All Blog Posts Tagged 'Alopecia' (97)

Your not alone!

It is essential to recognize that you are not alone in this, as there are 6.5 million people in the US affected by Alopecia. Embrace your new bald appearance and find happiness within yourself, appreciating the journey you have undertaken. Allow Alopecia to be your beautiful cure

Added by 559Courtney on November 13, 2023 at 2:04am — 2 Comments

Week 3 - Alopecia Awareness Month - 30 Days, 30 Facts: Spreading Alopecia Awareness

30 Days, 30 Facts: A Social Media Initiative

One innovative way to participate in Alopecia Awareness Month is by joining the "30 Days, 30 Facts" campaign. This initiative involves sharing graphics that feature a different alopecia-related fact each day of the month. 

Alopecia Awareness Month is an annual campaign that takes place in September, dedicated to raising awareness about alopecia, a condition that affects millions of people worldwide.…

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Added by Cheryl, Co-founder on September 15, 2023 at 11:00am — No Comments

Happy International Alopecia Day!

BE PROUD AND BE VISIBLE by flooding social media

with your International Alopecia Day photos and greetings!

 

IAD is a way to raise public awareness, AND to…

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Added by Cheryl, Co-founder on July 29, 2020 at 1:30pm — No Comments

Married to Mental Illness, a story about Alopecia from the other side.

I don’t have Alopecia, anxiety or depression. I haven’t had suicidal thoughts roam the sacred space of my mind, nor have I been bullied for my appearance. I am not familiar with the feeling of a panic attack or crippling social anxiety and, I have never felt so deeply overcome with mental pain that I couldn’t breathe. But - I was there for Leon through all of the above and this absolutely devastated me.

When you love someone, everything becomes a simultaneous…

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Added by Jess Tsigros on July 25, 2020 at 11:16pm — 2 Comments

International Alopecia Day 2020!

SATURDAY, AUGUST 1 will be the 11th annual International Alopecia Day (IAD) - the day to celebrate worldwide who we are.

This year, due to the pandemic, International Alopecia Day organizers request that we all will need to follow CDC and your local health department guidelines about social distancing and safety.

But, even if you can't have the…

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Added by Cheryl, Co-founder on July 13, 2020 at 10:00pm — No Comments

Alopecia Is Fashion Campaign

Hello

Has anyone seen the #alopeciaisfashion Hashtag?

We are doing a campaign to talk about issues in the fashion industry with Alopecia and also to say yes we can be whatever we want to be in the fashion industry with Hair Loss. Please hashtag #alopeciaisfashion in all your Instagram posts, twitter, facebook. The campaign is a brainstorm of hair Heals Organisation who support all affected by Hair Loss with buying wigs, beauty…

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Added by sClaire on March 28, 2018 at 9:44am — 7 Comments

New to the forum and looking for any advice!

Hi everyone, 

I found out three months ago that I have female pattern hair loss. My hair had been disintegrating for over a year but I didn't know what was causing it. I'm in my mid twenties and have a brother a year younger who's losing his hair too. I knew my dad went bald at a young age, but never in a million years would have guessed I could inherit the hair loss as a girl. 

My dermatologist has me taking 200mg spironolactone and using the 5% minoxidil foam. I'm still…

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Added by JanieMH on June 20, 2017 at 10:11pm — 3 Comments

My life with alopecia

When I think about it, when I actually stop and go deep into thought to try and sum this up, the word that often springs to mind is “challenge”. Yes a definite challenge, but whom am I challenging? I guess I’m challenging myself, challenging myself to be able to focus on other things, my children, my husband, my job and my life, which are all blessings that I couldn't do without. It is said that “Allah does not burden a soul beyond that it can bear” So who am I to question this? After all, I am… Continue

Added by AZ on June 16, 2017 at 3:17am — No Comments

**New**

I'm a 24 YO female and I've had AA for about a year and a half now. I've done the whole routine of shots, creams, different hairstyles, stress relieving activities etc and nothing has seemed to work. There's days I accept it and days that I hate it more than anything.



I think the hardest part is trying to talk to your family/friends about it and getting angry that they keep saying "It's just hair. Everyone around you loves you no matter what. They don't care that you're losing your… Continue

Added by Pmadventure on May 24, 2017 at 12:55pm — 8 Comments

Alopecia tutorials!!

Hi everybody!

Here you are my Youtube channel in case you are interested on videos related with alopecia.

https://www.youtube.com/channel/UCwSIVpu2jMWFBzU-t_69ldA

See you there!

Hola, hola!

Aquí os dejo el enlace a mi canal de Youtube donde iré subiendo vídeos relacionados con la alopecia. Si os interesa, ahí va:…

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Added by Patricia Morales on April 27, 2017 at 7:30am — No Comments

Discovery Channel features Katelyn in a Documentary

KATELYN Payne, 13, lives in County Durham with her dad Darren, 44, mum Ann-Marie, 37, and twin brother Hayden. She says:

“As my classmates and I ran inside after a rainy PE lesson, I could only watch as they wrung out their wet…

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Added by The Be Bold Team on October 27, 2016 at 3:17pm — No Comments

The most liberating experience I have ever had

Hi fellow alopecia and hairloss knowers

I am so happy to be who I am.

This year I started my university days at Stellenbosch University in South Africa, studying my passion. At this time I was still uncomfortable to be seen without my wig (I have Alopecia Universalis)- with only close friends and family having ever seen me with my untanned head.

I wanted to be brave, to shake off the cloak that societal beauty standards insisted on wrapping around my adolescent body, but…

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Added by Lauren on August 9, 2016 at 6:30pm — 2 Comments

Why I'm Not An Alopecia Sufferer

Early on when I was first impacted by Alopecia and I wanted to explain it to the few people I told.  I would say that I had an auto-immune disease called Alopecia.

One day someone stopped be as I verbalized this and told me not to ever profess/claim a disease with my mouth or in my mental thoughts.

His position was that are words and powerful, almost as powerful as our thoughts.  And that we should all be particular of the language we use to edify our lives.

I…

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Added by Kristie "IronDoll" Howard on November 17, 2015 at 9:58pm — 6 Comments

How alopecia has turned me into a coward

Hi Everyone,

First and Foremost im kind of glad(and sad in another way) to have found and be a part of platform full of Humans who think,feel,behave and have suffered the same way as i did..

Im Santhosh a 25 Year Old Graduate from India and I've been Suffering from Alopecia for Nearly 15 Years now,Ive lost my Eye Brows & Eye Lashes(Albeit not Completely but there are Circular Patches plenty of them infact) and Has Started to Lose Hair in Patches on My Scalp off…

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Added by Santhosh on October 25, 2015 at 2:00am — 7 Comments

Calling all Alopecians—Help Sasha secure a spot in the Once Upon a Tutu calendar





Sasha mother wrote me and said:

"This is my gorgeous girl sasha aged 4, the way she handles her alopecia is inspiring and brave and makes me so proud to be her mummy.

My wee girlie is currently in a competition to be Once Upon a Tutu calendar girl on Facebook I am hoping people could please vote for my gorgeous girl.

To vote go to…

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Added by Cheryl, Co-founder on October 3, 2015 at 1:30am — No Comments

My "Cure" for Alopecia...Real Talk

I have been battling alopecia areata since 2013. Through trial and error of many products and treatments I have finally found something that works and the results are unreal! That bad patch was the size of a dime in 9/2014 and grew to tennis ball size by 1/2015. Check out my page to see the before photos! These results were through the help of my dermatologist and a company with advanced holistic treatments that specializes in alopecia. 

NOW...Photo taken 8/2015. My patch that seemed…

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Added by HairJourney on September 9, 2015 at 1:03am — 2 Comments

Insecurity

I guess I do get insecure about my alopecia. The stares that come with the bald patches. Instead of asking, people just stare. I wish they would just ask.

I don't mind sharing what I look like, patches and all. But with people I don't know; it can be a little intimidating. I rather wear my hat, wig, or scarf.

I took a picture of my head to see how it was and hikers.

Added by BarbaraK on September 8, 2015 at 12:00pm — No Comments

We need a young female friend with alopecia for our daughter Allison,6

Hi all, We are looking for a friend with alopecia for our daughter who is six years old and going into first grade. We live in Plantation, FL and have only met a few people with alopecia. I want my daughter to have a friend she can share her strength and weaknesses with, a child that will understand and hopefully be friends with for life. We all know how difficult it is to have alopecia and in our daughters case, Universalis. I try to be everything for her but I know she needs someone her…

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Added by Melissa Brunner on July 13, 2015 at 4:17pm — 11 Comments

With or without

As a kid whenever I saw a fountain or a wishing spiral, I always asked my mom for a penny or a dime to toss in. When she gave one to me I would hold the coin, close my eyes and wish as hard as I could that I would grow hair. Every single birthday wish, fountain wish and falling star wish, was the same wish since I could remember. I didn’t wish for toys or candy or anything a normal kid would want. I think back to that little girl and I find my self smiling at how silly I was to want…

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Added by McKenzie Anne on June 28, 2015 at 5:00pm — 3 Comments

Frontal fibrosing alopecia - help

Good afternoon. My name is Lori, and I have been losing hair for close to 5 years. It started in 2010 as a tiny patch above my ear - that my hair dresser saw. Then that got bigger, and the same thing happened on the other side (above ear). I am still to this day, able to "hide" it, as I have a bob haircut, and unless the wind blows, or my hair is wet - you cannot see it. Recently, I went to my derm, and asked if she thought it would stop. She said I had some follicular erythema along the…

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Added by Lo on January 26, 2015 at 3:30pm — 4 Comments

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