Chronic telogen effluvium after IUD birth control and stress

I wanted to start off saying I had the biggest head of thick coarse hair that i always took for granted. I was the one who would walk into a hair salon and everyone would argue you take her no you take her, it just was so thick you could see every cut mark made with their scissors everyone tried thinning my hair with the thinning sheers. It would take hours to straighten it with its coarse wavy thick texture.... I honestly at the time thought it would be nice if i only had half of this hair. I went to hair school and became a cosmetologist. I was always told by every hair stylist or teacher in hair school it was the thickest hair they ever felt.

Well in 2011 I went on the IUD, I also had some stress in my life i would say extreme stress but i had been dealing with that for along time, my boyfriend was cheating on me and domestically abusing me for about 5 years so it all was very stressful, I had lost all my friends and acquaintances and had to move my ex had money and owned a local business. Anyways into approx. 7 months before my hair texture started to change i had the Iud in, Oct 2011 7 months after I had to move and extreme stress and PTSD hit, I didn't want to live in a town where he lived, (a lot of rumors and such)

Anyways in about June my hair texture started to slowly change it had no life no movement it was kinda fuzzy in texture, it was limp, lifeless and no bounce started to diffusely thin, i thought this is odd and cut it short, well then it felt the same I cut it shorted and shorter and shorter thinking it would correct itself. Well then about a year later all i would see is hair everywhere hair in the shower hair in the sink hair on the bed i couldn't run my hands through my hair without tons of hair falling out. It got stressful when i use to have a head of huge thick hair. anyways every day it was hell waking up it was the first thing i would think about when waking and the first thing i would think about going to bed.

I removed the IUD, that same year, the gyno thought I was crazy and didn't really act like she wanted to remove it I insisted. anyways, I went to vitamin world and blew about a grand on vitamins juiced as well.......

It got so stressful watching but the worst was the texture I could keep running my hands through my hair it didn't even feel like hair it felt like I went through chemo, it would fall out thin everywhere with a white bulb at the roots. I eventually couldn't deal with watching it everyday so I shaved my head yes that's right took a clippers and just shaved it, I cried but I felt so much better doing it.

I was really sad because no one understood why I shaved my head they would all be like your hair was fine your not losing it, I explained I was the most frustrating thing is people think its all in your head when it isn't. anyways after that I wore wigs, it sucked I must admit but for some reason I thought it might grow back, after all I do have a degree in cosmetology, I know quite a bit about hair I practiced at least 8 years. Something was wrong and I know it had to have been going on internally. I wanted virgin hair I didn't style it or color it I just shaved it and let it grow out wearing wigs. I sometimes had dandruff and like a burning and flaking which is odd because i never really had that before and it was more apparent with the shorter hair/shaved head

Time went on my hair grew back it took awhile but it did I used Rogaine which made my scalp pink and flaky, I also went to a salon where they took pics of my scalp with a microscope you could see the hair follicles some hairs coming out of them some were clear, some were brown, this guy had no degree but was a cosmetologist who specialized in hair loss, he recommended these products from capilia which was a shampoo a conditioner and also a scalp lotion. He did say there was a bit of flaking but told me to use these I was skeptical. He explained hair loss is like a garden and you should make sure your scalp is in good condition . Anyways I walked out spending about $150 once again on all this hair stuff.

I bought the hair max laser comb and used it for about 9 months and did not notice much of a difference but now that I think about it I wasn't shedding as much but I can't say it worked or I stuck with it that was more money down the drain.

I tried pure onion juice on my head leaving it sit I will say I noticed good results and regrowth around my recession with this old home remedy I would say its the best however your gonna stink, now as for working to regrow all my hair no that didn't do it but I had little fuzzies coming back and it stopped some shedding, It did stink though

I went to 3 different doctors over this time had my thyroid tested Nope everyone told me that was fine.

I got tested for STDs even thought I didn't think I had any but I did have a cheating significant other for 5 years, and nope no STDs

I got tested for diabetes, No diabetes

I got tested for Celiac disease No celiac disease

I got tested for food allergies, No food allergies

I got tested for food intolerances, it came back I was intolerant to mushrooms, pineapple, whey and cranberries I also know I am very much lactose intolerant however I did not test for that because I already know I am. I spent about $600 on this so I know what foods to avoid so my body doesn't do an auto immune response

I was surprised I was expecting a gluten intolerance but nope no gluten intolerance

Now lets talk about now I found out I was pregnant however this hair loss started 2 years ago.......

Anyways I was given a bunch of prenatal pills and vitamin b vitamin d, fish oil, and a few other vitamins I spent a good $400 on that

I went to the dermatologist where I told the assistant to tell him not to bother telling me to use minoxidil and I wanted something else from him. He did a pull test and listened to everything I just explained and told me that I had telogen effluvium (which I already knew) it happens with girls who have extremely thick hair after stress, he told me its a form of non scarring alopecia and I would not loose ALL of my hair. ALSO SAID THERE WAS NO NEED FOR A SCALP BIOPSY. he told me my hair looked fine just like everyone else tries to tell me, now I know I'm fortunate compared to some people on alopecia world I do have hair, however this is a mental and distressing type of hair loss because everyone chalks it up as your being dramatic or your not loosing your hair because you still have it. Anyways the dermatologist told me to use Rogaine minoxidil which I knew he would and told me that from the PTSD and stress I have to solve that to get rid of the hair loss. I told him I had already had went through therapy for the domestic abuse and it just makes me relive the horror I went through and that I would rather forget and move on, he still referred me to a deem/psychiatrist who he thinks can help because they have a degree in both.

My regular doctor I expressed how sad I was because of the hairloss and how I don't want to be here and how depressing it is he recommended Zoloft, I went home read the side effects one is hairloss. IF SOMEONE IS DEPRESSED ABOUT LOSING HAIR AND THEY ARE A WOMEN ISNT THAT NORMAL? SECONDLY WHY PERSCRIBE ME SOMETHING WITH A SIDE EFFECT OF "HAIRLOSS" IF THAT IS WHAT IS CAUSING THE DEPRESSION. I didn't even bother taking it.

I am writing this just so fed up I am so sad its like yeah I have wore wigs I'm 30 now I know I'm no spring chicken but both my grand parents had pretty full heads of hair at age 60 so why am I losing mine? some days because of it I don't want to get out of bed I don't want beauty to be everything but I want to look normal I can't even style my hair its so disgusting and feels gross and looks all stringy and straggly and nasty but hey at least I know it right.

I know this is chronic telogen effluvium, I am obsessed every day I would say I spend about 5 hours online researching hairloss chronic telogen effluvium.......diffused alopecia. I really don't believe I have genetic alopecia I have 10 aunts and uncles on one side and about 2o on the other only one uncle has hair loss and it came after stress. My grandmas have beautiful heads of hair.

I want to know why me Its so frustrating I just hate it how can you smile and act happy as your hair is shedding out of your head. I'm now pregnant and the hair loss is still coming if not more and i haven't even delivered yet. THIS HAIR LOSS STARTED BEFORE PREGNANCY AND NOW IS WORSE. I was told too telogen effluvium also comes after pregnancy so its pry gonna get worse.

I also ordered Kernique hair kit...... and nothing really i knew it wouldn't grow anything back because I am a licensed cosmetologist however I just want my scalp to be healthy to know I am doing everything I can.

Did I mention I have had blood work done too?

I want to get my vitamin levels tested and also go to a gastrointologist, I want to check for yeast over growth in me, heavy metal poisoning, vitamin deficiency go to an endocrinologist hormone doctor but my doctor won't refer me until after the pregnancy maybe get some medication for anxiety because that's not helping the hair loss any.

I want to hear help, no put downs, and I want to see if any doctors out there know anything else that will help or anything else I should be tested for it has to be internal. Please leave messages I'm so bummed and just want this to stop I know the derm said wouldn't go bald but at the rate I'm losing hair it feels that way

Views: 1537

Comment by rebeccasuelin on January 18, 2015 at 3:32pm

Hosch,

I am very sorry for the roller coaster of emotions and testing you have been through! As hard as it is, you must stay positive. Don't let your hair define you. Your hair does not make you the person you are and your hair does not determine your beauty. If you are beautiful on the inside, it will show on the outside. Stressing and obsessing over your hairless is only going to make it worse. More stress, more hair loss.

It is very frustrating that there are no solutions or cures to hairless, but that's because there are so many other life threatening diseases that are being funded for scientific research. The research for hair loss is happening, just not as much and not so quickly.

From the people I have met that have alopeica, any of the medications/steriods/treatments did not work for them. I will never understand how a doctor can give you toxins to put into your body when toxins are the reason why your autoimmune system is out of whack to begin with.

I refused medical treatment and am trying an all natural approach. The most important part of it is to stay positive. Don't let this control your life. Especially being pregnant. Focus on your overall health and being stress free so your child isn't affected. I practice yoga everyday and it is so calming.

Own your situation, accept your situation and come up with a plan that you are comfortable with. Doctor's can tell you all day what to do, but it's what you are comfortable with that is the most important. I wish I had better answers to give you.

Again, my best advice is to stay positive and take control of your emotions. Good luck!

Comment by Hosch on April 1, 2015 at 9:41pm

do you have telogen effluvium 

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