Hi All,

Who's going to the NAAF Conference this year?

Hoping to meet lots of new people there.

NAAF's always a good time!

June 25th-28th 2015 in sunny Southern California.

www.naaf.org

I am the legislative liaison for the National Alopecia Areata Foundation in Massachusetts.  We have an action alert out that we need as many people as possible to provide input on their condition as possible so that we can be involved in a program that the FDA has called Patient Focused Drug Development Initiative (PFDDI).  PFDDI is a program that the FDA has begun to get the patient perspective about what is like to live with a condition and how it affects their life in order to help with…

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I don't know if anyone has started a blog about this, but since I just registered to attend my first NAAF conference in St. Louis June 27-30, I'm curious which of my AW friends are attending.

Who's going?

U.S. toymaker Mattel created a “bald” friend of Barbie doll named Ella and donated a limited quantity of the dolls to the National Alopecia Areata Foundation (NAAF).

However, the bald doll has created some controversy in the alopecia community because Ella is packaged with a wig on.

Some feel that it is not a real representation of a person with alopecia and…

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Several months ago, I decided to start taking Zinc for my Alopecia Areata, thinking it was a good thing to boost my immune system. After probably a couple of weeks on the Zinc, I began to wonder if this was a good thing to do, or not. Well, at this years NAAF conference, what I began to suspect was confirmed. DO NOT take Zinc, or anything else to boost your immune system!!! Your immune system is attacking your hair follicles, thus, boosting your immune system only aids in what is causing your… Continue

Hi fellow Alopecia Friends!

I'm relatively new to this site, but not to Alopecia! I am working on getting a support group together & expanding my network of talking to people with Alopecia! So, if you live in Minnesota (I will be a Junior in the fall at Minnesota Duluth) but I am originally from Slinger, Wisconsin (30 miles north of Milwaukee) I would love to meet & talk with you!:)



Also, is anyone planning on going to LAX for the NAAF Conference in June?!

Have a… Continue

I'm just wondering who is attending the NAAF Conference in L.A this summer?!
I'm going to be a counselor there & I am SUPER excited about it again!!:) Hope to meet some of you guys out there!

Hi Everyone,

I hope everyone had a great summer!

With the changing of seasons, I find myself with harmony.

Many of us went to Indianapolis in June for the annual NAAF Conference and had our chance to get together with old friends and meet new ones. It was exillerating!!!

Tonight we had our local NAAF Support Group Meeting and it was so nice to get back together with fellow alopecians. It always feels so good for me!

It's been quite the journey. Good days with a few bad… Continue

So I registered for the NAAF reseach because I'm an identical twin and they called me today and are sending me a package in the mail to get my blood drawn and send back to them. My question is has anybody done this and where can I go to get the blood draw done for free because my insurance will not cover it, and all of the NAAF outposts are states away.

Find more photos like this on Alopecia… Continue

The 2010 NAAF conference in Indianapolis, IN, is amazing!

Several members of Alopecia World are present and some are even making a positive difference as group facilitators and in various other volunteer capacities.

Cameras are everywhere, too.

Therefore, we encourage each of you in attendance to upload your NAAF conference photos and videos to http://www.alopeciaworld.com

We also encourage you to blog about your NAAF…

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Hi Everyone,

I hope your Summer is off to a great start!
We're off to the 25th Annual NAAF Conference in less than 48 hours!
I cant wait to see all my friends and make some new ones!

Yay!!!
Jeffrey

I really wish I could attend the NAAF Conference this year.Has anyone gone that can tell me how its been in the past?

I did it! Just booked everything and we are ready to go!!! My fiance Kevin and I are eager to meet new people! who else is in?

Thanks everyone I met at the NAAF conference in Louisville.

Take care everyone.

Roger.

In just over a day from now, I will be attending NAAF's annual conference for the very first time in my life. Of course, I owe this honor to my fiancée and co-founder of Alopecia World, Cheryl Carvery, who has been living with alopecia areata for nearly 20 years. Since it is my pleasure to support Cheryl, and given my involvement with Alopecia World, I am excited to have the opportunity to attend this year's conference. However, this means that I am going to miss seeing my middle daughter's…

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Hi guys, if you've read all these posts, you know that there has been some discussion about the purpose of the National Alopecia Areata Registry and how our information and blood samples will be used. I went back and read more carefully myself on the MD Anderson site.



My purpose in posting this particular blog is not to cause a reaction or upset anyone who may disagree with what I am writing. I just feel that there is signifcant reason to believe that the registry will be doing… Continue

I got my package for the conference now from NAAF. Im excited like a little child. Its my first and I really looking forward to it and to meet others with alopecia. I hope to make new friends over there.

Take care everyone.

Hugs, Roger.