July 2013 Blog Posts (42)

Maddie's story

Our local night news just featured Maddie Woytovich (you may know her from the Children's Alopecia Project), in a very positive and inspiring piece. They also mentioned the crowdsourcing effort that is going on in getting a children's book, inspired by her experience with alopecia [universalis], printed. If it's okay I'm going to put the link that that they mentioned in the piece here, so you can check out the book yourself.

For those of you who haven't seen Maddie talk about her…

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Added by Jayran on July 30, 2013 at 11:00pm — No Comments

Will my bald spots still show if i shave my head completely and go over it with a razor?

I'm Irish and pretty pale and I'm about to shave my head but i am curious to know if my spots will still show anyway. If so then what's the point? Aren't most of us trying to conceal it?
Need answers please.

Added by Connor013 on July 30, 2013 at 9:44pm — 6 Comments

Why am I losing so much hair?

Hello,

This is my first time posting on here. Hope I do it right. I'm stressing! Was diagnosed with Alopecia Aerota in May of this year. Then in June, my family doctor checked my thyroid. TSH level was .086. Was sent to an Endo and my TSH level was checked again in July and it came up to 1.18. Also, in April my gyno checked my thyroid and it was 2.04. My question is about my hair. It is coming out in handfuls!! How do I know if it is due to my Alopecia (possible diffused alopecia at…

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Added by kristy bettes on July 26, 2013 at 8:00pm — 3 Comments

Pushing the envelope

Its always scary to take a leap of faith and sometimes you will stumble and fall, but when you make the landing and find yourself in a different place than you were before, that makes it worthwhile!

Other people are going to amaze you and disappoint you equally. I have been bullied to my face and shown pity because people assume I have cancer just as much as I have been called beautiful and brave.

You never know how people are going to react to you so instead of depending on…

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Added by Diana Linde on July 25, 2013 at 8:30pm — 1 Comment

Gene cause found?

Autoimmune Research Breakthrough

The National Alopecia Areata Foundation (NAAF) applauds the National

Institutes of Health's (NIH) announcement that NIH

scientists and their colleagues have discovered that a gene called

BACH2 could likely play a significant part in the development of

autoimmune diseases. In a study of mice, researchers at the

National Cancer Institute (NCI) and the National Institute of

Arthritis and Musculoskeletal and Skin Diseases…

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Added by Tallgirl on July 25, 2013 at 11:56am — 7 Comments

RLT therapy or change in diet?

Hi! I was diagnosed with alopecia areata last september right before my son's (minor) surgery. The doctors said it was probably stress and that it would be "totally fine" after steroid injections... it wasn't fine. It spread to about the size of a ritz cracker, right on the crown of my head, then I got another one right next to it. They responded well to the treatments, but 2 more spots showed up, and again, I went to get steroid injections. They seem to work for me, which I honestly am…

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Added by maulis86 on July 25, 2013 at 12:36am — 27 Comments

Being a bald goddess at Comic-Con

A friend offered me a 4-day ticket to Comic-Con this year, so I decided to make a costume I've thought about doing ever since I lost my hair in 2008 - the bald and sexy "Ilia" from the 1979 Star Trek movie. She spent most of the movie in a skimpy costume and is the only bald leading lady I think Hollywood has ever featured. For those who haven't seen the movie, here's a nifty 10-minute version of the whole movie SPOILER ALERT...this gives it all away:…



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Added by Mary on July 23, 2013 at 5:00pm — 8 Comments

Swimming!

Well, I went swimming with my head under the water for the first time since I got AU almost four years ago! I had my wig on with the usual two pieces of tape, one at the forehead and one on the nape of my neck. I was on a backpacking trip and at one of the lakes I decided to give it a try. It stayed on just fine. I was able to brush my fingers through the wig while I was under the water to rinse it out a bit. I sat on the shore in the sun and after a bit the wig was dry and I just brushed it…

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Added by Brenda on July 22, 2013 at 10:56pm — 3 Comments

Had my hair tattoo done. Looks amazing

This company called scalp aesthetics changed my life. It looks like I have hair now. It was the most amazing thing that has ever happened to me. I have a hairline now and look like a new man

Added by John Thomas on July 22, 2013 at 9:42pm — 4 Comments

Wig help

Hi all,

I am wondering if anyone has any thoughts on wigs - synthetic vs. human hair? Although I have was diagnosed almost 5 years ago I have lost 95% of the hair on my head in the last 3 months. So I have had to dive into this part of things. I bought a synthetic wig and I wanted to make it look like "my hair" so I got a long one. In less than a month it was 'clumped' and I couldn't brush it. The place I bought it replaced it but within 2 weeks it started again and I had to have it…

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Added by Stephanie on July 22, 2013 at 3:43am — 7 Comments

Vacuum wigs. Are they any good?

Hi guys!
Was just wondering about vacuum wigs, i currently wear a regular human hair wig but it would be really great if I had something that allowed me not to feel so cautious of it falling off! Does anyone have good/bad experiences with vacuum wigs or just information on them that they could share?
Much appreciated :) x

Added by ☆Emily☆ on July 21, 2013 at 7:30pm — 6 Comments

Tattoo eyebrows

I'm getting more and more interested in tattooed eyebrows. I live in Northeast Ohio. Do anyone have any suggestions?

Added by Royce D Eggleston on July 21, 2013 at 5:30pm — 1 Comment

Friends

Am looking for people to just chat to about alopeica for me talking bout things makes it a bit easier to cope with. Anyone else agree?

Added by Gill on July 21, 2013 at 1:00pm — 1 Comment

Any other symptoms?

I have had AA for about 10 years. Like everyone else I went through the depression. Actually, I didn't worry about it until I started reading things online and then freaked out. Since then I have come to terms and realized since I have to have a disease I am very happy to have alopecia. However, this is not my reason for posting today.



I was curious to see if anyone else experiences any other symptoms of an autoimmune disease. Does anyone else find bruises on themselves and not know… Continue

Added by Kathyk on July 21, 2013 at 11:30am — 5 Comments

Feeling down

hello my hair has started falling out recently now i have a spot the size of an soft ball on the back of my head. i went to the doctor and he did test and everything was fine in my blood work. now hes sending me to a dermatologist. the doctor said i have alopecia. i am scared of what he will find out. the more it falls out the more depressed i get. now im being point and snickered at and my bandanas are being made fun of being called chef at work

Added by bobbi on July 21, 2013 at 10:30am — No Comments

Do they go together?



Hi I am just curious to those on tis site if any other members has Fibromyalgia as well as any form of alopecia?

I live with both conditions in severe forms.

I know some hair loss years ago was stress related but the facts on Fibro are a little anecdotal.

Hair loss made me lose a lot of self confidence and alo the rest at one point.

I have a loving close family but they cannot imagine the real me inside .

Should any reading this have FMS also or know anyone…

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Added by skit on July 21, 2013 at 6:02am — 8 Comments

Russianhair site ordering experience?

I am looking for the best quality custom wig. I have had many wigs and European works best for me. I have a Follea lifestyle which I had to have lined in silk because of so much inversion (hair coming back into cap). So I would not get another. Though it looks very natural.
Heard about russianhair.net and was hoping to get some current feedback! How long does wig last, density, or any other tips on ordering?
Thanks so much!!!!

Added by glowgirl on July 20, 2013 at 3:09pm — 2 Comments

Quick question

Hello, everyone! Really quick question ... I have full eyelashes on my left eye and zero eyelashes on my right eye. (Looks awkward) I wear false eyelashes on my right top lid which can get the job done, but have nothing for my bottom lid. Does anybody have any ideas so that my two eyes can be as even looking as possible? Thanks!

Kevin

Added by Kevin H on July 19, 2013 at 11:00pm — 1 Comment

It's been 3 months

Hi there,

I've been reading a bit on here and elsewhere and I was wondering if anyone has experienced as "much" Alopecia in such short time as me.

It all started in April, on the 19th, this year with a spot the size of a 1 Euro coin and it grew pretty fast. I discovered the spot on a friday and it doubled in size over the weekend. By the end of May it had grown so much that I could no longer cover it with my own hair, since the spot was right on top of my head.

I tired…

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Added by Ulli on July 19, 2013 at 9:30pm — No Comments

Aint life a b##ch!

I have read a few blogs of late, some of which have inspired me (a least to some degree anyway). So I thought I might share my story, and hope that in knowing there is one more just like you might be of comfort to someone out there.

I have AU, not uncommon amongst members of our elite group of streamlined beauties. But on the up side, my hair has started coming back. While I am pleased that it is returning, the patchy effect even after I have shaved looks some what worse than when I…

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Added by Gary on July 19, 2013 at 7:00am — 3 Comments

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