August 2010 Blog Posts (107)

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NAAF research volunteer

So I registered for the NAAF reseach because I'm an identical twin and they called me today and are sending me a package in the mail to get my blood drawn and send back to them. My question is has anybody done this and where can I go to get the blood draw done for free because my insurance will not cover it, and all of the NAAF outposts are states away.

Added by Jeannie Terrel on August 24, 2010 at 5:36pm — 1 Comment

Tell them the truth or quit nursing school?

hi guys! ive never written on here before, but ive encountered a very sticky situation and i would really appreciate your advice. ive been losing my hair for like 2 years but I keep it very private. over the summer the loss got so bad that I shaved my head and got a wig, which I now wear daily. i started nursing school in this wig 2 days ago, thinking i would be able to keep this a secret. well today I found out that it will basically be impossible to keep it a secret because we will be doing… Continue

Added by Lauren on August 24, 2010 at 5:10pm — 18 Comments

This is Me

My name is Sara and I have alopecia. Alopecia is an autoimmune disease that attacks the hair follicles causing them to die and fall out. It can vary from small bald spots to total hair loss. Mine first appeared when I was ten years old. By the time I was thirteen, my hair had grown back and we saw no signs that the alopecia would flare up again. However, in September 2006, I found a quarter-sized bald spot. Alopecia had made another appearance. For months, hiding it was what consumed my life,… Continue

Added by Sara Wood on August 24, 2010 at 4:50pm — 7 Comments

Hats and Scarves Galore

I just got done with my weekly Target run during work today. I normally can't find cute hats that I love anywhere. Well today I scored a cute brown knit hat and an awesome long scarf I can use for my head one day and for around my neck another day. My mom also found one she liked for me and bought it, I think she is warming up to the idea of me shaving my head. My hubby shaved the lower half of my head last night for me, I couldn't stand the heat anymore. The rest will be gone on Sept. 4th. I… Continue

Added by Julia S on August 24, 2010 at 3:37pm — 1 Comment

No big deal - hair is just an accessory in life

So for years i dealt with my own hair loss - no big deal.



It went like this:



When I was 24 my hair came out in little round circles that my mom who is a hairdresser discovered - no big deal.



Over the next couple of years the circles would come and go - no big deal.



Then my eyelashes and eyebrows fell out - okay, still no big deal, I think.



Then all of the hair around my hairline fell out - the dermatologist told me this was called… Continue

Added by Sandi Walmsley on August 24, 2010 at 12:23pm — 2 Comments

Some days are better than others

I lost my hair twice the first time 10 years ago(45). It grew back about 2 years later dark and wavy, before it had been straight and blond. I really did not care, it was hair and I was happy to have it back. After a year of having my hair back it fell out again, then a year later I lost my eyelashes, I had the most beautiful eyelashes (I could not wear glasses they were so long). Then every hair on my body was gone,This was the change of life for me times 10. I am a polio survivor, asthmatic,… Continue

Added by Laurie Price on August 24, 2010 at 11:32am — 3 Comments

Why I won’t use Rogaine

I have female pattern hair loss. It is an unfortunate situation in which my hair follicles are sensitive to the androgen hormones in my body, and therefore these silly follicles wither over time. In the process, they take my head of hair from full and healthy to thin and diffused. The good news is that this hair withering is not a health issue. I am still very healthy. My endocrine system seems fine. My ovaries are pumping out the correct hormones to keep my reproductive system in functional… Continue

Added by Kate on August 23, 2010 at 11:18pm — No Comments

What am I to expect?

I was diagnosed a month ago with AA my Docter gave me no clue what to expect. I started with one large spot and now I have more smaller spots. My scalp gets red and itchy and usually in several days a bald spot shows up. Is this what happens to anyone else? Two weeks ago I had steriod shots in the large spot it itches all the time also. I have started looking to extensions and wigs in case it gets worse. But please if anyone could give me feed back. Thank-you

Added by Kimberly Duncan on August 23, 2010 at 9:17pm — 6 Comments

What's the difference between alopecia and alopecia areata?

ok im looking up stuff on alopecia and...whats the difference between alopecia and alopecia areata?? im confussed when i type it in i have the option between the two. whats the difference??????

Added by amy on August 23, 2010 at 3:46pm — 2 Comments

Going out in public bald for the first time!

So I shaved my head about two weeks ago and have been wearing a wig or hat at all times. I started to show some of my friends my bald head one at a time when I would see them. They have all been supportive and have asked questions about when it will grow back and why it fell out. My hair loss came on fast and some of them had no idea this was a problem. I educated them and I found that alot of them know someone that has AA. I have been trying to think of ways to slowly ease into being bald in… Continue

Added by Jeannie Terrel on August 23, 2010 at 3:30pm — 10 Comments

Don't know what to do

ok first I would like to say Im sorry if I sound "poor me". Most days Im ok and can adjust to alopecia. But some days like today I just cant figure out what to do. I found another bald spot. My hands are full of my own hair. It is on the front area of my head, along with the rest. Im almost completely bald up front but still have hair in the back. I have to say also that there appears to be some fuzz up front too. Right now as Im getting ready for the day, washing and brushing, Im almost ready… Continue

Added by Bald and Fabulous AKA Terri on August 23, 2010 at 12:55pm — 2 Comments

Thank You! :)

Hi, i've just recently joined this website since my mum reccomended it to me. I was recently told i had alopecia areata and i have lots of bald spots around my head and a big patch on the back of my head- luckily they aren't visible but i'm worried that they might grow bigger. I worry about anything and everything and i cry whenever i develop a new patch. When i looked at this website and saw the hundreds of other people who are experiencing the same as me and maybe worse i felt so much better!… Continue

Added by Gemma G on August 23, 2010 at 4:45am — 3 Comments

A stranger grabbed both arms

I know I haven't posted anything on here in a while but I just wanted to share this encounter with you all.



This past weekend my boyfriend and I drove to Tampa to go visit my mom. While there we also drove to Venice, FL to go see my boyfriend's grandparents, who he doesn't get to see very often and I had never met. They had taken us out to dinner at this place called The Italian Club. Members of the club prepare dinner every Friday night. While they have a small selection of dishes,… Continue

Added by Kristen Ridenhour on August 23, 2010 at 1:39am — 4 Comments

Perception change

Hey everyone! I had a wonderful day at the pool yesterday. I have noticed that ever since my hair started falling out 3 weeks ago I'm certaintly starting to appreciate the smaller things. A good laugh or even a relaxing night at the pool.



I went out and bought the vitamin biotin and the b complex's. We will see if it helps my hair and at the very least if it does not then I can say I might be a littler healthier..lol. Tomorrow morning I'm going down to the doctor and demand he gives… Continue

Added by Sarah Schripsema on August 22, 2010 at 3:43pm — 1 Comment

Gene fear in serious dating

What I am wondering is, how many uninformed non-alopecia people out there may harbor a secret doubt about this condition in regards to passing on genes...and skulk away from a Good Thing with alopecians (like the CHICKENS that they are...cluck, cluck!)?



No one else at all in my family has alopecia, and believe me, I have gone back to the 1800s in my research.



But.



After thinking about my dating years ago, I wonder now if some of the haired guys, due to their own… Continue

Added by Tallgirl on August 22, 2010 at 9:00am — 6 Comments

What about Rogaine?

useing rogaine for alopecia?? need feed back on this one please please

Added by amy on August 21, 2010 at 4:46pm — 3 Comments

New version of the website

Hello alopecians
I just launched the new version of the french website http://mon.alopecie.free.fr
some pages are in english

Added by Jérôme on August 21, 2010 at 7:11am — No Comments

Learn to love yourself

Dealing with Alopecia as you know is no easy task. It effects absolutely everything. You eat, sleep, breath alopecia. it can really get you down. But my solution is to learn to love yourself again. Think of all the good things about yourself. All the nice things that your family and friends say about you and take comfort from that.



I am bit more fortunate then some . Being afro caribbean i have a small patch in my hair which i have disguised by having natural hair so my small thick… Continue

Added by Black Care UK on August 20, 2010 at 4:30am — No Comments

Frustrated

So of course Im steal dealing with the hair loss growing but what makes it worse is that I wish my boyfriend would talk to me about it. How he is feeling or just would recognize my feelings on the matter and how hard it has been for me. I asked him why he doesnt talk about it and he said that it just isnt all the important or life threatening so there is no need to throw around emotions. Ugh!! Seriously...I'm starting to wonder how important it needs to be to talk about it. If I had somewhere… Continue

Added by Sarah Schripsema on August 20, 2010 at 3:07am — 3 Comments

How can I make a difference?

I'm finding myself on here after being away for quite some time-- I just can't seem to get any sleep. I've been awake for hours just thinking about how lost I am career-wise.



When I got married, my makeup artist obviously noticed 'something different' about me... and seemed absolutely fascinated with my condition (AU). I had never had this reaction before. She has several makeup apprentices, and mentioned I should do workshops on teaching those who have no hair/eyelashes/eyebrows to… Continue

Added by Laura Lee on August 20, 2010 at 12:57am — 2 Comments

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