I have to be up for work at 9:30, yet here I am wide awake at 3:33am. Too much on my mind to sleep. I feel there is no one I can honestly talk to that can truly understand. I've looked thru the forums on this website, looking for something that seemed familiar... but came out empty handed. I tried starting my own topic, but 3 days later it has had views but no responses. Perhaps I am being too impatient, but when there seems to be no support on a website that is meant to offer support, one may feel more alone than they had before seeking the support. I honestly don't write this seeking sympathy. I am only trying to pretend I am clearing my mind to someone... Not sure if I'll ever log on again, though, so jokes on me.
I hope whomever it may concern can make the best of their life. I sometimes catch myself thinking this condition has ruined my life, but then I remind myself it is what it is and what is isn't ruined if it still is. If you by random chance do feel you are on the same page as me, perhaps other people aren't even needed for you to enjoy your experience, or perhaps you just need to keep looking? Only time will tell, I guess.

Views: 182

Comment by Aimee on September 7, 2013 at 7:44pm
Hi, Matt. I'm sorry you feel unsupported. Scarring alopecia is pretty specific (your previous post) so it could be that you haven't gotten a response because people online over the past few days haven't experienced it. For example, I don't usually respond to posts about telogen effluvien or Frontal fibrosing alopecia because I don't have those things, although I am on this site all the time.

Please don't give up on this site. I've been on it for 4 years and it has been a wealth of support and information (I have alopecia universalis.)

You might want to go into the chat room (main room in the right corner of the screen). Then you'll see who is on and perhaps chat with them in real time.
Comment by Dominique Cleopatra on September 7, 2013 at 8:26pm


Comment by Jessica Hoschouer on November 3, 2013 at 4:06pm

All that I can think to say is that your hair/looks doe not define you, your personality and actions do.


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