July 2011 Blog Posts (96)

Depo Jag

Well as you all may know i posted blogs while back with almost full head of regrowth and was so happy but couple of months back i noticed more hair in the shower again, my hair was probably 2inches long too. I have been on the depo contraceptive jag now since last october but only just read the side effects and one standing out was HAIR LOSS i was gutted as now im not sure if its the jag that could have caused it or it would have happened anyway, has anyone else ever heard of any contraceptive… Continue

Added by lynne on July 29, 2011 at 5:29pm — 2 Comments

Track from my band...

FYI - I've added a track from my band to my profile page under "My Music". This is what I do since Alopecia stopped running my life. :-)

(I'm the vocalist. My bf is on bass, guitar, and percussion. The sax player is freakin' mazing!)

Added by Marie on July 29, 2011 at 12:00pm — 9 Comments

I was wondering...

So lately I ve had some white hair growing on my head its a slow process but it's there. I was just seeing if anyone had any major results after seeing that grow, I dont want to excite myself??????

Added by Debbie on July 29, 2011 at 9:23am — 5 Comments

Society defines people by their hair?

Just like being thin, society puts too much emphasis on hair and hairstyles, especially the younger you are. As you age, it is considered natural to begin losing hair (just strictly from Androgenic Alopecia let alone other forms). Nevertheless, hair is way overrated. Unfortunately, Hollywood and advertising has effectively set the societal norm that having hair is what defines beauty, youth and/or masculinity. This is not true. The reality is, having hair or not makes no difference whether on… Continue

Added by Brian on July 29, 2011 at 4:17am — 4 Comments

The trials and tribulations of an alopecian

Ok.... so when I first started to accept that I was losing my hair and it was not going to come back, I thought, well at least wearing wigs and scarves will be easier to maintain. Boy was I wrong!!! I thought that I could just slap on any kind of wig and go. There is human hair, synthetic hair, straight, curly, short, long, lace front, mono top, vacuum, priced from $40.00 to $5000.00. Good Lord! At least with my hair I could put it in a ponytail or bun, where it down, straight or curly, it was… Continue

Added by Michelle on July 28, 2011 at 7:30pm — 12 Comments

Ha-ha hair

Now my hair has been growing, yes I was kind of happy, but not for long...It's falling out again, I know everyone had this kind of thing happen to them, but for me it's the first. It always grew back and stayed for years, but not now...

I'm a bit lost on how I am supposed to feel. I used to be optimistic but I guess alopecia tends to wear out a lot of optimism...

Now I'm thinking if I should just shave it off again or wait a bit. I'm sooo frustrated and tired of looking like this,… Continue

Added by Calipso on July 28, 2011 at 6:00am — 14 Comments

Looking for "Shawn?" from England (Disney World)

Recently I went to Disney World and while waiting in line at a water ride at Typhoon Lagoon I turned around and saw a woman my age who I could tell was an alopecian sister. I debated asking her, but finally got the nerve to ask her (I hate when people ask me so I wanted to be sensitive and told her I thought we might have the same condition). At first she seemed taken back when I first asked her, but when she realized we had the same condition we got talking and talked and talked until we made… Continue

Added by Rodeli on July 27, 2011 at 11:55pm — 3 Comments

Desiderata

Go placidly amid the noise and haste, and remember what peace there may be in silence.



As far as possible, without surrender, be on good terms with all persons. Speak your truth quietly and clearly; and listen to others, even to the dull and the ignorant, they too have their story. Avoid loud and aggressive persons, they are vexations to the spirit.



If you compare yourself with others, you may become vain and bitter; for always there will be greater and lesser persons than… Continue

Added by Tallgirl on July 27, 2011 at 10:32pm — 9 Comments

hair extensions

hi i really need some help i am 19 and have had alopecia for the past 8-9 months. It started with on patch which grew back but now have 5-6 really big ones and it is making me feel very down. I have been looking into the specialist hair extensions you can get just to cover it up so i feel a bit better about it but not sure if they will make it worse or not have tried looking on the internet but cant seem to find the information i need. It would really help me if anyone has tried them or knows… Continue

Added by boo. on July 27, 2011 at 6:33am — 2 Comments

How it all began?

As maybe you have seen on my profile it all started when I was 11, starting what we call in Mexico Junior High School or Middle School I guess.. so I was having this Instruction course before classes, you know, to meet other students and see how it all works at this new level. So it was kind of harder for me because I studied for 6 years in the same school and I loved it, I didn't even want to accept that I was growing up, you see when you start puberty you're only caring about how your face… Continue

Added by Gabby on July 27, 2011 at 4:30am — 3 Comments

Insensitive comments

I have been wearing the bald head for about 1 month. It still takes a lot of courage to face the looks every day. 7 out of 10 comments from people are they like the way I look or the way my hair is cut. The other times I have received comments said is jokingly fashion "You need to change your shampoo", or"Who scalped you?". I am trying to become not so "thinned skinned" about the comments. It is hard. I normally reply quickly with "you must be jealous" or "you have jokes today". I can imagine… Continue

Added by Ericka on July 26, 2011 at 8:35pm — 7 Comments

Feeling beautiful :))

Today I was amazed when I went to my psychologist for the first time and we spoke and I told her of my alopecia, it was sooo nice that she knew what it was and she just looked at me and said, why are you covering your beauty? I love your hair peice but you are soo pretty i'm sure you'd look stunning if you had no hair, you know what? my heart just melted i've never had anyone tell me this before and this woman I just only met. I for the first time left and felt soo wonderful about myself and… Continue

Added by Lisa-Lynn Marini on July 26, 2011 at 7:50pm — 3 Comments

Longing for a cure - Defeated by alopecia

It is amazing how many emails and messages I get about other organizations dealing with alopecia. My canned response has always been, "We are stronger together then we are apart." I mean this, I am not just saying it to be politically correct. When I founded CAP I did so because I wanted more for my daughter then what was out there. The oldest and largest is NAAF and was the only thing I could fine in 2003. They had the annual conference but that was all until they incorporated Charlie's… Continue

Added by Children's Alopecia Project on July 26, 2011 at 6:00pm — 4 Comments

Interesting experience

I was in Florida for vacation with family this past weekend. We rented a condo by the beach. We decided on Saturday to have a shrimp boil. We had to go grocery shopping for everything to make it. My Mom and Aunt were going to the store to get everything. At first, they were just going to go by themselves. I wanted to make a dessert so then they decided to have me go along also.



We went to the register to check out. We had bought a 24 pack of water, and the employee asked us to hold… Continue

Added by Alliegator on July 26, 2011 at 10:30am — 9 Comments

Can we really alter genetics?

A well-known gal on TV, who is known for her great looks and famous family (mostly names starting with K) just found out she has psoriasis. Here's what was said about it in a news story:



It’s largely believed to be genetic and related to the immune system.



“I’ve heard of it before, because my mom has always had it. She didn’t have red flaky dots all over,” K said.



A type of white blood cell called a T cell fights off infections in the body. T cells attack…
Continue

Added by Tallgirl on July 25, 2011 at 5:30pm — 1 Comment

Venting

So only three months ago I had a small patch, the size of a quarter missing from the back of my head. I was undergoing extreme emotional stress at work and when I went to the doctor, she expressed her concerns that this stress has triggered my hair loss and that I have Alopecia areata. A few weeks go by and more and more hair starts falling out. I finally get an appointment with the dermatologist and by this time the patch size has tripled and expanded to other parts of my head. I have started… Continue

Added by Missyannemissy on July 24, 2011 at 6:00pm — 8 Comments

Advocacy vs. Acceptance: Why the Two ARE NOT Mutually Exclusive

If you know me, then you knew it was just a matter of time before I put my $0.02 cents in on this subject.



I have been on various alopecia support websites and communities from the beginning. I have blogged, discussed, emailed, phoned, written about, given speeches to, and chatted with thousands of people over the 29 years that alopecia has been in my life. Not once during that time have I sugar-coated what I thought of alopecia, how I felt about my looks, or my level of acceptance… Continue

Added by kastababy on July 24, 2011 at 1:09pm — 4 Comments

Have a little compassion

I have heard from people with Alopecia that we need to be strong. Stop being so weak minded and move on. It may be easier for those who have had to deal with this condition for most or all of their lives. Of course they have adjusted and moved on. For some, Alopecia is all they know. Let's have a little compassion for those that have went their whole lives with a full head of hair and then lost it within a few short months. In my eyes there is no comparison. I consider myself to be an extremely… Continue

Added by Michelle on July 23, 2011 at 9:00pm — 18 Comments

"Teach Your Children Well; An Alopecian In The World, Still

I went on vacation. I was lucky. My Aunt put together a family reunion cruise. A cruise to Bermuda. A 5-day cruise. I roomed with my twin sister, which is an extra bonus - sister time together.



This was my first cruise. We boarded and went through customs, and met up in the dining room for lunch. It was served buffet style. I've never seen so much food in my life. I was sitting at the table as all of the family met up.



A table next to us, a large family with about 4… Continue

Added by Lili Añel (aka Eulalia) on July 23, 2011 at 3:33pm — 2 Comments

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