June 2008 Blog Posts (77)

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Dating Whilst bald, part two............... AND A NEW UPDATE....

Well i went on a date with a bald guy called scott and i have to say after my experience with Adam i was very aprehensive, but i have to say this was a really nice evening, he didnt have a problem being with a bald girl and it was a great night.

we laughed all evening and after my male friends Rupert and Pete coming over a mistaking him for a previous date (Nigel), he took it with great humour...................

Scott himself is bald (shaved), tall and looks like a strongman so as you… Continue

Added by claire on June 21, 2008 at 7:30am — 5 Comments

My new hair! Got my 1st wig today! :)

Wow...what a difference a bit of synthetic hair can do! I feel pretty again! Let me know what you think. The color matches my hair so close that seeing the 2 together, I couldn't tell where my hair started and the wig began. I'm going to have to get used to the bangs, but I do think they look pretty cute. I didn't shave my head today...the lady at the shop was too scared to do it. She really wanted me to think about it. While I understand what she was saying, I am still gonna shave it off this… Continue

Added by Mandy on June 20, 2008 at 4:56pm — 5 Comments

Question about working with kids

As I said in my previous blog, I am teaching gymnastics to kids this summer. It is kind of like a camp and there are mixture of different kids every week, some come back for more than one week. The kids are mostly between the ages of 7 and 10. I've gotten some questions about my hair, if I'm really bald, or if it will come back. I have no problem answering the kids questions when they ask. I tell them basically what alopecia is and that there is no certainty that I'll every have hair again.… Continue

Added by Kristen Ridenhour on June 20, 2008 at 4:48pm — 7 Comments

a little about me and why i try to help!!!

My name is Jessi Trenholm. I'm a 18 year old female who has been through a lot for only being 18....here's the story of my life:



When i was 10 my parents got divorced. My mother and sister and I moved in with my mothers boyfriend. He didn't like my attitude so he used to hit me alot (everytime i got smart or did something wrong.) I Lived with my mother and him up until i was 14. I was put in the hospital for my first suicide attempt at age 14. About a month after i got out the abuse… Continue

Added by Jessi on June 20, 2008 at 4:00pm — 2 Comments

Attitude & Learning

** I have to remind myself of this daily**







There once was a woman who woke up one morning,

looked in the mirror,

and noticed she had only three hairs on her head.

'Well,' she said, 'I think I'll braid my hair today.'



So she did and she had a wonderful day.



The next day she woke up,

looked in the mirror

and saw that she had only two hairs on her head.



'H-M-M,' she said,



'I think I'll part my hair down the… Continue

Added by Billie on June 20, 2008 at 3:24pm — 5 Comments

Question about Vacuum Wigs

Hi, I was thinking of getting a vacuum wig. I heard they fit secure and cannot be pulled off. Well that's what I hear anyway. I work at at special needs school, I work with 7th-8th grade children with severe behavioral problems, some with mental illness as well. My job can get pretty rough and physical and I was trying to find a wig that could not be pulled off or come off during a crisis. They love to go for the hair. Do you think that type of wig would hold up or is there something else out… Continue

Added by Denise on June 20, 2008 at 10:30am — 5 Comments

''''How should I be teaching my daughter then!!!!!''''

It has been over a year since my daughter has been diagnosed with Alopecia. Thinking back, I remember the sleepless nights, the crying, the refusing to eat anythiny and the asking of, 'Why is this happening to her and me.' I held these feelings for my her for many months after she was diagnosed and literally over night, I just suddenly changed.



I don't know what made me think like this but for some reason, I began to approached her alopecia in a different way and have been critized… Continue

Added by Karen on June 20, 2008 at 2:50am — 6 Comments

$70 a week care allowance for aussie alopecia sufferers.

I just had a txt from matthew (founder of princess charlotte alopecia foundation) and he told me one of the men who attended our ball from the government read a speech in parliament yesterday. He said that alopecia suffers are going to receive a $70 allowance per week to help out with wigs etc.



I have looked online but haven't seen any news about it yet. But for you aussies I would look out for some info and get in to contact with someone about it.





Hope nz follows… Continue

Added by Fitzy on June 19, 2008 at 9:36pm — 4 Comments

Calling all Fantasy Football Players!!!

You asked for it, and we delivered!!! Depending on response I may or may not create a second league for additional players, so please read and respond to this message in its entirety!!!



Okay everyone, for those of you who are interested, I have set up my fantasy league on Yahoo! Sports. This year's name is the Alopecian Atom Bombs (says she with a chuckle). If you want to join this league, please email me at sxyscorpio901@yahoo.com so that I can send you the invite. Please do so… Continue

Added by kastababy on June 19, 2008 at 8:31pm — No Comments

Patience

Week 2 since I shaved. Life goes on. What was once considered change is now the accepted norm. Yet, the thought still lingers…how much longer will this continue? The German philosopher Friedrich Nietzsche once penned "If we have our own why of life, we can bear almost any how." The ‘how’ is self evident…my ‘why’ is my two teenage children.



Good times or bad, I need be a positive role model for my children. I dare not wax impatient for fear of the unintentional lesson provided.… Continue

Added by Tony on June 19, 2008 at 12:05pm — 2 Comments

Going out whilst bald

Well last week i went with my friends into Birmingham town centre minus my headscarf and we had a great night, everybody in the pub was staring at me as obviously you dont see a bald girl often but i let it go over my head and thought i will be bald and proud and thats what i did, i think that night helped me realise that i am still the same person just minus my hair and ive excepted that now..

Like everyone with alopecia i have my up days and down ones but being around people who care and… Continue

Added by claire on June 18, 2008 at 3:20pm — 6 Comments

Dating Whilst Bald part one ....

Well i have to say ive had some shocking experiences over the last few weeks whilst dating and i feel its only fair that i share them with you.



Well two weeks ago i went to a alopecia uk meeting at a local pub and met a man who was there with his friend and noticed that we were a group for hairloss so he came over and we began chatting (he had alopecia totalis), and i gave him my number and we agreed to speak later.

Over the next week e chatted on the phone for hours and agreed… Continue

Added by claire on June 18, 2008 at 2:00pm — 5 Comments

This is starting to get really real...and it's scary

I know we all have good days and bad days. Well this is one of my first real bad days. I've been able to stay very positive through this process but I think that was just because I could still hide by pulling my hair into a ponytail. This morning I was like 45 mins late to work all because I was having such a hard time getting my hair to cover my spots. I still succeeded, I suppose, but if anyone were to really look at my head they would see that one worst spot appearing through very thin.… Continue

Added by Mandy on June 18, 2008 at 1:59pm — 12 Comments

Expectations of a NAAF conference newbie

In just over a day from now, I will be attending NAAF's annual conference for the very first time in my life. Of course, I owe this honor to my fiancée and co-founder of Alopecia World, Cheryl Carvery, who has been living with alopecia areata for nearly 20 years. Since it is my pleasure to support Cheryl, and given my involvement with Alopecia World, I am excited to have the opportunity to attend this year's conference. However, this means that I am going to miss seeing my middle daughter's…

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Added by rj, Co-founder on June 18, 2008 at 1:00am — 9 Comments

"You're taking this so well..."

I can’t count the amount of times I’ve heard those words. It seems like daily I have to explain to someone about the disease, which really isn’t that big of a deal as I pretty much have the whole explanation down. But I have had a wide variety of responses, some of which have been surprising including making a grown man who is the husband of one of my elementary teachers break down into tears.



The one response I keep getting though regardless of whether the person reacts in a… Continue

Added by Drew on June 17, 2008 at 10:35pm — 5 Comments

24 hours left before I leave Sweden.

Hi all.

I wanna wish everyone whos going to Louisville a safe and nice journey.

See you there.

Roger.

Added by Roger on June 17, 2008 at 6:18am — 1 Comment

Overcoming the bald fetish problem

Some time ago I started a group in Alopecia World called "Men Who Don't Mind." Presently, this group is discussing the problem of bald fetish and how Men Who Don't Mind can avoid treating or making an alopecian woman feel like one. Please join the discussion and help us think through this important issue.

Added by rj, Co-founder on June 16, 2008 at 3:00pm — No Comments

In honor of Father's Day

Father's Day is a very bittersweet day for me. Since I've lost my own beloved father 6 1/2 years ago, I tend not to celebrate this day like I used to. However, since my own brother has become a father, I can't help but feel pride and joy over how he has become so much like our father in raising his son. I can only hope that my nephew will grow to be as wonderful and loving a father to his own children as my father was to my brother and me.



In honor of Father's Day, I wanted to repost… Continue

Added by kastababy on June 15, 2008 at 11:30am — 2 Comments

1000 miles in 3 days -- Say WHAT?!?!

Okay, so as everyone knows, I was in a wreck and got arrested 3 months ago because unbeknownst to me my drivers license had been suspended because I didn't notify the state of Georgia in writing that my insurance had changed. Well, it took 3 months, lots of bus rides and carpooling, and $3, 192 dollars, but I finally got my license reinstated and my tags renewed -- but what an adventure it was!



I drove from Memphis to Nashville, and picked up my best friend Maurice, who was the… Continue

Added by kastababy on June 14, 2008 at 11:30pm — 2 Comments

Thanks to all the replies on my last blog

Great responses from all really. I just wanted to clear up that even more stunning (to me at least) was the fact that we both are AU. I wonder if she was just passing through?
XOXO
GIA

Added by Carmella on June 14, 2008 at 10:50am — No Comments

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