Featured Blog Posts – April 2013 Archive (27)

My struggle with alopecia

I'm 17 years old and have had Crohn's Disease since I was 7. 3 years ago I began Remicade infusions and it really turned my life around. This past August, I went for a haircut and then a few weeks after noticed my one sideburn looked like it was cut in half. I thought maybe it was a bad haircut and figured it was nothing, until the rest of the sideburn went away and the hair loss started moving up the one side and then the other side. My doctor sent me for blood tests to check if there was a… Continue

Added by Adam L on April 27, 2013 at 10:00pm — 3 Comments

My story at 19

Well. I'm not sure where to start. Basically I had AA on and off since I was 4 years old. At 12 I finally decided that the PUVA treatments and the high dosage of steroids were breaking me down so I just lost all of my scalp hair and have been bald ever since! Middle and high school were definitely the worst, the kids were beyond horrible. Which had lead to my major self esteem issues, which I'm sure all of us have battled with.



During my junior year in HS I started having major…

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Added by Rita on April 26, 2013 at 3:00pm — 1 Comment

Scared...job interview

Hi all, Been awhile since I posted, but finally accepted having no hair only took a year....yeah go me, but now I am looking for a new Job as my Job is being made redundant and I have an interview on Monday but don't know how to address the Alopecia thing my current work place was accepting but the idea of having to make new employers understand is hard, Just wondering does anyone have a booklet or a letter they have attached to there resume's or given out that explains it, something that…

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Added by Cassandra on April 26, 2013 at 6:00am — 11 Comments

Tomorrow I am going to start a new routine

Tomorrow I am going to start a new routine of natural vitamin supplements A-E, a shampoo with zinc, daily scalp massages, rogaine twice a day and yoga and meditation classes because i believe that stress plays a major role in this disease. I so tired of my doctor dismissing every alternative as inconsequencial. It's my hair thats falling out not his. I'm not going to take this lying down anymore! I'm not going down without a fight. I'm naturally high strung and vociferous, so that will be a…

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Added by michael on April 25, 2013 at 11:00pm — 4 Comments

Thyroid?

Does anybody out there with AA also have problems with their thyroid?

Added by Brandi on April 22, 2013 at 7:49pm — 10 Comments

Hair colour, eyebrow pencils, or gel anyone?

Pleased to discover this fine forum. My male partner began having mild alopecia last fall at the age of 55, starting off with a bare patch on his chin. This spread to make a larger area, then we noticed a few bare patches on the back and sides of his head. He has quite dark, short hair and I have noticed that some small bald areas have been slowly growing back though now grey or very light hair. His regular visit to get his hair trimmed became uncomfortable as he was very conscious of others…

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Added by Sheila on April 21, 2013 at 7:56pm — No Comments

I can stop feeling sorry for myself! I feel guilty for feeling sorry for myself. People out there just lost there life's and limbs!! I go to a therapist ! It does not help! I love my boyfriend soo mu…

I can stop feeling sorry for myself! I feel guilty for feeling sorry for myself. People out there just lost there life's and limbs!! I go to a therapist ! It does not help! I love my boyfriend soo much but he defiantly treats me way different,since I lost my hair ,and my hair is brown with thick grey hairs. I get cortisone shots every six weeks! Wen I take a shower my hands are full of pieces of hair that are 1/2 inch long. All the new hair that is growing from the shots! Been diagnost with AA… Continue

Added by Trish on April 21, 2013 at 1:34am — 3 Comments

It's been awhile

It has been awhile since I went and posted a blog. I think maybe I have been trying to avoid talking about my alopecia. It's been a roller coaster. I've tried every possible treatment option. It's tough when they are all experimental. Anyway. I had 95% of my scalp hair back and 75% of my own eyelashes on my wedding day. By the end of my honeymoon it was falling out again. I go see my dermatologist every other month and get painful steroid injections in my scalp and take multivitamins and… Continue

Added by Erin on April 19, 2013 at 11:52pm — 1 Comment

Has anyone tried the RLT therapy/prommune diet?

I've been reading about it and I am curious, has anyone here tried this diet and if so, would you recommend it? I am considering ordering the guide and trying it out, but I would hate to waste my money on something that doesn't work.

Added by Braya on April 16, 2013 at 7:00pm — 2 Comments

I'm only 13 and it's really tough

So I have had alopecia areata since I was two. I have always had somewhat of long thin hair with little patches that nobody ever noticed. I decided to get hair extensions last year which pulled out about 40% percent of my hair but not all of it.Last month I had a fight with my best friend and all my hair fell out.I wear a wig now(im only 13)and its really tough. I have never talked to anyone with this disease who is my age and I hope I can meet someone who does:)thanks

Added by madison on April 15, 2013 at 7:00pm — 20 Comments

Fifteen years with alopecia, kinds words for those who struggle

To basically start, I was diagnosed with Alopecia when I was 10 years old. At the time I was just a kid and had no idea how rude and mean people could be at the time. Had no friends until High School because kids wanted to poke fun and be ignorant, this was when Alopecia was not as known back then. Long story short some hair came back but never all the way, in High school continuing on to now I have such amazing people in my life and never thought about my hair loss to much. It became who I…

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Added by Brian Farris on April 15, 2013 at 4:30pm — 1 Comment

It's an ill wind that blows nobody any good

All my hair fell out whilst on vacation last September,from having a full head of dark brown hair (not great hair mediocre at best but all mine)to nothing and have subsequently found out it ain't coming back.

So after a good cry I decided only to look at the positives of this.

A three minute shower means 20 more minutes of sleep,No misbehaving to sit staring at oneself in salon mirrors whilst having hair styled

(HA) legs & other body parts no longer have to be…

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Added by Gemma on April 14, 2013 at 7:34pm — 8 Comments

Tattoos

hi all.
I have had alopechia for 2 years now and still can not come to terms with. I have been hiding inside my house,trying to hide from everybody.Does anybody here had eyebrowtattoo's put on as I am seriously considering getting them done,and also scalp tattoo's seen some places in USA that do it and looks really good,
Thanks

Added by SpartanKid on April 14, 2013 at 7:30pm — 8 Comments

Step by step

Several years ago I was diagnosed with Alopecia Areata.After that I lost all self-esteem that I had at the time. Throughout the past couple of years, I have begun to receive some of my self-esteem back. Other days being better than others. Around six years ago I picked up playing volleyball and fell in love. I have continued to play ever since. In my most recent season, a couple months ago, I decided I was fed up with hiding my alopecia from my team mates that I adored so much. I prayed and…

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Added by Rachel Taylor on April 14, 2013 at 4:00pm — 4 Comments

Pulse steroid therapy

I am recently diagnosed with alopecia universalis.

Can't stand the 2 month's stress....and my derma (one of the top docs in mumbai city) has put me directly into following regimen so that I get a good chance0 (possibly) of getting my lost pride.



1. Dexamethasone 100mg three days pulse therapy ( 3 hours slow i.v infusion for consecutive days in dextrose)

2. Oral pulse steroid every week ( 5 mg dexa) for 6 months.

3. Azithioprine 50mg everyday for 6 months.

All… Continue

Added by Mumbai on April 14, 2013 at 12:00pm — 5 Comments

First time I've ever spoken to a classroom of strangers about my hair

I am a freshman at a New Jersey State College. I enrolled in an acting course and I was given an assignment that really helped me open up about my condition. We were each given a poem and we had to write an essay about why we would have written that poem today. What would have inspired me to write this? The poem is called Phenomenal Women and after reading it a few times, I knew that writing about alopecia would be my best option. Here is the link:…

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Added by Kate Jean on April 11, 2013 at 1:00pm — 8 Comments

Frustration in coping and covering up

Hi, my name is Jerrod I am 28 and have been dealing with alopecia areata for about 1 1/2 years. It started with just a small patch of thinning hair that was not noticeable to anyone but me. A few months after I noticed that small spot I was getting my haircut and my barber noticed the patch, which was larger by then and totally bald, he told me about alopecia.

Since then I have been doing my best to hide the bald spot in hopes of spontaneous regrowth. However, the affected area has…

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Added by husker1984 on April 11, 2013 at 12:59am — 4 Comments

Silly women!

Another silly comment about my head / hair / lack of! At a course for work today and getting a cup of tea at the registration part of the morning. Woman walks right up to me "Are you on the chemo?" My colleague beside me said later that she was go smacked!! I said that thankfully i wasn't and that my immune system is over active not allowing my hair to grow properly. Oh, she says and pours a coffee!! She was fortunate not to get my tea over her head! Then her equally silly friend pipes up,… Continue

Added by Jules on April 10, 2013 at 3:00am — 11 Comments

People amaze me

Today I signed up for a gym membership and the only reason Im saying anything about it is because something funny happened. I was changing directions of the machine to do the other side of my body and this guy comes running over to help me. I had it under control and he said to me "How long have you been fighting the good fight." It took me a couple of seconds to figure out he thought I had Cancer. I responded but saying I don't have Cancer it's Alopecia and it fell out about a year and a…

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Added by Sheena Tha Cody on April 9, 2013 at 10:00pm — 7 Comments

Mistaken for shaving for Cure for Cancer

Quite a few people have now stopped me in the street, asked me in shops or public places if I have shaved my head through choice for Cure for Cancer.. I hadn't even heard of it so it was a surprise at first but now I am ready for it! It still surprises me that people would think that a girl has gone bald by choice! Maybe some others have had the same experience?! I don't mind people asking at all really and so far it has been followed up with a positive comment like, "Oh well you suit it.." but… Continue

Added by Jules on April 7, 2013 at 5:17am — 8 Comments

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