Featured Blog Posts – April 2011 Archive (68)

Feeling sad!

Woke up this morning and just felt so sad. Yes sure I wake yp feeling like nothing is wrong but this morning was completely oposite,I;ve tried very hard not looking into my mirror but not sure why I did it , but I did it today in hopes to find little hair maybe? but I guess not my head is as smooth as a baby's head. Trefore I found myself crying and taking a tantrum wondering what I have done wrong.

Yeah sure I have been given some medication for what I am going through but I hate like… Continue

Added by Lisa-Lynn Marini on April 13, 2011 at 11:24am — 3 Comments

Thank goodness for four-legged friends

What a day I had yesterday...started off blue but turned into a day of laughing and fun. I have two dogs one is three and one is 4 monthes old. They are alot of fun and are more comfort to me that you know, for some reason they have a 6th sense and can always tell when I am down and out!! I have a great collection of scarves and hats that I keep in my room in a stand that has rows of baskets. I was getting ready for the day and out of the corner of my eye could see Piper my puppy slowly sneak… Continue

Added by CATHERINE on April 13, 2011 at 10:04am — 4 Comments

Don't let ANYTHING stop you

Hi All,

Well today was a spectacular day.After writing my story (I found my Inner peace) ,I felt so good that I went shopping.Guess what I bought??I bought hair accessories.Yes , I bought cute butterfly clips and those bling butterflys you can screw into your hair.Yup bling bling , all over me.Oh and I also bought some pretty bow clips and other miscellaneous stuff.Okay now you all must be wondering why Im glad about it.

When ever I passed those shops or see people wear them I used to… Continue

Added by Jasmine on April 13, 2011 at 12:47am — 11 Comments

Hollywood=Horse$#@%!

Ok so I have never posted a blog before on this website but I am seriously ticked! So there is a new modern version of Beauty and the Beast. I like this story because normally as a child I was always drawn to its message of inner beauty being what is important (big surprise). Well in this new version the man does not get hairy like a beast....wait for it...it looks like he has alopecia universalis with some lines drawn on his face...awesome! That really helps! What is the quintessential image… Continue

Added by Fotini Constantina Spero on April 12, 2011 at 8:04pm — 7 Comments

I found my INNER PEACE

Hi All,



This is my story.How I started out with long, dark, luscious hair and ended up wearing hats to cover my thinning hair.Here goes..

When I was 16 I had this long healthy hair that fell till my hips.And the volume was fantastic.I got compliments where ever I went.Then suddenly my hair started falling out in chunks.At around the same time I started going swimming,so people I knew told me that I was having a reaction to the chlorine water.My hair was very long and I found it… Continue

Added by Jasmine on April 12, 2011 at 6:15pm — 4 Comments

Hypothyroidism?

I've been feeling awful lately. All of my symptoms would point to hypothyroidism, so I went to the doctor to have my thyroid checked. I'm waiting on the results of the blood tests and I'm really hoping they can figure out what is going on. Has anyone else dealt with anything like this? I've learned that thyroid issues can be very common when it comes to Alopecia. This is the first time I've ever had my thyroid checked, so I'm hoping that if there is a problem, things can be resolved quickly. If… Continue

Added by Amber W. on April 12, 2011 at 2:13pm — 4 Comments

Red bright, heat feeling on bald spots!

Hello My Alopecian friends...Well, it has been seven months that I have been diagnosed with AA and I am doing my absolute best to cope with this horrendous disease that has stolen all of my ambition, but it is getting better..I continue to get injections because the hair is growing back in most areas, but now it has come to a halt of growing back and some regrowth hair is now disappearing as well..Not sure if the reason my hair is not growing back in three spots is because the Derm decided to… Continue

Added by Trish on April 12, 2011 at 12:36pm — 3 Comments

My cute little turban

I was surprised at myself when the other night I had to drive my sister home and guess what I wore? yep!! my pink turban, I've had looks from others in thei cars and what I did was "wave" see how fast they turn away,,LOL

I have gotten to the point where I will go outside in my turban and couldn't care less who sees me.

At least I know that this is a good step for me. As far as me going out bald , i'm not sure that will ever happen at least not for a long time to come!

Hearing all… Continue

Added by Lisa-Lynn Marini on April 12, 2011 at 12:05pm — 1 Comment

Well, it's been a year...

since I shaved my head. Little did I know then that it would be gone for good as well as all body hair! But my legs have never been smoother! I'm also glad that I didn't try to cover this up, I'm not one to spend my mornings putting on my fake self, hell I can't even be bothered to put on the fake eyelashes I bought LOL I am what I am, and I'm OK with that.

Added by Susan P aka DGADBS on April 12, 2011 at 7:28am — 2 Comments

Black women's hair loss tied to braiding, weaving

NEW YORK — Very tight braiding or weaving is linked to a permanent type of hair loss that affects many African American women, new research suggests.



While the findings can't prove hair grooming is at the root of the problem, women might still want to take them into consideration, said Dr. Angela Kyei, who worked on the study.



"I won't tell you not to braid your hair, but I don't want you to braid it so tightly that you need to take pain medication," said Kyei, of the… Continue

Added by Jera on April 11, 2011 at 11:55pm — 2 Comments

Am getting so tired

I am new to this site and so far have found it very useful. I used to have beautiful curly thick hair that was my signature, and it didn't matter if I was going through my skinny or my fat phase cause it was my hair that everyone commented on. I started losing it Sept of 2009 and my Dr gave me a topical steroid with the attitude that it would grow back. Well it got worse and worse...my Sister bless her for her persistance actually diagnosed me with Alepecia and made the Dr refer me a… Continue

Added by CATHERINE on April 11, 2011 at 8:23pm — 4 Comments

A comforting hug!

Saturday I had taken a nap knowing my sisters and their hubbby;s and baby was coming over so I thought ok I best take sa nap, I askd my husband to wake me up so that I may put on a hair peice to look normal, did he wake me up?? NOPE! They all came in the door and yelled "wake up sleepy head" A good thig I had on thi velvet pink turban which is quite pretty and comfy , I explained to my husband as i was upset, why dint you wake me? of course he said I looked too peaceful to disturb, and my… Continue

Added by Lisa-Lynn Marini on April 11, 2011 at 4:10pm — 2 Comments

Was it destiny or just luck?

This I just can't figure out?? Why is it I have had to deal with alopecia areata now for almost 17 years, I just recently find this great website with people just like me (have never met anyone else with this condition before), and now in the last two weeks...I now have alopecia universalis? Yes, it's almost all gone now.



Because knowing there are so many people out in this world also dealing with this condition, I feel I'm handling this better then I would have. Don't get me… Continue

Added by Hope on April 10, 2011 at 12:26am — 13 Comments

Soul Surfer

Heyy, everyone I recently saw Soul Surfer and it inspired to look at things in a different perspective, so I figured I would tell you how and maybe it would inspire some of you guys too. :)

When I was nine I was at my home town Pawleys Island, SC, I was just enojoying a beautiful day in the place I love, the ocean, when some pretty big waves pulled me under, I was thrown onto jagged rocks with no control over where I went, of course I was only nine so I wasn't stong enough to fight them. I… Continue

Added by Rachel Taylor on April 8, 2011 at 10:10pm — 1 Comment

From happy to sad?

How the hell does that happen?

I felt great postng my nee photos of myself to show who I really am, but today I feel OMG what the hell was I thinking??

I woke up this morning had my shower looked in the mirror and all of a sudden I felt like sigorney weavor in Aliens and I was so disapointed in myself. I hve asked myself what did I ever do to deserve this? am I being punished for something wrong I have done?

Good Lord I hate these feelings I just want to wak up everyday and feel… Continue

Added by Lisa-Lynn Marini on April 8, 2011 at 8:17am — 4 Comments

Question

I've been wearing a hairpiece for a year and a half now. I have two beautiful human hair wigs that I love and use wig tape. However, I still find myself in situations I don't know how to address and would love some advice.



I haven't been to an amusement park since before my hair fell out. My physics class is going to an amusement park next month, and I'm worried that my hairpiece will fall off on a ride. Has anyone gone to an amusement park with a hairpiece? Will I be able to go on a… Continue

Added by Lauren W on April 7, 2011 at 5:24pm — 5 Comments

Hi and where I am at

Hi everyone, I am Cynthia or Cindy for short. I love books, so it is no surprise I am a librarian^^;



I probably had Alopecia starting late last December or very early this January. I have had three appointments with the dermatologist so far. We did steroid shots the first two times. Not fun, and they haven't helped. I have probably lost 1/4 to 1/3 of my hair since January. I have recently started wearing scarves, headbands, and hats full time. This could easily change soon since my… Continue

Added by Cynthia Smith on April 5, 2011 at 4:38pm — 3 Comments

No matter what they say!

Don't look at me Every day is so wonderful Then suddenly It's hard to breathe Now and then, I get insecure From all the pain, I'm so ashamed I am beautiful no matter what they say Words can't bring me down I am beautiful in every single way Yes, words can't bring me down So don't you bring me down today!!



I have listend to this a few times now whenevr I felt like I had to cry from just looking at myself in the mirrior seing a bald me feeling vey ugly.

Once I heard this song las… Continue

Added by Lisa-Lynn Marini on April 5, 2011 at 7:59am — 2 Comments

When the hair finally grows back...?

When the hair finally grows back why does it take so long to actually grow in length. Is that part of the alopecia? Does it always grow out like baby hair and thicken and grow slowly. How did your new growth come in?
Thanks.

Added by Supportive Mom on April 4, 2011 at 5:00pm — 3 Comments

Uncomfy!!

I had a wonderful week-end with my neice Saturday and the next day zi hade my younger sister over for dinner which meant ,'wig time again" I noticed towards the ed of the evening I was getting severe headaches, pain from my wig in my forehead and I kept trying to adjust it. When y sister said to me" We are all family here why dont you jst take it off and continue to ave fun,we wo't judge you in anyway, you are who you are and I stil love you.

Those kind words nearly made me cry, however I… Continue

Added by Lisa-Lynn Marini on April 4, 2011 at 8:12am — 2 Comments

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