue and I should have. I'm kind of a natural girl. I don't put any wig caps under my wig or anything like that. It's just too bulky. I just make sure I get a wig that is small enough for my head. That is pretty hard becaus my head is soooo small. I posted to your blog about negative feedback.
Hey Dawn Brooksville is 2 hours south of Gainsville its just north of Tampa - I actually live in Weeki Wachee/Spring Hill but the mailing sip always comes up at Brooksville... looks like you've been thru some tough stuff your wig looks great! How are you feeling? Take Care, Diana
Hi Dawn - Lace wigs are applied around the perimeter of the hairline so there is no wear and tear on the hair at all. You can check out the website if you like at www.thehairnetwork.com. Here is a fairly crude slideshow of how the wig is applied. http://www.youtube.com/watch?v=qEl66Rj7Ynk
Hi Dawn,
That Waynesville is a pretty big place, Huh? Just kiddin. Actually, I grew up in Tifton and loved it. I live in Jacksonville now or the outskirts. I just wanted to say hi to a fellow Georgian. Hope you had a nice day. Roger D.
I bet that Min Pin keeps you busy. Pics of he or she would be appreciated - I love dogs!!
So the good news for me today is that I recieved my wig. It is exactly what I wanted so (after the previous mishap) I am very happy. I did not get the fray block so I am going to town tomorrow with my shopping list. I need to get sodium laurel sulphate free shampoo and conditioner, fray block, a small spray bottle that I can put a mix of conditoner and water into... hmm what else!!? I will put some pics once I have actually applied it succesfully. I must confess I put it on my head (just kinda resting on my head) and sat with it on like that for a bit... just to get a feel for it and it is long hair (16 inches, but seems longer) which is SO novel for me. I kept feeling it and swishing it. I felt a bit silly, but hey if it makes me happy right?!
That is nice that you have your church activities to help with and it must feel good to do some volunteering. I found with myself it helps to have things to focus on and a bit of a routine. I didn't know you had a son. How old is he?
I just finished some medical tests. I will find out if I have thyroid problems. As part of the tests, I had to take my basal body temperature for 3 mornings before I got up. It was very low: 96.8 farenheit, so that does not bode well as apparently if it is under 97.8 it can indicate thyroid issues.
Your hairloss sounds somewhat like mine. Mine is mainly on the top (vertex, crown) and the sides. I sometimes am surprised I still have hair considering the amount of shedding I do.
Anyway, I guess I should sleep. I hope you have a good weekend and Happy New Year.
hey dawn sorry yes it has been awhile kinda crazy around here. not married yet april 18th is when i get married but everything is great. how about with you? i got my dress and everything so im getting very excited
The only way that I can achieve getting the suction wig and tattoo is to win the lottery. Medical tattoo = $850, Suction wig = $3000+ so for now, I draw on my eyebrows and search for affordable, comfortable wigs that I can wear for 8 hours or more. So much for the fun challenges of alopecia...
Anyway, I hope that you have a Happy and Safe New Year!
It's nice to hear that the others are using tape to adhere their lace. I definitely will try that first. I have an arsenal of products at the ready! I just need to get some fray block to stop the lace fraying when I cut it... I went to get it from the craft & linen shop yesterday, but they were closed for the extended holidays... so I shall have to get that another time.
Thank you for the lovely comments. I think you would look really nice bald or with a shaved head, but it is personal preference. You have very defined features, which is good for carrying that look off - I think the eyes/lips really make it and the shape of the head. Misty looks nice bald, especially with her makeup done and nice earrings. I don't mind the shaved/bald look most of the time, it's just there are times when I feel that it is better to have hair - I know that probably sounds a bit weird, but formal occasions such as people's weddings and birthday dinners and so on. I don't always want to be looked at for being the girl in the scarf or the girl who is losing/has lost her hair. I am sure you will understand what I mean.
Do you shed a lot? I tend to shed fairly heavily and I find that is quite wearing on the spirit after a while... it seems like no matter how upbeat I am about my hairloss, there are days when just staring at the loss in the shower seems a bit too much for me. I am very lucky that my BF is very supportive and a good listening ear, as well as my mum so I tend to lean on them a bit in those times.
Do you work at all? I am not working at the moment. I have worked on and off, but due to my other health issue I find it very hard to keep working continuously full time. I have been amusing myself learning to paint watercolours! I also have a little Yorkshire terrier dog who keeps me company.
Hi Dawn!
It's nice to meet you. I've read your comments about wigs and such. I'm apprehensive about lace due to an allergy to adhesives/epoxy. So, my dream is to one day afford a nice suction wig and tattoo eyebrows. I believe those two things will allow me to feel more presentable to the world. Now I feel like I’m more aware of my appearance than ever- it really stinks. I never considered myself as vain, but I feel absorbed with looking “presentable”.
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Tracy
Yes I have relativesin GA.
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That Waynesville is a pretty big place, Huh? Just kiddin. Actually, I grew up in Tifton and loved it. I live in Jacksonville now or the outskirts. I just wanted to say hi to a fellow Georgian. Hope you had a nice day. Roger D.
I bet that Min Pin keeps you busy. Pics of he or she would be appreciated - I love dogs!!
So the good news for me today is that I recieved my wig. It is exactly what I wanted so (after the previous mishap) I am very happy. I did not get the fray block so I am going to town tomorrow with my shopping list. I need to get sodium laurel sulphate free shampoo and conditioner, fray block, a small spray bottle that I can put a mix of conditoner and water into... hmm what else!!? I will put some pics once I have actually applied it succesfully. I must confess I put it on my head (just kinda resting on my head) and sat with it on like that for a bit... just to get a feel for it and it is long hair (16 inches, but seems longer) which is SO novel for me. I kept feeling it and swishing it. I felt a bit silly, but hey if it makes me happy right?!
That is nice that you have your church activities to help with and it must feel good to do some volunteering. I found with myself it helps to have things to focus on and a bit of a routine. I didn't know you had a son. How old is he?
I just finished some medical tests. I will find out if I have thyroid problems. As part of the tests, I had to take my basal body temperature for 3 mornings before I got up. It was very low: 96.8 farenheit, so that does not bode well as apparently if it is under 97.8 it can indicate thyroid issues.
Your hairloss sounds somewhat like mine. Mine is mainly on the top (vertex, crown) and the sides. I sometimes am surprised I still have hair considering the amount of shedding I do.
Anyway, I guess I should sleep. I hope you have a good weekend and Happy New Year.
xx
Anyway, I hope that you have a Happy and Safe New Year!
It's nice to hear that the others are using tape to adhere their lace. I definitely will try that first. I have an arsenal of products at the ready! I just need to get some fray block to stop the lace fraying when I cut it... I went to get it from the craft & linen shop yesterday, but they were closed for the extended holidays... so I shall have to get that another time.
Thank you for the lovely comments. I think you would look really nice bald or with a shaved head, but it is personal preference. You have very defined features, which is good for carrying that look off - I think the eyes/lips really make it and the shape of the head. Misty looks nice bald, especially with her makeup done and nice earrings. I don't mind the shaved/bald look most of the time, it's just there are times when I feel that it is better to have hair - I know that probably sounds a bit weird, but formal occasions such as people's weddings and birthday dinners and so on. I don't always want to be looked at for being the girl in the scarf or the girl who is losing/has lost her hair. I am sure you will understand what I mean.
Do you shed a lot? I tend to shed fairly heavily and I find that is quite wearing on the spirit after a while... it seems like no matter how upbeat I am about my hairloss, there are days when just staring at the loss in the shower seems a bit too much for me. I am very lucky that my BF is very supportive and a good listening ear, as well as my mum so I tend to lean on them a bit in those times.
Do you work at all? I am not working at the moment. I have worked on and off, but due to my other health issue I find it very hard to keep working continuously full time. I have been amusing myself learning to paint watercolours! I also have a little Yorkshire terrier dog who keeps me company.
xx
It's nice to meet you. I've read your comments about wigs and such. I'm apprehensive about lace due to an allergy to adhesives/epoxy. So, my dream is to one day afford a nice suction wig and tattoo eyebrows. I believe those two things will allow me to feel more presentable to the world. Now I feel like I’m more aware of my appearance than ever- it really stinks. I never considered myself as vain, but I feel absorbed with looking “presentable”.
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Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.