When people stare I makes me so sad and stressed I learned to ignore it but when your a bald girl with patches all over your head it gets hard. I wish I had the alopecia where your hair doesn't grow.because I get so use to my hair I get happy and excited.not that many people stare.but then it grows then falls out again I always wonder why me?

Views: 271

Comment by Tamera on January 27, 2013 at 6:15pm

Me too! Your not alone, if that helps you any! I have done the AA dance for 27 years, it didn't get to the point that I had to wear wigs or hats/scarves till the last 8 years. In the last week I have set myself free from the AA dance (hair, no hair, hair, no hair....) I shaved my head, threw out all the topical steriods, stopped doing the injectables. No wig, just a hat for now, when I go outside. I am waiting for my courage to catch up with me, I want to be me without wigs and hats eventually, we all need goals, right?! Let's face it, there will always be people who stare, maybe they are just staring because you are so beautiful! Think positive, most the time we are the only ones that are really bothered by Alopecia, but the stares hurt just the same. Hang in there!

Comment by Cheryl, Co-founder on January 27, 2013 at 7:17pm

Mercedes, I know the feeling. But, if there is one thing I learned is that we will never be able to control what other people do or think. So, I "expect" the stares, and the occasional comments. My job was to figure out how to get to a point that I no longer cared if they stared or not.

Comment by Mercedes Maria Butler on January 27, 2013 at 8:12pm
Yea your right thank so much and you are beautiful too! I'm so glad I
Founded this site my hair list fell out today for the 3rd time this year.i was really sad today and it's better if I have my wig off to get the word out about alopecia areata.
Comment by Tallgirl on January 28, 2013 at 9:16am

50 years with (and sometimes without) alopecia for me. I do the opposite of Tamera, and wear wigs, scarves or hats in public.

When I was in high school, no one ever knew I had hair loss, as I pulled my forehead hair up over a half-wig and secured it with a large barrett. I changed to a full wig when the hair in front started falling out. Living without stares or questions helped me to get through high school as a normal, active, creative kid! I wore scarves and granny caps to bed in my college dorm, and by 20, my hair grew back (for fifteen years!).

Comment by Alliegator on January 28, 2013 at 12:43pm

You are beautiful and you are not alone! I have AGA so unfortunately, my hair loss is permanent. I guess that might be considered a blessing for some. I'm sure it is very difficult to experience AA. I shave my head, and I know what you mean about the stares. I just tell myself that I am going out in public bald so that maybe one day in the future, another woman won't get any stares. Hang in there! We are here for you.

Comment by Holly on January 30, 2013 at 5:39am

Stares have been driving me nuts lately, I've been going out without my wig a lot more often because it's been too hot to wear it in Sydney. But everywhere I go there are stares and double-takes, kids pointing, even some horrified and disturbed looks. It's really hard to take. The more I experience of it the more I feel ostracised and like a freak, when I know that actually I'm just a human being like everyone else. I feel so sorry for people who have had to deal with this stuff all their lives and never known anything else... at least I just have to pop a wig on to stop the staring!

Comment by Ana-Laura Giacomel on January 30, 2013 at 12:58pm

I am now experiencing a re-emergency myself after 10 years of full regrowth and I just put a head band on and tie my hair up in a clip, even though the spots are really noticeable. I go out and I do notice the stares but it just makes me sad for the people who do stare bc they're the ones who don't know compassion. When I think about the stares, I think to myself, "they're just bald spots and if I don't care then neither should they." It also comforts me knowing that I don't have cancer, which is what they probably think I have.

PS. If someone's really staring, you should just stare back! haha make THEM feel uncomfortable! :D Keep fighting and spreading awareness! Never stay silent about alopecia!

Comment by leslielondon on January 31, 2013 at 1:36am
your soo beautiful girl ive learn how to ignore nasty things like that like that but I could rember in high school crying almost everyday with time you will get stronger it dosnt get better but you learn how to handle it differently stay strong love <3
Comment by Holly on January 31, 2013 at 3:16am

Why can't we try to make it better? All it needs is some decent awareness campaigns and a bunch of money and good advertising, or a hit doco or similar. Then everyone will still look but they won't stare, and they won't look horrified, and they won't wonder. Or not as much.

Comment by Cheryl, Co-founder on January 31, 2013 at 1:35pm

Hi Holly, Many of us are trying to make the difference. But it requires our participation. It is only within the 5-10 years that people have really been willing to show their alopecia out in public. I know that Mary Marshall, started International Alopecia Day, for the reason. Each of us can do our part in education the people around us. I know I have had alopecia for over 20 years and I find that I seldom have to explain to people what alopecia anymore. When I was first diagnosed it seemed that nobody knew what it was.

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