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Alopecian, Eve Betts, a reality TV contestant from the show First Dates from 2007 says she receives abuse and sexually explicit material over social media.
Eve shared, "I get a lot of death threats. People saying that I should just die because of the way that I look." Her decision to remove her wig on camera during the show made her a…
ContinueAdded by Cheryl, Co-founder on September 8, 2023 at 8:00pm — No Comments
It's true, sometimes it's comforting to know that someone famous is going through the same thing you are, like Jada Pinkett Smith and Ayanna Pressley, both of whom have opened up about their struggles with alopecia. It's reassuring to know that you're not alone. However, it's important to remember that these celebrities are just people, like you and me. They…
ContinueAdded by Cheryl, Co-founder on March 25, 2023 at 11:00pm — 3 Comments
"A woman who lost her hair to alopecia and then had a double mastectomy
says she tattooed her flat chest to take control
and create a body that felt 'most like her'…
ContinueAdded by Cheryl, Co-founder on November 26, 2022 at 9:48pm — 2 Comments
"For Amon Ogyiri, a twenty-four-year-old fashion designer and entrepreneur, being diagnosed with alopecia areata at the age of twenty-four was an unexpected blow. The New-York based creative, whose fashion line Nomä New York has been…
ContinueAdded by Cheryl, Co-founder on September 14, 2022 at 8:00am — No Comments
What if you do not consider yourself as one of the young, seemingly beautiful with or without hair type.
Where do you go from there?
How do still develop a sense of self even if you do not believe that you are beautiful?
A video that really bought that home for me is the one below from one of our members, Rachel Goode entitled: “I may not love how I…
ContinueAdded by Cheryl, Co-founder on June 29, 2022 at 11:00am — 2 Comments
My mind has been on alopecia and what is the best way for us to live life to the fullest while living with the condition?
I am convinced that this is more an emotional battle than a physical one.
Our struggles seem to have more to do with acceptance, will I find a mate? Will kids at school laugh at me? How do I tell my new date? Will my spouse still be attracted to me?
My thought is, if it was just physical then “slapping on” a new wig would…
ContinueAdded by Cheryl, Co-founder on June 26, 2022 at 5:23pm — 10 Comments
This is tragic, but I think it is important that we all share this story. What can we do individually or as a community to help our brothers and sisters?
"Candlelight vigil for 12-year-old North Side Middle School student"
"Nicole Ball claims her daughter was bullied…
ContinueAdded by Cheryl, Co-founder on March 22, 2022 at 5:00pm — 7 Comments
Join me and a group of incredible women with alopecia in a Let's Talk webinar!
Adulting can be described as learning to navigate grown-up things and have responsibilities, such as finding full-time employment, paying bills, dating, and relationships, and more. Adulting can be filled with many ups and downs, let alone navigating it with alopecia.
Added by Cheryl, Co-founder on January 15, 2021 at 1:30am — 2 Comments
I came across this article on Refinery29.com and I am sure many with alopecia or children with alopecia will find it encouraging.
"Model Jeyza Gary has a rare, inherited condition that causes her skin to shed every two weeks. Two years ago, she decided to pursue a modeling career while completing her bachelor's degree in special education.…
ContinueAdded by Cheryl, Co-founder on September 19, 2019 at 11:00pm — No Comments
I love stories of triumph!
One of our members Caroline, was featured in a photography project "30 days of Gorgeous" by Toma Houston Photography.
…
ContinueAdded by Cheryl, Co-founder on August 9, 2016 at 12:00pm — 7 Comments
i feel really alone, isolated & left out.
my almost 5 year relationship hurts me because I am always to hurt.
its so hard to let someone love you when you don't love yourself.
i don't know what hurts more.
losing someone you love because of this
or
loving someone who let you lose yourself.
Added by Lishah on April 2, 2016 at 7:30pm — No Comments
I've been seeing a psychiatrist for the past few weeks because I felt like I just had too. My anxiety picked up sometime last month, it became a physical thing to me & it's not always about my alopecia (so I think). Lately I've been getting anxious in my dreams, hearing my troubled thoughts as I sleep so when I wake up I'm still anxious and being anxious is all I could think about.
I understand its an internal thing, my subconsious, my stresses and worries, dreams of suicide,…
ContinueAdded by Lishah on March 29, 2016 at 11:35am — No Comments
JUST SOME WORDS
Don't wanna be the victim,
Don't wanna play the part,
My false sense of self is tearing me apart.
I'm done telling myself lies
I'm done hearing myself cry,
The way i lived my past wont be the way that I die.
I didn't waste those years for nothing,
I didn't give'em away for free,
the things I've hated about myself,
they aren't really me.
I guess I did it to see how bad it hurt,
I guess I lit it to see how bad it…
Added by Leif Rautenbach Bridgman on April 27, 2015 at 3:34am — 1 Comment
As my 50th birthday approached, I occasionally thought about the fact that much was about to change for me. I struggled with the thoughts of impending possibilities such as weight gain, wrinkles, aches and pains, and the gradual waning of my physical abilities. But I also thought about my journey with alopecia over the past 24 years.
With alopecia the questions were…
ContinueAdded by Cheryl, Co-founder on February 13, 2015 at 3:30am — 9 Comments
I recently read an article about David Finch, an alopecian super hero artist. When asked about his emotional details in his drawings Finch responded:
Continue"It does come from both personal…
Added by Cheryl, Co-founder on March 21, 2014 at 5:00pm — 4 Comments
Mailonline.com, had an interesting article about twin, in which one had alopecia and the other did not. Below is an excerpt:
“As girls, they insisted on matching outfits, right down to the ribbons in their blonde pigtails. And as teenagers, identical twins Gwennan and Elin Thomas were inseparable, even going to the same university.
‘We were, and are, best…
ContinueAdded by Cheryl, Co-founder on September 7, 2012 at 9:19pm — 6 Comments
According to BBC World News:
"Star cyclist Joanna Rowsell hopes to be an inspiration to other alopecia sufferers after winning Olympic gold yesterday. Joanna Rowsell (centre) has become a role model for girls with alopecia (Picture: AFP / Getty Images) The 23-year-old was first diagnosed with the hair loss condition when she was 10 and her victory alongside Laura…
ContinueAdded by Cheryl, Co-founder on August 10, 2012 at 1:30pm — No Comments
I don’t know if it is just me, or if there is a real shift happening in the world. I just know I have not blogged lately because I really have a difficult time thinking of something to blog about.
Few things in my everyday life remind me that I have alopecia areata. I can’t remember the last time that someone asked me why I am bald. I seriously cannot think of one instance in 2012. In fact, these days I find myself looking for opportunities to share.
My husband saw a woman with…
ContinueAdded by Cheryl, Co-founder on June 13, 2012 at 5:19pm — 34 Comments
Occasionally I receive an email from someone saying that they wished they had my strength to handle alopecia -- as if I woke up one day without my hair and was immediately ok with it. As most members here would attest, that is hardly ever the case. Where I am today is probably where many of you will be tomorrow.
I wrote the following in response to one such email and thought that other members that are new to alopecia or struggling may benefit from it too:
You would be…
ContinueAdded by Cheryl, Co-founder on February 4, 2012 at 12:45am — 5 Comments
I am asking any of you who have decided to give speeches to schools or classes...what questions usually come up? What information do you include in your presentations? I am thinking of doing this, as an alopecian since 1963 and as a teacher now...I think I can help.
Added by Tallgirl on December 28, 2011 at 6:00pm — 3 Comments
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