October 2013 Blog Posts (33)

FFA

Hello everyone,

I have recently joined this group.  My FFA was diagnosed (finally) in October 2013.  However, the road to get this diagnose has been long. 

I started losing my hair and eyebrows in 2010, but since I was in menopause, I thought this was probably part of it.  However, the loss continued and in April 2011 I finally had my eyebrows tattooed, as I had completely lost the lateral part of them.  I have also lost the hair on my arms, legs and armpits.

In March…

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Added by Patricia on October 31, 2013 at 9:35pm — 14 Comments

Squaric acid question, need help

Hi, I have just made the decision to try squaric acid, it is a last resort, I have been doing the injections for 3 years and they worked and kept my hair in a condition to not needing replacement hair, for some reason they stopped working for me, so now I am in wigs.  My question is, I had the first spot of squaric acid put on my head on Friday as the trial at 2% I was expecting all kinds of reaction and nothing has happened, didn't even get red, irritated anything, does anybody know if this…

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Added by Ruthie on October 28, 2013 at 8:30pm — 7 Comments

Diseases related to alopecia?

Hey everyone. I have recently been diagnosed with diabetes & celiac disease! I have done lots of research and found out that diabetes is an auto immune disease & so is celiac disease! I also have eczema & psoriasis (also auto immune diseases). And I was wondering if maybe all of these could be related to my alopecia? Does anyone else have these different diseases ?

In May 2011 I was diagnosed with alopecia areata. A few months after I noticed a large sore under my tongue…

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Added by tantan on October 28, 2013 at 5:00am — 2 Comments

Not again !!! :(

I haven't been on here since February 2012! I have/had alopecia areata & I used topical ointments and had 4 treatments of steroid injections. The injections seemed to work as I had regrowth in those areas. By February of 2012 I had went in to remission! I had a full head of thick hair and I was so happy! Here's the bad part :(

I've noticed 2 quarter size patches on the top of my head and on the left side of my head. And quite a bit of thinning on the top of my head towards my…

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Added by tantan on October 28, 2013 at 4:00am — No Comments

Steroid injections! Are they worth it?

I've been using topical steriods for a few months and haven't really seen any difference the next step as per my dermatologist but he also said doing so can leave scars. For those of you that have tried the injections what are your opinions on them.

Added by Eddie on October 23, 2013 at 11:00am — 6 Comments

Have faith

I have had alopecia Areata since I could remember. When I was little I would get a spot here and there but it would go away and when I was little I didnt even care I was too worried about kid things haha. In 5th grade I had gotten a big one right on the top of my head. I had a big perfect circle on the top as if i were a balding grown man. I actually cared about this one because people could notice it and would ask me about it thats when I felt self conscious. I got over it and so did my… Continue

Added by Angel on October 22, 2013 at 11:45pm — No Comments

Future (child/grown-up)

Must it be assumed that everybody having alopecia as a child (< 10 years) will get alopecia totalis/universalis later in life?

Added by Annette on October 22, 2013 at 4:00pm — 1 Comment

WHY ME!

Hi.  Karen  here and I am now in my 23rd year of Alopecia Universalis and I still think..."Why Me!"  occassionally looking at others with 'green eyed envy!' 

I've always wondered IF I had acted on the advice of my first Dermatologist, whether I would still have this auto immune condition or not! I honestly believe that, IF I had FOLLOWED her ADVICE when she said "DON'T  STRESS.  GIVE YOUR HAIR FOLLICLES  THE THREE MONTHS THEY NEED TO GROW and come through" whether I would be blogging…

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Added by Karen on October 20, 2013 at 11:22pm — 1 Comment

The bright side

I made an account on here years ago and never kept up with it but I still get multiple emails every day linking me to blog posts about coping, sadness, loss of hope and other depressing topics about alopecia. I've had alopecia since I was 11 and am completely bald on my head. During the past 9 years if I've learned anything about the disease it's that it's what you make it. For all you beautiful, strong, fierce women out there- show the world those qualities! I know it's hard, but as soon as…

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Added by Jackie McClenthan on October 20, 2013 at 9:30pm — 1 Comment

Swim team and wigs?

I wear a wig and I would like to join the swim team at my school in a few weeks. I was just wondering if anyone had any experience with swimming and wearing a wig? I will be wearing a swim cap, but I'm just worried about it falling off when I dive in. I also don't want the chlorine to ruin the wig. Any tips?

Added by Lauren on October 20, 2013 at 9:30pm — No Comments

I just can't take it

I was diagnosed with alopecia last May and since then I have been losing more and more hair until now where I only have one patch left. I'm a senior in high school this year, which is supposed to be one of the best years of your life, but I feel like it's been the worst. Everywhere I go I always get second glances because of the scarf I have to wear. I've gotten all of the snide comments like "Are you a dude, cause your wearing a dude rag." or "You look like a gangster or maybe a terrorist"…

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Added by Sarah on October 20, 2013 at 2:30pm — 5 Comments

Do you ever resent people with hair?

Do you ever resent people with hair?  I lost my hair after chemo and it never came back.  I thought I had accepted the loss, telling myself I was alive and that if never having hair was the price for being alive it was no big deal. But more often lately I see people I know who have gone through chemo and their hair is coming back and mine did not. It is getting harder and harder not to resent them.

I have read the postings about others accepting their loss and I know there are other…

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Added by rfharp on October 20, 2013 at 10:30am — 32 Comments

Alopecia and my testimony

I have had Alopecia Areata since I was five or six and I turned thirteen on August twenty-ninth, twenty-thirteen. I know how hard it can be, I used to have really thick long hair, I still have pretty thick hair, that is where I actually have hair. I shaved my head at the beginning of August, through my Alopecia I have learned to just be myself and smile through the pain. I believe Alopecia is not meant to discourage and break us but to uplift and strengthen us, I know that our Heavenly…

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Added by Jessica Hoschouer on October 18, 2013 at 7:00pm — 4 Comments

Is it a fetish or mere fascination? It may pay to find out

I met the bald woman of my dreams on MySpace.com in the spring of 2007, and I can't tell you how grateful I am that she didn't summarily dismiss me as some creepy dude who simply had a bald fetish.

When I saw her photos on MySpace at the time, I thought she was as fine as they come and I let her know it. Yes, I knew she was bald due to alopecia areata because that was one of the first things her profile stated and she was bald in all her photos. However, it didn't matter one bit: She…

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Added by rj, Co-founder on October 18, 2013 at 4:00pm — 24 Comments

No words to describe

I have had aleopecia for 2 months now and i am still having trouble my hair was well it was my hair it was important I use to to have thick hair and now I don't. I use to love too take a shower but now I dread it knowing that washing my hair makes my hair fall out. Or brushing it. Now when ever I go out side I have to have my hair up because I can't afford a wig. I have the love of my family and friends and I know they love me but they don't know what it's like being 20 and going bald. My… Continue

Added by Addy on October 18, 2013 at 12:42am — 3 Comments

I know how you feel

I know how you feel. After 20 years some days I still feel like an alien. Tired of people looking at my wig while talking to me and treating me different than people with hair. This condition keeps me paranoid and depressed.

Added by shirley on October 17, 2013 at 8:00pm — 1 Comment

Wig falling off ;)

Has anyone's wig slipped off or almost slipped off in public?
I sweat a lot (Hyperhydrosis ) and my hair gets drenched under my wigs and am always adjusting it. I sweat to much for tape and clips don't grab on to my thin hair.
Any suggestions?
Thanks!

Added by Stephanie on October 17, 2013 at 3:35pm — 7 Comments

Here we go again!

Hi everyone, after a few years with Alopecia, my hair decided to grow again,at first I didn't get my hopes up as this has happened before and after a few weeks it disappears again. Well this time it grew for a few months, I really was getting used to having hair again, every day I would look in the mirror admire it and also my eyebrows. Well yesterday I woke up to see hair on my pillow, when I touched my head I had a handful of hair, now I have several very large bald patches and I have also…

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Added by sylvia moneypenny on October 17, 2013 at 11:00am — No Comments

Changes

During the past ten years, there is one thing that I have learned about alopecia: change. When my alopecia first started, it was one perfectly round patch about the size of a quarter. That changed to multiple spots, which all grew back in. And then came back. And then went away in different locations, including most of one eyebrow. I lost my sidewalls about five years ago, and never gained those back. Then, the big blow came, universalis. No eyelashes, both eyebrows,body hair, and all my…

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Added by Bonnie on October 15, 2013 at 6:45am — 2 Comments

Bhringraj (eclipta alba)....

....my daughter's naturopath suggested applying this topically...has anyone tried it?

Added by carolyn on October 14, 2013 at 10:32pm — No Comments

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