October 2011 Blog Posts (72)

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My experiences with alopecia

Sometimes writing about it is the only way out.. here's my latest blog post.. would be great to hear from you guys.. :)

http://alopecia-anonymous.blogspot.com/2011/10/fourth-visit-to-dermatologist.html

Added by Nachiketa Sanyal on October 31, 2011 at 2:43pm — No Comments

Hello..I usually don't post at all but was wondering...if you knew about this treatment

http://www.shmuel-gonen.com/english/tv,pr-karaso



looks like it is well intentioned...but have come to be suspicious over the years ago about remedies...but always open minded...

His name is Shmuel Gonen...just wondered what you thought...put a request into his office to get back to me...questions on… Continue

Added by G on October 31, 2011 at 2:11pm — No Comments

Alopecia universalis diagnosed at age 2 yrs old

My daughter is 3yrs old now but lost all hair at age 2yrs old, no eyebrowns, eyelashes. Im just interested in others diagnosed so young. The doctors at St Louis Childrens Hospital said she will most likely never grow hair at all because she was so young and so severe. Im just curious what you all have seen, had happen. Thanks! Im new at this so not sure if Im doing this correct, Lori Ann

Added by Lori on October 31, 2011 at 12:00pm — 2 Comments

A documentary

Some of you might be aware of this documentary, but I just found out about it and I thought I would share this with you.

http://babyletyourhairhangdown.com/

~Shelly

Added by Shelly on October 30, 2011 at 11:40am — No Comments

Hi All I am new and not sure how this works but I am going to give it a try anyway.

Hi Everyone,

I would like to start out by saying that I wish I knew how to do all the things on this pc that everyone else is doing but I have only just started useing a computer so far I have been able to get emails and open them and can write an email back and thats all till a few days ago when I wrote in the search bar what is alopecia and this site came up I clicked on it read one post after the next all my out doctor told me is I have alopeica and there is nothing you can do about it… Continue

Added by darlin1925 on October 30, 2011 at 10:00am — 3 Comments

"Something strange in alopecia world"

Cam e across this interesting article: http://globalalopeciamission.org/something-strange-in-alopecia-world/



I'd like you guys to read and share your thoughts..

Is the "alopecic community" becoming far too inward looking and ultimately resigned to its fate?

Is there a sort of "cottage industry" catering to us that secretly doesnt want us to do anything about it?



I mean, why the… Continue

Added by Nachiketa Sanyal on October 29, 2011 at 1:23pm — 25 Comments

Confused

I had AU few years back. Occasionally, it falls and grows back. Sometimes, i went for the steroids shots, sometimes I don't. The shots are horrible and gave terrible side effects such as pimples, irregular periods and putting on weight. Recently, I found my hair dropping excessively again. I am confused if i should take the shots again or just leave it. If I were to do nothing, will my hair grows back again like it did before? Have any of you been experiencing the same thing?

Added by 3mee on October 29, 2011 at 12:38pm — 8 Comments

AA's link with Celiac disease

Just came across this article which says that according to latest research, there might be a link between autoimmunity disorders and Celiac disease which is basically an intolerance of wheat and similar food.



http://thyroid.about.com/cs/latestresearch/a/celiac.htm



I even read a comment on some post from a former AA patient that she tested herself for Celiac and was found positive. She gave up on wheat… Continue

Added by Nachiketa Sanyal on October 29, 2011 at 4:06am — 8 Comments

Ayurvedic treatment?

Has anyone tried ayurvedic/herbal treatment? Can they share their experience?

Added by Nachiketa Sanyal on October 28, 2011 at 11:57am — No Comments

Nail disorders

Hi everyone I would like to take a pole for everyone with hair loss answer the questions "Do you have any types of nail disorders?" For example my son has pitted fingernails and he has alopecia universalis. Thanks everyone just want to see if this question is useful to people out there. :)

Added by BERNADETTE on October 28, 2011 at 10:00am — 14 Comments

My experience with steroid shots

I have several bald patches on the back of my head from last 3 months, most are small and not visible, but one is pretty big (almost 2 X 1 inch) and is slightly visible if my hair is not properly arranged, also a small patch on my beard.



I started taking steroid shots about 2.5 months back, have taken my 4th shot this weekend. There is regrowth of tiny hair in my small patches,but none yet in the bigger one. Also, on my beard, I'm having white hair growing. I'm also getting pimples… Continue

Added by Nachiketa Sanyal on October 27, 2011 at 2:12am — 7 Comments

Green nails

Just painted my nails green. Now watching the five on fox. well, this is a blog.

Added by Laura Adams on October 27, 2011 at 2:08am — No Comments

Tired and sore

so far i have a 4inch by 4inch bald patch on the left of my head and a coin sized one on the right but for the last few days iv been really tender on the top of my head.....like iv been bashed hard on the head and i had this before my hair fell out on the sides so it looks like i might not get away with wearing my thick hairband much longer and have to just shave it.i think shaving might help me feel more in control somehow.

the only thing i don't get about alopecia is every time before… Continue

Added by laura on October 25, 2011 at 3:30pm — 6 Comments

And life moves on

This is not another blog about how much life sucks because of alopecia. This is a praise report!!! Although just recently I was diagnosed with and have lost complete body hair I couldn't be happier. Not because I have this funky disease but because I refuse to let it put me in a place of darkness. I have been blessed with a great paying and fulfilling job, I have a loving family who supports me and we are about to purchase our first house. God is so good and greatly to be praised! Where one… Continue

Added by Michelle on October 22, 2011 at 7:30pm — 6 Comments

Photo shoot - Help!

So, my friend at church is a professional photographer and next weekend she is going to do a photo shoot of me. I'm super excited but I need some ideas! I want to emphasize my head on most of them, if that makes since. If you have any helpful ideas, please feel free to share them with me!

Added by Kaleigh McCulley on October 21, 2011 at 10:30pm — 6 Comments

New wig! :)

Got my new wig today and excited about wearing it. I know that co workers will be like ...OK, but heck with it LOL ! There is also a guy in the office I had a romantic interest in, but if he can't deal with it and this makes me lose a chance with him oh well ! Sometimes in life we have to make the most of a situation we can. When I was in my 20's and had hair I often had a difficult time styling it and caring for it. Now that I wear wigs I don't have to worry as much about that and I can easily… Continue

Added by Chellie Bell on October 21, 2011 at 9:00pm — 4 Comments

Shots

Just started a round of shots in my scalp. Anyone know what to expect? We started with a small patch to see how I respond then will do full treatment if I improve. Wish me luck =)

Added by Gabe on October 21, 2011 at 3:05pm — 7 Comments

Freckles make you smarter!

Freckles....I have lots of them! As a kid I remember the single band of freckles stretching across my nose to my cheeks. I never thought much about my freckles, in fact, I kind of liked them...they were ME!



Once I hit my teens my freckles continued to repopulate...if there was a blank canvas, a freckle was sure to appear. I thought my freckles were cool and made me different, unique, interesting.



That is until the day I read an article in one of those high fashion… Continue

Added by Jennifer Krahn on October 21, 2011 at 8:00am — 2 Comments

A little bit of info I found

I just found out today that the National Alopecia Areta Foundation set up an Ascot Fund that provides financial assistance toward the purchase of a hairpiece to individuals who have alopecia areata and are struggling financially. I was also on this other website that seemed to have a lot of wigs and hairpieces that were very natural looking...there were some on there even for kids that I really wished was around when I was a kid.… Continue

Added by Elaine on October 20, 2011 at 9:30pm — No Comments

How my trip went

Went down to Gainesville this past weekend to see The Butterfly Observatory at the Florida Museum on the UF campus...them went to the Devil's Millhopper. Wore no wig though I did bring one. Had fun, specially since my darling Dave was there with me <3

Added by Laura Adams on October 20, 2011 at 4:45am — No Comments

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