Hello my name is Karrie, My boyfriends daughter is 11. She first had bouts with Alopecia at the age of 5. Last October she began losing her hair and lost it all by Christmas. We were all devastated. In the past she would only lose a patch here and there which could be covered by her beautiful long hair. We were forced to get her a flash, and then a full wig. We went with a European wig with real hair that cost us $1600. It was a custom wig, but when we went to pick it up it was too big!!…

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This is the first time I write something down on my Blog.

First of all I will introduce myself.

My name is Karlijn I am 15 years old.

I am from the Netherlands so my English isnt that well

This year I am doing my exams and with the lots of stress that it brings me all my hair felt out this year again..

When I was 6 years old my Mom found a little spot on my head where I didn't had hair. So we went to a dokter and he told me I had Alopecia

They didn't know the…

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Firstly I'd like to congratulate you on this wonderful site. In the past people have mentioned your site to me. I haven't had a lot of time on my hands but I've wanted to have a good look round your site, I have a spare hour this afternoon so I'm going to do that now.

I have had so much incredible support from people. Lots of people have poured out their hearts to me,explaining that Alopecia has taken a hold of not just their hair but their 'whole being' but seeing me perform with no…

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Its JUST hair. We have all heard this. My personal opinion is YES. It IS just hair. It is not needed for daily life. It serves no purpose other than esthetics. Im talking about the hair on our heads. As someone with alopecia unversalis, I do miss having natural hair protection for my eyes and nose. I also know that after 29 years of alopecia with the loss, regrowth, loss, regrowth never ending cycle; I am much more content not having hair. The lessening of the stress is overwhelming.…

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Today was the day. I decided to go out without any covering on my head. I stepped out my home with my head held high, got into my car and drove to a department store. I sat in the car a little while and got up the nerve to get out and go in. What a relief! No one gasped or took a double take. Everyone I encountered were very pleasant and cordial. Well, I passed that test. My next test was to pick up my college age daughter and go to shopping (to the mall). The same experience happened at the…

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...and my first wig. It's a little poofy at the roots at present compared to my natural hair shape. I was told to give it a few days to settle down and then come back to have it thinned if it's still too big. It was REALLY full on top when they first put it on my head-- I looked like an 80's hair band rocker dude, but they thinned it some and used the flat iron, and this is the result. Better than bald patches by a long mile, but I still dearly miss my long hair and just being natural. It…

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Call me grumpy but I am extremely irritated with my aa right now as I had to have treatment on my neck today which means lifting up my wig a little so the nurse can get to the right area and I felt so vulnerable, exposed and even embarrassed to some degree. Nothing was said and today I lacked the confidence to be upfront. I'm sure this is because whenever I'm not well my aa bothers me more than usual and I feel miserable and then annoyed with myself for feeling this way. So just getting it off… Continue

hi i am new to this i have had alopecia since i was in kindergarten and ma now in year 11 i have tried a few different treatments but none of them have worked for long or they have a had major side effects that if i continued the treatment it cause harm to my body i would love to hear from anyone if they have any ideas of treatments that they know of

For years I've had trouble finding cute shoes in narrow widths and now a similar frustration with wigs-- small caps were discontinuted 60 days ago on my top wig pick. And do not even get me started on hats that will not stay on in the wind!! If only I could shift some fat up north.... Grrrr

I first felt an ich on the back of my head reach back to scratch it and felt the all to familiar - SMOOTH PATCH. Oh, Crap not again.

Yep, after some looking I have found two bald spots on the back of my head, about the size of silver dollars. Didn't even realize I was loosing it again until I felt the spot. It's not bad just makes me self concous when i'm walking outside and the wind is blowing. UGGHH, This is not what i really need right now, but such is life.

It's not fair or…

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AS WENT TO THE STORE IT WAS RAINING AND NEED MY HOOD ON WENT IN STORE PULLED BACK MY HOOD AS YOU NO WHAT HAPPEN MY HAIR CAME OFF/WIG LUCKEY IT WAS EARLY MORNING AND NOBODY WAS IN THE STORE YET WHAT DAY ALREADY THANK THE LORD IF ANY THE VIDEO IN THE STORE SAW ME LOL