Featured Blog Posts – August 2011 Archive (24)

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I'm just lucky, I guess!

Ok yesterday I was having issues with my hair system. (It is a glued on system that I have removed and glued back on every 4 weeks). Well, I had to go an extra week, and I was out of my touch up glue. I had to remove my hair system myself because it was going to come off if tried to sleep in it. My husband was in the restroom while I was dealing with this. Now you should know, I have been wearing this system for 8 months, and my husband had not seen me bald in awhile. He was so great it didn't… Continue

Added by Amber on August 31, 2011 at 9:30pm — 4 Comments

Not wanting to look at bald head

Hi Everyone:



I have noticed since I cut my hair to the scalp, I have avoided looking in the mirror to look at it closely. Except, when it is time to cut it again. I am so critical when looking at my scalp, I can see all my shiny spots and way the scalp looks sick. It caused me to feel depressed. I will say on the positive note, when I shaved my head on yesterday, it seems to be looking more even in texture. I lingered when looking in the mirror under the bathroom lights. I am not… Continue

Added by Ericka on August 31, 2011 at 11:02am — 2 Comments

To all the kids going off to school

I just want to wish all the kids with alopecia heading off to school this week the very best and to encourage them to be strong, successful, and just be themselves. I wish them a wonderful support system at their schools from the faculty to their fellow students. For some it will be their first year going back dealing with hair loss, for others it might be going back with a new wig. Let's keep our little sisters and brothers in our thoughts and prayers and encourage them in whatever way we can.

Added by Rodeli on August 28, 2011 at 7:00pm — 1 Comment

My nightmare

In 08' I received radiation for a brain tumor I had. As a result I ended up with End scarring alopecia. Before going to the Dermatologist i tried EVERYTHING. Biotoin....Naproxen.....pills.....massaging my scalp. Once he took a biopsy and told me there was nothing i could do to make my hair come back i was devastated. Have been ever since. Currently i'm on Anti- Depressants because of this. I've spent thousands of dollars in wigs and head scarves. I just don't feel like "me" anymore. I know my… Continue

Added by Jennybnkr on August 27, 2011 at 5:00pm — 4 Comments

My story

Hi,



I'm new to the site. About 18 months to 2 years ago I noticed that my eyebrows were receding and I developed bald spots on my head. After about 6 months of this my chest, arms and legs were also becoming decreasingly hairy. It took over a year for all the hair on my head to fall out and I have now lost pretty much all body hair, including eyelashes.



I don't know anybody else with alopecia and feel whenever I talk to other people, though they are generally supportive, I… Continue

Added by Tom on August 27, 2011 at 10:26am — 5 Comments

A nice surprise

As some people know I was really worried about my trip to the new university, well mostly because of my looks. I'm really glad that people accepted me and now I have a couple of friends with whom I share my interests.There was a couple of questions - "why did you cut your beautiful hair?", but they seem to understand and no one is bothered by my half bald head:D (p.s I really have to go shave) Still I was hoping to see someone with this illness, someone who could truly understand me, or just to… Continue

Added by Calipso on August 26, 2011 at 3:47am — 3 Comments

Not a good week

As I near my one year shaviversary my depression has come back. Normally I let my hair loss just roll off my back. For some reason this month I just can't. I'm mad, scared, pissed off, and generally uneasy this month.



Maybe because my boys birthday's were this month. My youngest turned 2 and my oldest turned 5 and started Kindergarten. I live for my boys and dont really have time for myself, but I have decided that it is time to go forward with having a wig made for me. I'm tired of… Continue

Added by Julia S on August 24, 2011 at 10:42am — 4 Comments

We are evolved

".. baldness relates to a super sensitivity of the hair roots to the hormone (DHT)..It’s a problem common.. to members of the primate family, and has been referred to anthropologically as a sign of “social maturity” that might have aided the human species evolutionarily."TPJ

Added by Colleen on August 23, 2011 at 7:30pm — 2 Comments

Another privacy tip: Change your profile URL

Dear Member,

In the past we have shared the following privacy tips with you via email as well as on Alopecia World's official blog:

* How to Keep Safe and Protect Your Privacy

http://www.alopeciaworld.com/profiles/blogs/keeping-safe-and-protecting

* How to Protect Your Email Address…

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Added by Alopecia World on August 23, 2011 at 5:00pm — No Comments

My story

Hi I’m Diane. I thought I would share my story with everyone. About 20 months ago, I was going through a rough time. I was exhausted all the time, had no energy & constantly fell asleep in the chair every time I sat down. On top of all that, I was also losing my hair really badly. Every time I got out of the bathtub after washing my hair, I would see a ton of hair floating on top of the water. I also had to clean a lot of hair off the bathroom sick on a daily basis. One day I went to my… Continue

Added by FANCY1024 on August 22, 2011 at 11:08pm — 2 Comments

Regrowth - questions on biotin and thickening shampoos

Hey All,



I haven't been on here for awhile but I had a couple of questions. I started doing more cortisone injections in February, while my hair is growing back I'm 99% sure it has nothing to do with those painful shots! The areas they focus on have had no reaction and I'll probably stop soon. I'm very happy to report that I have an inch missing directly above my left ear and a couple of spots remaining on the bottom right neck area. Thankfully both of those areas are easily covered… Continue

Added by Jennifer on August 19, 2011 at 4:41pm — 8 Comments

Going around again

So, I haven't posted on here for a long while. I suppose I've been busy doing other things.



For about 1 year now I've been seeing a Psychologist. It started last year with a referral for a completely different problem (not alopecia) from my GP. The actual problem I went to her about, we only discussed twice. Since then it has been about a range of things - most commonly coming up being my ex boyfriend, alopecia and the two things relating to eachother.



Just to be clear,… Continue

Added by Dominique on August 18, 2011 at 9:29pm — 2 Comments

Not only alopecia, but now skin cancer to boot!

So I went to the dermatologist for a skin check, by the way she didn't even mention anything about my alopecia to me probably because I told her that I stopped treatment but she didn't even seem interested in anything about it. I have had a little bubble type thing on the top of my head for probably about 6 months now, maybe a little longer. It has popped and come back a few times. I thought it was just maybe a wart or something..well it isn't. It is FRIGGIN skin cancer!!



So not only… Continue

Added by Julie G on August 16, 2011 at 3:54pm — 7 Comments

God gave me this for a reason

It sucks that I have alopecia but God has given this to me for some reason. I'm ready to turn this thing around and use it as a blessing to someone else. Can anyone tell me how I can plug in and help others who are going through this? I would really like to work with kids. I worked as a preschool teacher for years and then decided to get out of childcare because I thought I was done with kids after I had my second one. I then started selling insurance, you know..... trying to create my own… Continue

Added by Michelle on August 13, 2011 at 8:00pm — 5 Comments

Any new treatment?

Hi Everyone,



I am new to this site. Actually this is the first time blogging.

I have been dealing with alopecia areata for the last 20 years of my life on and off. I am 34 years of age. I was wondering if anyone knows of any new treatments that might work or any news of any in the near future?

I am currently just using a topical cortisone cream. I recently shaved my head because of hair loss almost 50%. I have tried in the past injections, acupuncture, and every home remedy… Continue

Added by BBD77 on August 11, 2011 at 1:30pm — 3 Comments

Update!

So I haven't written in a while, so I thought I would do a update. My vertigo is GONE, but the migraines still come and go. But I'm happy I'm back to work and going about my "normal" life again...



My Alopecia isn't quite sure what it wants to do. It was all growing in, then I had huge bald spots, then it all grew in, then I had more huge bald spots. So I have stuck with shaving it really low every 3-4 days, and using on-scalp bleach to become a blonde. It hides my bald spots really… Continue

Added by Tamara on August 11, 2011 at 8:00am — 4 Comments

My headscarf was mistaken for a hijab!

So, yesterday was my first day of wearing my headscarf out in public. I spent days agonizing over buying a nice purple scarf and a beautiful lace cap to wear underneath it. After feeling confident enough with the look, I went out and did some shopping and errands at the shopping centre.

A Muslim woman at the post office complimented me on my scarf and asked where I had purchased it. Which was really nice :)

Then when I went to the bakery, the woman who served me spoke to me in… Continue

Added by Dee on August 10, 2011 at 8:00pm — 3 Comments

Something I wrote when I was 22 and thought my world was coming to an end

Alopecia



I am 22 yo female, I am losing my identity as each day passes. This horrible condition Alopecia is an Auto Immune Disease that can be caused by stress and worrying or a significant event which has occurred.

At this current point of time I am not coping at all, I struggle with the day to day habits of making my hair look beautiful. Each day I worry that I will wake up from this nightmare with no hair. I feel ugly every morning I look in the mirror. I break down at times… Continue

Added by Natalie Martin on August 10, 2011 at 6:00am — 11 Comments

Balance

I have been thinking a lot about balance lately. As I look back on my life the things that seem to work the best and flow naturally were the areas that I found a balance.



When I concentrated on doing what was right for my body and indulged on occasion, it worked. When I tried to be too strict, I would white knuckle it for a few weeks and then fall off the “wagon”… Continue

Added by Cheryl, Co-founder on August 10, 2011 at 12:36am — 7 Comments

Ughh totally frustrated!

Hello Friends,



Sorry I have not been able to check in for a while..I have been busy with life trying to figure things out and make sense of things..So I am guessing I had a good run for about 3 months where my hair did not fall out and now it is back to its ugly self...My hair is starting to fall out again..Seems like it may either be in the same area or damn near close to that area. I now have 3 new small bald spots instead of just the one I had...I also now discovered that I have… Continue

Added by Trish on August 7, 2011 at 8:00pm — 9 Comments

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