July 2012 Blog Posts (61)

New to alopecia

Hi everyone,



I just wanted to introduce myself here. I'm Jennifer and I recently developed alopecia areata a couple months ago. I joined this site because it looks like a great support group. I'm only 17, about to go into my senior year of high school. I'm most nervous about going back to school because I left school not having alopecia, but will be going back with now noticeable patches on the back and top of my head. I'm also on a dance team in the fall seasons, and am nervous…

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Added by Jennifer on July 22, 2012 at 10:30pm — 6 Comments

Daughters of alopecia mom

I have 3 daughters.

The 2 youngest ones, 8 and 3 were playing dress up and were role playing.

Of course as usual I like listening to them, while I do my "stuff' (you know, what mom does in a house)

And so imagine my surprise when my 8 year old dressed up as a queen and had my youngest one ceremoniously bow to her and call her 'Queen Alopecia"....Of course I was startled but I was also cracking up to hear my 3 years old call her like that.

Kids have different ways to…

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Added by jenx on July 22, 2012 at 5:00pm — 2 Comments

Theophylline reaction and alopecia

Sorry I hit enter too soon on the previous post. I am just popping in to mention the very relevant fact that Theophylline can cause alopecia, and probably caused mine when I took Cipro with it back in '94. Just putting that into words. Please comment if you think Theophylline could have caused alopecia in a case that you know of, be it yourself or someone else. This medication was given to me for asthma and it helped, but had such repercussions.

Added by Laura Adams on July 20, 2012 at 8:00pm — No Comments

Isn't it weird how when it happens to you it's everywhere

I saw a girl with alopecia yesterday, and a guy the other week on the bus (probably, you never know). Göteborg is pretty small in comparison so for me this was huge. Made my day!

And without my alopecia I wouldn't even have noticed. Or I might have noticed and wondered why they didn't have hair.

I'm just sorry if I stared at the guy on the bus I was so elated. But of course I didn't ask him, I didn't want to bother him, I should have instead of staring as if I was the the…

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Added by Marinetta on July 19, 2012 at 3:21am — 12 Comments

Alopecia areata and the African American woman

My journey with alopecia has definitely been long, hard, and lonely. As an African American female (which I am sure this may be true for other cultures) I have found it very hard to find a beautician who actually understands the considition of alopecia itself. I have been through my fair share of beauticians and most of them I have found do not understand the condition/disease itself. I have had numerous Africann American beauticians ask me how this happens, what am I doing to damage my…

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Added by Jasmine Harrell on July 18, 2012 at 9:00am — 1 Comment

Maile's treatment

My daughter Maile will be 3 this August and has had alopecia for the last year. She doesn't have much hair left and was wondering if anyone has tried the Divine Herbal Hair Oil??? I just ordered it and am very hopeful! Any feedback?? Will keep you all posted on her outcome.

Added by Kim on July 17, 2012 at 7:42pm — No Comments

Another UPDATE on Devin; 2 months later

His little head is covered with hair with the exception of the orginal bald spot he had. That area is still covered with the fine white baby hair. Other than that, he's been doing great.

Keep your head and always have hope=)

Added by Leenda on July 17, 2012 at 5:30pm — No Comments

Oversensitive?

Just this past Saturday I had gone for a nap as I was quite tired, my hubby stayed up to prepare dinner then decided to watch a movie.As I woke up came downstairs my husband was walking into the kitchen and this commercial came on about hair or lipstick whatever it was i stood just at the ramp of the stairs and watched as my husband came out of the kitchen stared with an onion in his hand.I continued coming downstairs and naturally I confronted him and said you must find this girl quite…

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Added by Lisa-Lynn Marini on July 16, 2012 at 4:00am — 13 Comments

Kanikalon? How is it?

I need wig. have heard about Kanikalon fiber, that it's much better and convenient than even human hair..

Found this store in The Internet: www.findwig.com - is anybody deal with this store??

they sell only kanikalon fiber wigs, at pics looks exact as human hair going to order this model…

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Added by Ulyana on July 14, 2012 at 4:30pm — 2 Comments

Hair

Why are men so obsessed with hair, I don't get it.... my hair doesn't defined me!!

Added by Toni on July 13, 2012 at 11:49pm — 1 Comment

Alopecia Awareness Day August 4th

I'm trying get a group together in Los Angeles CA and surronding areas, for a party or pinic and possiably do a walk. Please let me know if you are intrested message me

Added by Toni on July 13, 2012 at 4:36pm — No Comments

Change brings new/return anxiety

Hi Family:

I thought I would blog to get help with the anxiety. I do have a small amount of hair at the top in which I add false hair and wear it to the right (dominant side). I have been wearing that style along with the bald look out in the public for 1 year. I have truly gotten use to the double looks and stares. I have developed a level 1 anxiety for going into familiar places and a level 3 for new places. I decided last night to switch the false hair from the right to the left.…

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Added by Ericka on July 13, 2012 at 10:58am — No Comments

Ok I'm at work and I haven't been wearing my wigs

This ignorant jerk that comes in to get his haircut just asked on of the girls I work with why I shaved my head and she said I didnt and he said oh what does she have cancer and she responded no she has alopecia and it just fell out and he said sounds like cancer to me. When he left she told us what he had said and the other girls I work with almost got as pissed as I did like if I did have cancer that would be really rude and since I don't makes it even more rude what the hell is wrong with… Continue

Added by Sheena Tha Cody on July 12, 2012 at 2:23pm — 12 Comments

Alopecia areata and going natural

In an effort to be authentically me, I began a process of going natural with my hair about five years ago. This means that I no longer get my relaxed. Initially it was great because my alopecia was in remission (if that's a correct term). Now that my alopecia areata has reared its ugly head again, going natural isn't as carefree. Alot of the hairstyles make me self conscious or don't turn out right because I am missing a significant amount of hair in certain areas. I have dabbled in wigs,…

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Added by Jasmine Harrell on July 12, 2012 at 12:00am — 3 Comments

Finally AT again :D

We get a lot of blogs here with people overjoyed about regrowth, or upset because of more hair loss, so this might seem a little backwards. Bear with me.

I've had alopecia pretty much forever, but I've been growing random patches for the last five years or so. Of course this made me happy at first, but after a year without full growth and having to shave to keep wearing my wig, it was just an annoyance. I've become slightly jealous of people with totally smooth heads.

Not…

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Added by Georgia Gardner on July 11, 2012 at 10:06pm — 2 Comments

Re-growth after sunburn/sun exposure

Hello,

Just wondering if anyone else has noticed re-growth after sun exposure or sun burn?

I am bald so my scalp tends to get a lot of sun exposure and burnt from time to time. When it does get burned I notice more re-growth although the hair is lacking pigment it does grow back. The re-growth does not last long though.

When I first noticed this I increased my vitamin D intake but it had no impact on the re-growth.

I have noticed during this hole fight with…

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Added by Chris on July 11, 2012 at 1:30pm — 2 Comments

I am going for my routine six week injections today : (

I am going for injections today.......:(

Added by You can do it : ) on July 11, 2012 at 7:09am — 4 Comments

Alopecia and silicone breast implants

Hello,

I read several posts about Alopecia related to Breast Implants and I think that my story is relevant on this subject:

When I was 29 I decided to get silicone breast implants and everything went very well with the operation and esthetic results. However, one week after the operation, I noticed a bald patch on the side of my head. I had always had long and nice hair until then and never once experienced alopecia before. I asked the surgeon who performed the operation if it…

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Added by Florence on July 11, 2012 at 7:00am — 4 Comments

What treatments?

Hi all, I was wondering what type of treatments, if any you guys have tried. I have only had thesteroid injections to no avail. What else is out there that you've tried?

Added by Marieca on July 10, 2012 at 2:30am — 6 Comments

New to this site and new to alopecia

As luck would have it my mother owns a beauty supply that specializes in wigs and hairgoods in Orlando, FL. Ever since I can remember I have been around hair salons, beauty supplies and hair goods.

I have seen many cases of hair loss among men and women. So when I saw a bald spot in the back of my scalp 2 weeks ago, I knew exactly what it was. I was bewildered to the why I had alopecia areata suddenly, since I am in my 50's and have no family history of it. However as far as my immune…

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Added by Sandy on July 9, 2012 at 11:00pm — 6 Comments

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