I have been getting Kenalog 10 ( injections of steroids) for about the past 5 months. I go every month on the exact day. I have notice only in spot hair growth, however every time I go I also notice 2-3 new bold spots and some older ones just spreading. I get sick every time I get the injections ( head hurts, nausea, dizzy) I just cry, not to mention the side effect of the dents in the skull ( Atrophy) . I started to get panic attacks and major anxiety that led me to the ER. I am now taking beta blockers and other medication due to the stress of having alopecia and receiving the injections. My question is, should I stop the injection and just let the hair take its cycle of falling and hope it returns some day? Can I be comfortable being bold, how can any get through this. I need help, its a first for me and I just want to cry.

Views: 1753

Comment by cathy on February 12, 2016 at 10:59am

Thank you all for response. I agree about the stress thing, I was NOT stressed when this all started, in fact I was the happiest I can remember. I did stop the shots and that's when I notice my stress, anxiety, and health started feeling better. I think I will invest in a wig so Chris for hair yes I would like more information. Thank you all I have found that this website helps me so much, I am learning to cope with this. My AA is a bit more worse then it actually says when you research info, I currently have more bold spots then it says and they are spreading I can see myself going bold. 

Comment by Kapish Agarwal on February 12, 2016 at 11:04am

Hi,

I am suffering from Alopecia Areata since 2 years.As suggested by doctor at the initial stage, i.e 2 years back I was given injection in my scalp(Kenacort injection). Within a week after taking the injection, my hairs started falling rapidly and I lost 100% scalp hairs as well as 70%body hairs. After that I never took injection. Started and tried lots of home remedies and ayurvedic medicines. Now 60% of hairs are back. Waiting for rest 40%.

So I suggest not to take injections.

Comment by Jordyn Napier on February 12, 2016 at 12:29pm
I would recommend giving your body a break and letting yourself have maybe a couple months of rest from the injections. I have heard how painful they can be and how much trauma they can bring into someone's life. My sister is supposed to apply medicine to her scalp twice a day but she stopped because the burning pain and itching sensation was unbearable! Sometimes out body tells us in obvious ways what it needs and from your story maybe it is asking you for a break. I am sending you all of my love and support, your strength shows that you will preserver through this. I think investing into a nice wig is a great idea too! And on the bright side you are seeing hair growth which is always a good sign. Hang in there, you can do it.
Comment by Michelle on February 12, 2016 at 12:39pm
I've stopped doing the injections because of the dents they create and I'm scared it will deform my whole head and I don't want that lol...i really wanted to answer you because i've been through the same as you. When this started for me 7 years ago I would often get anxiety attacks too. I want to tell you that you can live happily on with this. Its not easy in the beginning. I remember feeling miserable for a few years because I felt that without my hair I could never feel happy or pretty again. I mourned and mourned and wallowed in self-pity until one day I made the decision to no longer base my happiness on this because if I was gonna wait for my hair to grow back to be happy I was gonna be unhappy a hell of a long time. I made the conscious decision to no longer let my hair loss control my mood or my happiness and I can honestly say that I am so very happy right now. My hair grew back since then and fell out again 2 years ago. At this point what I find the hardest is going from hair to none. There is a medication called Xeljanz that my dermatologist suggested but I am so hesitant to take it because I know I can't stay on those pills all my life. Therefore I would take them for a while and feel somewhat better (?) until I have to get off them and go through the motions of losing it again. For me I don't find its worth it. I put a ? There because I can honestly say that even when my hair grew back its not like my confidence sprung back one time or I really felt entirely whole again. This experience changes you at a very deep and even spiritual level. You think everything would be so much better if only you had your hair. But then when you do it barely makes a difference in how you feel inside! Loll so I say yes you can feel good about yourself regardless of hair or no hair I think its something that you will just need to work towards. Also, I think you should really really start to meditate. Meditating was probably the biggest step i took to peace of mind. It really changed my life and I have not had panic/anxiety attacks since I started and this was about 5-6 years ago. I wish you the best through this journey. Time heals xx
Comment by Michelle on February 12, 2016 at 12:39pm
I've stopped doing the injections because of the dents they create and I'm scared it will deform my whole head and I don't want that lol...i really wanted to answer you because i've been through the same as you. When this started for me 7 years ago I would often get anxiety attacks too. I want to tell you that you can live happily on with this. Its not easy in the beginning. I remember feeling miserable for a few years because I felt that without my hair I could never feel happy or pretty again. I mourned and mourned and wallowed in self-pity until one day I made the decision to no longer base my happiness on this because if I was gonna wait for my hair to grow back to be happy I was gonna be unhappy a hell of a long time. I made the conscious decision to no longer let my hair loss control my mood or my happiness and I can honestly say that I am so very happy right now. My hair grew back since then and fell out again 2 years ago. At this point what I find the hardest is going from hair to none. There is a medication called Xeljanz that my dermatologist suggested but I am so hesitant to take it because I know I can't stay on those pills all my life. Therefore I would take them for a while and feel somewhat better (?) until I have to get off them and go through the motions of losing it again. For me I don't find its worth it. I put a ? There because I can honestly say that even when my hair grew back its not like my confidence sprung back one time or I really felt entirely whole again. This experience changes you at a very deep and even spiritual level. You think everything would be so much better if only you had your hair. But then when you do it barely makes a difference in how you feel inside! Loll so I say yes you can feel good about yourself regardless of hair or no hair I think its something that you will just need to work towards. Also, I think you should really really start to meditate. Meditating was probably the biggest step i took to peace of mind. It really changed my life and I have not had panic/anxiety attacks since I started and this was about 5-6 years ago. I wish you the best through this journey. Time heals xx
Comment by IAmReplaceable on February 12, 2016 at 12:46pm

I only went through one round of injections. An area in back of head. 2-3 days later  I had a really bad reaction: bad sleep and woke up to anxiety and the front of my head started shedding like male pattern baldness. Looking back I'm nearly confident the injection caused a stress response in me. Stopped immediately. Curiously the stupid derms keep recommending more.  I also stay away from the steroid cream as they seems to have made the area grow more.  

FYI the hair in the area grew back sparsely a few weeks after injection but fell out again. 

Comment by chris for hair on February 12, 2016 at 12:49pm

Sent you a friend request. From your photos there may be a simple solution for now. If this is the current state of your hair, you don't need a wig. 

www.thehairreplacement.co

Comment by Daniyel on February 12, 2016 at 2:30pm
Im now 49. I lost my hair at 3, 5, and finally at 8. I have tried every know theoretical source of "cure". I have paid thousands of dollars. NOTHING HAS SHOWN ANY, NONE!!NOT ONE % OF GROWTH. Stop wastibg time, money, pain and suffering. I have chosen to pursue biochemistry. My work continues and im not prepared to share the results thus far. That said I will say this, our conditions genesis is primarily Mold!
Comment by Debwp on February 12, 2016 at 5:23pm

The reason I rarely comment on this site is because of IGNORANT COMMENTS from certain parties on here. I stated clearly that my comments are my truth, NOT EVERYONE is tuned into their own levels of stress or even be aware of their own emotions.

This is a copied quote from the National Alopecia Areata Foundation's website:

"Alopecia areata is a highly unpredictable and cyclical condition..... No matter how widespread the hair loss, most hair follicles remain alive and are ready to resume normal hair production whenever they receive the appropriate signal. In all cases, hair regrowth may occur even without treatment and even after many years."

This is supposed to be a supportive environment for fellow sufferers, not verbal slanging matches aimed at others.

Take care of yourself Cathy, take advice only from those who have AA in check, are positive in their outlook and are living proof that this condition can be overcome.

Comment by suburban mom on February 12, 2016 at 7:08pm

I couldn't take the headaches caused by the injections so i stopped them.  my hair was falling out anyway, but it was keeping my eyebrows.  i had them tattooed on.  that way, the pain was a one time deal and i feel better since i stopped the shots.  btw, the steroids did keep my asthma under control, but we have fixed that problem too.  i feel more like myself without the shots.  the headaches were debilitating and they lasted for days

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