The email address associated with your Alopecia World account is private and will remain so unless you choose to share it with others.
Therefore, we caution you to be wary of any request for your email address or any other contact information you have not made publicly accessible via your Alopecia World profile and posts.
You also should NOT join email lists on other sites just because you were asked to do so on Alopecia World!
If a member of Alopecia World wants… Continue
Added by Alopecia World on April 29, 2010 at 1:30am —
After my hair started falling out again last fall I went back to my doctor and said if it was my stress level causing this please give me something this time...last time rest and vitamin therapy. He gave me Klonipin which has helped my adrenals from firing abnormally for small things that should not make them fire. It has been a great thing for me and I just thought I would share it with ya'll. I take 1/2 in the morning and 1/2 at night. i hope this helps someone else.
My pills are .5 mg… Continue
Added by BJ Spicer on April 28, 2010 at 10:00am —
Added by Jill on April 27, 2010 at 7:30pm —
i need to get this off my chest since i have no one else to talk to. Im so sick and tired of people staring at my son...people come up to me and say wow does he have cancer!...i think thats so rude..and then today i took his meds to rite aid and someone says he looks funny bald...i dont even know what to say back to people...it breaks my heart when people just stare...if you wanna know what my son has please just ask...
Then yesterday im looking back at my wedding… Continue
Added by Shannon **Jose's Mommy** on April 27, 2010 at 5:08pm —
I decided to cancel my follow up appointment with the doc. I certainly wasn't going to try either of the pills he suggested. Heck that was some nasty stuff. I'd have to get blood tests weekly to monitor my organs. No friggin' way! Then the pepper (capsaicin) cream; I would have to start at 0.025% and work my way up to 0.075% if that was ineffective; and at about $20 a tube. So you know what I did? I went to the grocery store and bought a small $3 tray of the hottest little peppers they had,… Continue
Added by Brandy Snap on April 26, 2010 at 7:28pm —
Thought I'd update you after my last blog post...I've been to see the head and she was really nice and said she's going to breif the staff properly at the next meeting. She even said that if I wanted to shave it i could and i wouldn't have any opposition from any of the staff...and even my mum's come round to it!! we're gonna do it tomorrow morning!! I'm so excited!! :) I'll post pics tomorrow of my first bald day out!
Added by Keeley Tomlinson on April 26, 2010 at 4:57pm —
Yesterday (4/25) was my 1 year bald anniversary! I shaved my head one year ago and life has only gotten better from there on :) It's feels like a kind of a birthday for me, because it shaving my hair off and starting fresh was the first time I felt like the "real me" since I had gotten alopecia in 2001. Many of you may know what I mean about what a positive life-changing event the "Big Shave" can bring about. For those of you who are still struggling with the decision of… Continue
Added by Natalie on April 26, 2010 at 2:30pm —
I just now thought of something . I have come so far from where I was at . It blows my mind ! I'm just like, WOW !!!! A year ago or almost a year , I thought about suicide . I felt so miserable . So alone . I thought I had no friends . That no one cared bout me . That was all lies from the Devil . I remember crying and writing in my journal and putting : I don't really want to kill myself . But I hate how I feel . I feel so alone . ( or something along those lines .) I kept thinking , I could… Continue
Added by Mackenzie on April 25, 2010 at 4:09pm —
There are those days when I can do little more than sit back & laugh at what life brings my way. Today was one of those days. I had taken a shower after my morning run and was preparing to clean up what few hairs remain on my face when I saw it…a hair on my previously bare eyebrow…woo hoo! I felt like an adolescent boy whose first, long awaited mustache hair had appeared as if out of nowhere. A hair, yes perhaps only one but a hair no less. Could this be the beginning of new growth? I… Continue
Added by Tony on April 23, 2010 at 12:42pm —
I have been informed this week that my parents and i have got to have a meeting with the headteacher at my school because I refused to take my hat off in a lesson, even though I've had special permission to wear a headscarf/hat for about a year. I couldn't believe it! I'm being punished for wearing a hat..I don't want to wear it! If I didn't have to then I wouldn't...it's hot and it's itchy but they'd complain even more if I walked around with my patches hanging out! This is basically just a… Continue
Added by Keeley Tomlinson on April 22, 2010 at 3:46pm —
So it looks like my AT is turning into AU. I've lost the hair on my arms, legs (not so bad!! haha) and the lateral half of my eyebrows. I've been penciling my eyebrows in now for about 2 months and they look really natural but I've come to the point where I don't want to worry about whether or not I've smudged my eyebrow off or not! Has anyone gotten permanent makeup before? If so what was it like and how much was the approximate cost?
Added by Jessica Frankland on April 21, 2010 at 4:27pm —
I am stuck between ordering the amore Codi wig and a new one called Ease by Revlon. Does anyone have any suggestions or luck with either of these brands more than the other? I know I have seen tons of you that wear Codi by Amore. Thank you for the info!
Added by Donna DeHoog on April 21, 2010 at 2:35pm —
Well, it's been a while since I posted my last blog. I've been busy with school and not so busy with my hair... or without my hair, haha.
I'm still bald and my legs are still becoming smoother, as well as my arms.
In general, I don't really care for my almost hairless arms and legs. What I do care about are my eyebrows. Those I don't want to lose, and I'm taking measures to prevent to let them.
I still use the fluid 'DPCP' on my eyebrows, and it works! Sometimes they fall… Continue
Added by Lionel on April 20, 2010 at 4:54pm —
I found this site through twitter and thought I'd give it a go. Friends/family are understanding to a point, but noone will truly be able to know what you are going through unless they have been through itthemselves - hence why I am here.
It's actually painfully ironic - as a child I had trichotillamania - I pulled out my own hair and had to wear a wig when I was 8 years old. As I got older, my confidence grew, I had good friends, so by the time I got to college I… Continue
Added by Rachel on April 20, 2010 at 2:31pm —
So,taking into account Thea's baby steps programme(trademark?) I took my daughters shopping with no wig or scarf! A little girl saw me and said "Look Mum it's Jade Goody's Mum". For those that don't know Jade was a British Z list celebrity who died last year of cancer and lost all her hair from treatment. Now I don't mind the bald reference but I am NOT old enough to be her mum!!!!!!! The little girl must have forgotten her glasses that day? :)
Added by Sam G on April 20, 2010 at 1:13pm —
Hello everyone. I have read alot of stories from people with Alopecia. I can't tell you how proud I am of my little Cate. She and her brother are adopted. I miscarried 9 babies and lost 1 foster/adopt baby when he was 8 1/2 months old. Now with my 2,that I have had for over 5 years, Alopecia! I wanted to be so angry at first. Ok, I was. Why her? Why us? Everyone has issues. I just do not understand.
To get back to Cate, she developed Alopecia Areata about 6 months ago. Her long hair is… Continue
Added by Rhonda Pillard on April 19, 2010 at 6:53pm —
There are two ways to access Alopecia World's chat feature.
Simply go to the following web page:
NOTE: This page is also accessible via the navigation menu that appears near the top of every page on Alopecia World.
Or, you can use the chat bar that appears at the bottom of every page on Alopecia World.
If you would like to become a chat leader on Alopecia… Continue
Added by Alopecia World on April 19, 2010 at 3:30pm —
In the (what seems like never ending) endeavour to convince my mum to let me shave my head she said she was worried because hair is symbol femininity and she doesn't want me to lose that. But that got me wondering...pondering if you will over society.
I don't want to be remembered for my hairstyle! I believe that femininity isn't skin deep. Women should be remembered for their ideas, intellect and their creativity. I go out in the evening to the bars and the clubs and I see women… Continue
Added by Keeley Tomlinson on April 18, 2010 at 6:13am —
4 months ago, I was in such a different place. My hair was dropping like crazy and I could no longer go out without any head covering. I was miserable and full of self-doubt and definitely not confident. I had just been laid off and admittedly a little afraid of getting back out into the workforce because of alopecia. I was worried and concerned. "How would I go to interviews?" "How would I take people looking at my wigs and wondering if it's my hair?" Such and similar questions permeated and… Continue
Added by Clara S. on April 17, 2010 at 8:03am —
Ok - I'm feeling pretty low at this moment. I have papers piling up all around me, this week has just been insane for classes and work. I knew it was coming and I planned accordingly accomplishing what I expected to. For that I should be really happy and proud but here I am sitting on my couch with a roll of paper towels crying because it's clear that I haven't come to terms with the fact that there is a really good chance I am going to lose my front hair line soon. I wear wigs everyday and you… Continue
Added by Jocelyn on April 17, 2010 at 12:36am —