All Blog Posts Tagged 'totalis' (8)

Revelations of an Alopecian (a journey into self-acceptance)

I wrote this blog post on my art website about a year ago, and having just discovered the Alopecia World website, have decided to share it here for fellow alopecians.  Any comments are welcome.

This post is a departure for me, in that I normally limit my musings to those directly related to the subject of art or teaching. But to some extent, my art has always…

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Added by Dreambird on October 23, 2015 at 4:35pm — 3 Comments

I believe (alopecia can...)

I believe that Alopecia can kill us on the inside and leave us a physical shell with a defeated spirit. It almost did that to me. We MUST nurture and pamper our emotional selves (well, too much pampering is bad of course, but go easy on yourself for at least three years) during the transition from possessing hair (and, no, I don't mean owning a wig lol) to not anymore - of course, that is, if we don't come up with a no-side-effects cure - which would be totally kick ass. Then, being bald…

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Added by Laura Adams on July 9, 2014 at 11:00pm — 1 Comment

Alopecia Mommy

Hello Alopecia World!

I'm a new mommy (two babies under 2 years old!) and I started losing my hair shortly after a minor car accident while I was pregnant with my son. I gave birth to my daughter last summer and experienced about 90% hair loss following delivery.  I'm curious if there are any other moms out there that have had this happen to them?  Or anyone that struggles with alopecia and wants to share...

I started writing on wordpress:…

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Added by alopeciamami on November 18, 2013 at 1:02pm — No Comments

Bald Bride: My Alopecia Story, Part 4

While I continued to go about my stressful life as usual including breaking up with Jonathan (more on that in the book), I met Aaron* shortly after the New Year.  During our lunch hour, I happened to sit across from him in the courtyard at WMA.  We ended up chatting about surfing, yoga, and self-reflection of all things.  He told me that he believed in working on oneself and growing as a person.  I remember noting that I liked the way Aaron thought.  It also didn’t hurt that he was lean from…

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Added by Rosanna on June 13, 2013 at 9:13pm — 1 Comment

Rosanna's LOVE U Formula

I just wanted to share my recent appearance on the news on KMIR6 in Palm Springs. I hope my LOVE U formula is helpful! It definitely helped me and my coaching clients.

Added by Rosanna on May 22, 2013 at 1:30pm — 4 Comments

I'm going to shave my head for charity!

Hi all,

Need some help and advice. I have alopecia totalis, i was diagnosed in june and now have no hair at all on the top of my head. I always said i would never shave it as iwanted to keep any hair that i had left...well it's now got too much and I thought, how about I do a sponsered shave? I want to shave my head and donate the money to some sort of alopecia charity but dont know how to go about it...any advice?

Thanks xxx

Added by Vicki Sampson on October 5, 2012 at 8:48am — 1 Comment

My story

Hello. My name is Justin Dawson. I am 15 years old & have had Alopecia for about 1 year and 4 months now. It all started in mid February of 2011. I was in my room texting some friends while chatting with my little brother, Brendan. You know how when you are texting, you look with your head down most of the time? Well, that's what I was doing. My brother Brendan pointed out a very small circular bald spot on the crown of my head. I looked in the mirror, but it was too inadequate to see. I…

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Added by Justin Dawson on June 7, 2012 at 8:30pm — 7 Comments

Healthy, just hairless- Grrrr

Hello friends.



I've been a hairless wonder for the last 10 years. Alternating between Totalis and Universalis. The last 2 years I've gone "au-naturel" and go out bald headed most of the time. I'm tired of hiding the way I look under hats and/or wigs. It's been amazingly freeing to go out bald headed...and tho it took some getting used to being stared at, it's been kinda fun. (To be honest, I just tell myself people stare coz I'm so "gorgeous" they can't help themselves. HA HA HA).… Continue

Added by Sandy K. on March 22, 2011 at 8:54pm — 8 Comments

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