July 2012 Blog Posts (62)

My journey

I would say, I joined this site to feel as if I were not the only one with this. My story started last year September. One lonely little patch my barber pointed out to me. I thought nothing of it and blamed him for the ordeal. It grew over time and started spreading. How depressed I felt, having to wear a hat everyday. Waste of time going to the doctor spent money to no avail. That point in my life I found was very stressful, mostly financial.

I said to myself just wait it out, my…

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Added by Chris on July 31, 2012 at 6:30pm — 1 Comment

Finally met my Mr. Right!

You know all of my posts and questions about the dating world and what to do with my wig and how do I tell him and how getting rejected really hurts....well, all of the time that I waited to find the right man has paid off.

I met Tom online and on my dating profile I listed about my alopecia because I wasn't going to hide anything. Right off the bat he was very accepting and supportive. He has been so wonderful! We have been dating just over a month and he has seen me with my wig and…

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Added by Julie G on July 31, 2012 at 5:57pm — 7 Comments

Is it just a coincidence?

My dad and I both had full heads of hair until I was 13. We both started getting bald patches the same year. Mine appeared a couple months after his. Every year I would get the steroid injections and my hair would come back (until my senior year in high school). Every year my hair would stay put until fall/winter and then it would start falling out again in small patches. I would just like to hear some opinions. Do you think it's just a coincidence or is it possible that my dad and I carry a… Continue

Added by Ashley on July 31, 2012 at 4:00am — 2 Comments

My memoir "Split Ends"

It was a Tuesday. I was 15 years old, and like every Tuesday, I would go to the doctor, receive my treatment, and then go home. On that particular Tuesday, however, something different occurred. I didn’t follow my normal routine. It was a strange day for me. I had that routine memorized like the back of my hand, but that Tuesday was the day it all changed.

I sat in the waiting room of the doctor’s office. I had always hated the plain gray walls that began to blur when you stared at…

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Added by Megan Adair on July 29, 2012 at 9:38pm — 13 Comments

We want to share your story!

Hello! My sister Cait and I both have alopecia and in February 2011 started the This Is Me Campaign!! We have grown tremendously in the past 18 months and now have a scholarship foundation in honor of 2 of our best friends we lost last year. We give scholarships to those who face adversity, or have helped others over come adversity, as all of you have!!!

We just launched our new facebook page (…

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Added by This Is Me Foundation on July 29, 2012 at 2:53pm — No Comments

I hate it, I hate it, I hate it

I hate how much it costs to look normal.

I can't go wigless, I have a combo of Trichotillomania and AA, I have HUGE patchy bald spots mostly on the top of my scalp, I'm pale white with black hair, so even when I shave my head completely down to the skin they show up, black patchy spots everywhere, and when I go out in public people look at me like I'm a leper, even go as far as to avoid standing close to me or taking the long way to walk around to avoid me.

Wigs, they are so damn…

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Added by Kayla on July 29, 2012 at 2:30pm — 9 Comments

Feeling a bout of depression come on

I thought I was doing ok with my great bonded on hair system and all, but the last couple of days I have been feeling worse and worse. I went to this nail place to fix a wonky nail that is probably caused by alopecia in some way for all I know, and while I was there they told me that they could fix my uneven eyelashes with their individual lash extensions, and I was so excited. I have one eye with full, long thick lashes and another one that is extremely sparse. I don't know why they took my…

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Added by Dominique Cleopatra on July 29, 2012 at 4:00am — 8 Comments

Dealing with alopecia and getting my first wig

Hi everyone..

I am new here, just wanted to share my story. I have had alopecia since October 2011. My hairdresser found a spot the size of a 5 cent piece. I started seeing a dermatologist and a trichologist. I too have been having monthly injections, however it was just getting worse. I was hopefull it would only be a few spots. I have cried heaps, kept it to myself with only a couple of friends knowing.

I would style my hair to cover the patches to the point I was combing my…

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Added by Blue tulip on July 29, 2012 at 3:07am — 4 Comments

And now that you have seen a bald woman, what do you think?!

So the other day a man looked at me totally speechless. Then finally he pointed toward his hair and said, I have never really “seen” that in real life before. I decided not to put him on the spot and respond with “…And now that you have, what do you think?!”…

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Added by Cheryl, Co-founder on July 27, 2012 at 10:00pm — 4 Comments

Someone talk to me

Someone talk to me i'm a little bored pleaseeeeeeeee :-(

Added by Donna on July 27, 2012 at 2:25pm — 3 Comments

First time alopecia blogger... Just want to share my story

My father and I both were diagnosed with alopecia when I was 13 years old. He found a small spot on his face and chalked it up to shaving too close. Then he got another on his face and one on his head and it just spread from there. Within 3 months, I found a small bald patch on the back of my head. My mother somehow managed to get us both to Dr. Vera Price in San Francisco where both my dad and I underwent our first steroid injection treatment. My dad got injections in his eyebrows whereas I… Continue

Added by Ashley on July 27, 2012 at 5:58am — 11 Comments

Understanding each other on AW

I read this online today in preparing Olympic watchers for travel in England (Google this headline if the link doesn't pop up here):

The nation explained for visitors to the Olympic Games

Each 212-word section covered things like accents, trains, pub rounds, etc. But the parts about bad puns, even in serious newspapers, or self-deprecating humor as part of the national culture brought to mind some…

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Added by Tallgirl on July 26, 2012 at 11:00pm — 17 Comments

Hair loss in Pittsburgh, PA

Hi everyone.
I was wondering if anyone on the site is from Pittsburgh, Pa and knows of any good wig salons to go to. I thought that my hair was going to come back but it appears to be getting worse again and I going to have to resort to wearing hair again.
So,if anyone if from Pittsburgh, Pa,please let me know of any salon recommendations, that would be great.
Thanks and take good care,
Jill

Added by Jill Casaldi on July 26, 2012 at 7:00pm — No Comments

Interesting experience today

In my circles a wig is worn when marriage occurs, until then it is not considered the norm (This explains why they were talking about a wig during the wedding/marriage)

I work for my mom in a special education preschool in the summer. My mom told me one of the teachers who is about 3 years older then me uses the fill in powder I use in my hair (I dont know if she knows I know that she uses it, most people don't know she uses it ). I have been debating on/trying to get the courarge to…

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Added by You can do it : ) on July 24, 2012 at 11:01pm — 2 Comments

Just want to be normal

Depression is settling in once again...

I've never wondered "Why Me?" Until now.

I don't know why, but this condition is bothering me more than ever before. I've dealt with it since I was born. I'm 18 now and still nothing has change. I have 2 younger sisters, they both have a full head of hair, everyone in my family does. So some thinking has gotten me to the point to ask "Why me?"

I know I shouldn't be all sad about this because there are other people out there probably…

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Added by Julie on July 24, 2012 at 5:30pm — 7 Comments

Giving up on treatment

I've had AA pretty much my entire life. When I was little I had a patches of hair that just never grew. That went into remission for a few years then came back when I was in high school. I've been doing scalp injections for the last decade probably. It keeps the AA in check, but I never have had full re-growth. My AA has always been pretty easy to cover up, until the last six months when I developed a patch towards the top of my head. My hair is noticably thinner (to me anyway) and I'm…

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Added by AshleyK on July 24, 2012 at 1:00pm — 4 Comments

My parental struggle to accept my son's AU

My son has only been recently diagnosed with AU. It was quick too. in a few months he was completely hairless.

I know he is healthy and i thank god he is, but it breaks my heart knowing he is different, and he knows he's different. And after being upset about that i feel guilty that i should embrace his bald headed cuteness! I am not ashamed of him in any sense of the meaning i just fear for him, growing up in a smaller town, people are cruel and ignorant. I am mad at the world for…

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Added by Jordan's Mom on July 24, 2012 at 12:00pm — 25 Comments

"I'm gonna miss this place"

This past weekend, I attended the NAAF Conference in Washington, DC. It was my first conference as an ‘adult.’ I have been to about 10 other conferences since 1994, but I was always in the kids’ camp. I loved every minute of that camp: I met a ton of people and was able to hang out with all of the friends I have made over the years. This year was different, though. I was able to go to meetings and talk about how having alopecia affects me. That was a rude awakening in itself. It was so nice…

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Added by Alex on July 23, 2012 at 6:30pm — 25 Comments

Still don't know how to handle work

So I just got a new job a few weeks ago and a probable diagnosis from my doctor (waiting to see my dermatologist) but all the tests so far support her conclusions.

Still this is very new to me and my hair gets worse every day. I will probably not wear a wig around family or friends but I've been fitted for one just in case I feel I need it.

The issue is now how do I tell people/boss at work, do I tell them. I don't want them to jump to conlusions about my health but I also feel…

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Added by Marinetta on July 23, 2012 at 8:00am — 11 Comments

Visit to the hairdresser

After 3 years of cutting my own hair because I was embarrassed by my hairloss I finally went to get my hair cut by a professional. Since my hair started falling out I have been too ashamed to sit in front of a mirror and have someone else touch my hair...all those people starting and judging me. Last week I decided that I was probably being paranoid and that I should just get over my fears and go...so I did. The result is great! My hair looks so much thicker in my new bob style. It was still…

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Added by LN_DARK on July 23, 2012 at 6:00am — 3 Comments

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