It's Hair Loss Support At Its Best
Hi I am brand new to this site. I joined because I was looking for people I can relate to. I recently found out that my doctor thinks I have Frontal Fibrosing Alopecia. I have had so many test in the past four years. That is when I started to notice my hair loss.
The first time I noticed a slight bald patch was after a hair cut appointment. I thought my hairdresser had maybe put the blow dryer on a little too hot. I did not go back to get my hair done for one whole year. The hair never grew back. I started noticing more hair loss. I had already noticed that my eyebrows started disappearing. Those were getting worse as well. I brought it up to every single one of my doctors. They all thought I had a thyroid condition.
Time went by and I noticed more and more hair loss from my eyebrows, my arms and my hair especially on the sides. The front of my hair there were a few hair follicles left and the skin started turning a whitish color. Apparently that is the scaring.
What really makes me angry is that I have been going to the same dermatologist for years. She never mentioned this condition in the past she was giving me shampoos and checking my thyroid. I had done some research and I told her on this last visit that I thought I had Frontal Fibrosing Alopecia. She looked at my hair and said yeah it looks like you have Alopecia. I was thinking really! You never mentioned it before. She took a biopsy and it came back inconclusive.
The dermatologist gave me a topical steroid cream. She wants to give me the steroid injections but I'm not sure any of that will even work.
Does anyone have any advice or suggestions?