Please give me some suggestions to help my daughter:)

My daughter was just diagnosed with Alopecia and I can see it is going to be devastating. I am supportive since I have it myself, but I understand how a female might feel a lot different. If anyone would like to be a pen pal for encouragement I would be so appreciative!

Views: 29

Comment by Stacie Duda on April 25, 2008 at 4:56pm
how old is your daughter? age can play a huge part on how the person chooses to accept having alopecia. also, it depends on his/her personality.
tell your daughter this --> one of my godfather's friends once told me, "God created a few perfect people on this earth. The rest of them He covered with hair!" ...although no one is "perfect" I still got a good laugh at the saying.
i diagnosed myself first and then the doctors did a few months later. I wish I didnt wait to shave my head. the doctors will give you false hope. don't let your daughter go through the pain of having to watch her hair fall out slowly.
its like band aide, just rip it off and get it over with. it takes guts to do it, but with a support system anyone can do it!
I would love to help your daughter in any way that i can.
Comment by Stacie Duda on April 25, 2008 at 4:59pm
also, my email is
dudas952@strose.edu or gymflirt122087@yahoo.com

if your daughter is down in the dumps and needs someone to talk to I will email you my cell phone number. I know that is a personal thing to do, but alopecia can get pretty personal!
Comment by Orbit on April 25, 2008 at 5:06pm
Hi there,
I'm happy to help too! Send me a private message if you like and I'll forward my contact info. Its nice of you to think that a female perspective may be helpful!
Comment by kastababy on April 25, 2008 at 8:56pm
How old is your daughter?? Depending on how old she is and how far she is in school, it may not be as devastating as you may think it is going to be. As someone who grew up with alopecia, I can tell you that your reactions and how you treat your daughter (both consciously and subconsciously) will have a bigger impact on how she sees herself and how she enters into future relationships with men as an adult. I don't know what I would have done without my daddy growing up -- he was my best friend in the world and he taught me never to settle for other's opinion and valuation of me and to make that determination for myself. Your experience with having alopecia will also be a big comfort to her, simply because she will see that she is not alone. I wouldn't mind writing to her, so email me your information and I will be happy to do so! My email is sxyscorpio901@comcast.net if you would like to pass it along.
Comment by John on April 27, 2008 at 2:33pm
Thanks everyone! Alex shaved her head today after reading your comments over and over again. It was so hard to watch them buzz it...it took all I had not to cry. I really hate the thought of her being teased or separated from others over something so simple. I let her read what you ladies wrote and it seemed to provide her with some comfort. I am going to go into school this week and talk to the kids...She is in fourth grade and really nervous to go in tomorrow. Thanks for everything:)/
Comment by kastababy on April 27, 2008 at 9:55pm
your daughter is beautiful and beloved -- and as long as you are there to hold her hand through the difficult times, she will be just fine. She is fortunate to have a father like you -- keep your head up and let her draw from your strength!!!
Comment by Alex on April 28, 2008 at 12:14am
hi! ive had it since i was 4 and now im 17 and i actually love being bald. i think u said in one of the posts that your daughters in 4th grade so im a lot older, but i think we still kinda are going through some of the same things...going to school bald, meeting new friends, ect. if theres anything i can do at all to either talk to her or whatever else she need, dont hesitate to ask! my mom and i are also very involved in organizing events for kids in the nyc area so im going to see if she knows of anyone thats around her age that maybe she can relate to a little bit better. just let me know. =)
Comment by gerald on April 28, 2008 at 1:25am
You are a good parent.
Having good support from family and friends can help.

I know my bald beautiful wife, had good support as a bald girl. She wore a wig at school but not only her family members, but her friends also knew she was bald, and they learned that she was a healthy person, that she just had alopecia.
Comment by gerald on April 28, 2008 at 1:31am
You could also tell your daughter about the beautiful bald women on this website, including the beautiful bald women fashion models on this website, Anna Fitzpatrick and Margaret Baker, and how they sometimes model bald as a fashion style.

And how some handsome men are into beautiful bald women.
Comment by Brandy Forsch on April 28, 2008 at 11:47am
Hello, I can say that I have had Alopecia since I was 17 months old and I have had AU since I was in Middle School. I am now 29 yrs old. Just remember to be her rock and her shoulder to cry on and let her know that she is soooo beautiful with or with out hair. And let her know that hair does not make a person and that GOD has reason and a purpose for her and that she will find out what it is one day. It will get easier for her and I know that school can be hard and that kids can be mean but just let her know that she is stronger then she thinks and that she will hold her head up high.

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