I have AA (more than 50% hairloss) and i am currently attending my victory lap at highschool. Last year i wrote a letter to my principal stating that i am allowed to wear my hat/hood
inside of school and in class rooms when ever I feel uncomfortable and if im cold as i have no hair to insulate my self. The Principal said ofcourse and the Vice principal already said that it was no problem.
Now this year Everyone can wear a hat in school but not a hood. This school year I also… Continue
Added by Laura on September 30, 2009 at 3:52pm —
Hiya everyone, I'm really beginning to think my AA experience has been triggered by some thing in the environment. I began to lose my hair in Oct 09 during which time my husband began having major skin issues (dermatitis type). He also experienced a bit of what looked like AA through his beard area. My hair completely fell out then regrew. A few months back my hair started falling out again, a lot slower this time but still falling out. Next thing hubby's hair is falling out too. Definate AA… Continue
Added by Karen on September 28, 2009 at 6:12pm —
This summer I did some service projects in Las Vegas. One night I had to go to the emergency room with a friend who had a minor ailment. I sat across from a lady who was in scrubs and had noticeable bandages all over her body. I gave a little smile and she said, "I bet not having hair makes it cooler outside." I'm not sure if hair calculates when the temperature is 120 degrees F. We both laughed and she asked me what happened to my hair. In the middle of my alopecia explanation it hit me on how… Continue
Added by Jill on September 28, 2009 at 11:31am —
Today I brought a light brown hair dye. Since I found my first patch I haven't had my hair colored. I have always been blonde and always went to the hairdresser to get it done. I have been too scared to go and get it done, since the alopecia, I went and had a cut and that was scary enough.
I'm now at home wanting to color my hair as I have this horrible re-growth happening and I feel really horrible with it, my re-growth is a dark blonde/light brown. I have a lot of new re-growth and… Continue
Added by Bel on September 27, 2009 at 11:46pm —
i finally got my tattoo
and ive had alopecia for 10 years! so i suppose this tattoo is a happy anniversary to my bald beautiful head, its not so white now.
and i plan on getting another one!
Added by Alison on September 27, 2009 at 6:37am —
i haven't had an "episode" (as i call them) in about 2 years maybe, but a few months ago i started noticing a patch again. tried "waiting it out" to see if maybe it might start growing back on it's own, and also because i dont have insurance because i'm a full time student and my job works me just below the amount of hours needed for them to offer me insurance. nice, right?? so finally i found a new dermatologist to help me, as my previous doctor had retired, and went in to start another batch… Continue
Added by Amy on September 27, 2009 at 2:02am —
Hiya All! Was just wondering if anyone else out there thought/felt that they had to change their style of clothes after they lost their hair? Just kinda curious, as I know that I did a little - just felt that somethings didnt quite suit the same. Mind you, I was like that when I used to change my hair colour or hair style (maybe it's just me) ha ha. Kirsteen x
Added by Kirsteen Forrest on September 26, 2009 at 6:16pm —
Hi Everyone- I guess to start I should tell you about myself. I'm 20 years old and attend college in CT although I am from NY. I began getting spots when I was 7 years old and they had been on and off for 12 years until last year when my hair began rapidly falling out. I decided to beat my own body to it and shaved what was left and had a wig on within a week. I've now lost all the hair on my body including my eyebrows and eye lashes. I honestly can say that I don't remember crying or getting… Continue
Added by A Eyz on September 24, 2009 at 6:19pm —
I guess the last blog I wrote was before I took my trip to Philly for the CAP conference which was over a month ago! I'm a bad blogger LOL
The conference was really cool and I got the opportunity to meet tons of really awesome people. It was rather unfortunate that my plane was cancelled the day I was supposed to leave because of the weather but I did get home the next day. I've also finished writing another alopecia story for another book, number two now :D (just waiting for it to… Continue
Added by Carol on September 23, 2009 at 7:41pm —
I was thinking the other day about when I felt the worse this time round having AA. it's happened at a slower pace than last time so I've been able to experience each stage of hairloss as it's come. I have to say that the worst time for me was when I wore hats to cover the patches but still had long hair. Then I had it cut short and parted differently but it only just covered the patches with loads of hairspray. This was so stressful, one gust of wind and my patches were on show for everyone.… Continue
Added by Lyndsey Pitchford on September 23, 2009 at 5:26pm —
Can you dye a synthetic wig?? I had someone give me one but its way too light,needs to be 3 or 4 shades darker???
Added by linda carraway on September 23, 2009 at 4:11pm —
I just got home (literally) from visit #3 to my dermatologist. Before I get into the results, I have to say that "wow", what a mind-numbing morning. I think I get WAY too worked up over things. I was really dreading the visit today for fear of going there, then having the derm tell me that there's not really much results. That compounded with the recent small spots I've seen come in would just be a kick to the nads. I was so worked up, my blood pressure reading in the office… Continue
Added by John M. on September 23, 2009 at 12:30pm —
what happened to me? for the most part of this year i have been so strong....... im losing it...... i feel ugly and icky constantly, i feel depressed and i am sick of feeling different.... my eyelashes are gone now... i have some regrowth but dont know if it will fill in, cause of course we all know that doctors dont know a damn thing with this stinkin disease.... so im losing my hair at the same time it is growing.......
and then i feel like im being a big baby, where did all my strength… Continue
Added by Lindsay on September 23, 2009 at 12:28pm —
Years of Alopecia Totalis.
Frustration & Tumultuous Adversity.
Regrowth, Pigmented White & Patchy!
No Discretion to Insult & Ridicule.
Years of Living in Accordance to Perception & Expectations.
To Satisfy, to Fulfill "THEIR" Desires.
To Entertain Needs, or Demands Of Others, Lame Insecurities.
Conforming to Others Wishes & Opinion.
All of the Above!
Added by MiNAH on September 23, 2009 at 6:41am —
I had an interesting, yet not surprising, thing happen to me while out for a fun night a couple of weeks ago. My husband and I had gone out to listen to a live band and have a few drinks and enjoy a cool breeze on the lake. I went with my bandana under a baseball hat combo and was really enjoying the music and night out. The band had finished it's first set and my husband got up to use the restroom while I sat at the table taking in the fresh air. I looked around and noticed a man walking… Continue
Added by Angie W. on September 22, 2009 at 3:07pm —
Hi everyone. I recently shaved what little hair I had left. I am not coping as well I would like. I am having fears that I will never meet anyone to share romance with. I feel like this because I don't believe that any guy is going to find me attractive once they realise I am bald. I know that there is more to relationships than looks and that it's what's on the inside that counts and anyone worth being with will think that too. However, I am attracted to people by their physical appearance… Continue
Added by kimberly dean on September 22, 2009 at 8:42am —
well i went for the haircut before the cruise. it's mostly shaven, with a high ponytail. at least that's the way i wear it. i will put up some pics of it down, which i did wear it like that on the cruise. i just think it looks a little to thin to wear down, and i was really suprised at how well it turned out. i'm happy to say i actually am really liking the haircut. i'm just really hoping that no more hair falls out, so i can at least keep the ponytail and bangs. i've gotten a little attached… Continue
Added by Amie on September 21, 2009 at 8:58pm —
I just want to say, after having AU for 2 yrs, I am sick and tired of doctors knowing nothing about it. I have gotten them once...and with other medications, my eyebrows are growing back. I also have hairs on my head now. This is the first thing that has worked for me in two years. I moved to the D.C area, and went to a Dr today for shots. He didnt want to do them because he says A) they dont last ( I KNOW this already...that have to be done once a month) and B) they will leave scars. So he… Continue
Added by Lee on September 21, 2009 at 4:44pm —
Since my last post I have regrown most of my hair, as you can see on my profile pic. There is only some missing above my ears and on the back of my neck. Even though I thought my dificult time was over, I had not really recovered emotionally yet.
The last few days have been quite stressful for me.. and one morning I woke with part of my upper left eyelashes missing. I'm not sure what this means. Will my hair fall out again? Will I lose my lashes? I've read many personal accounts… Continue
Added by Amber Lounder on September 21, 2009 at 12:29pm —
After having some of my worst days recently since I was cursed* with this condition where I don't think I could have felt any lower, I had my follow up visit to the NHS dermatologist this morning...
It was a different doctor from last time (which surprised me) and we went through the usual checklist of questions...
- family history (yes my mum had a small patch of hairloss almost 60 years ago that never reoccurred)
- stress factors in leading up to the initial hairloss… Continue
Added by Robert on September 21, 2009 at 8:30am —