Featured Blog Posts – April 2009 Archive (71)

Men's Rogaine

Wanted to know if anyone has used Men's Rogaine extra strenght. Went to the derm. and was told to use Betamethasone Lotion twice a day, and Rogain. Bought a box, and I would say it is not cheap.Wondering why the label says NOT for use by women.Sure hope that the derm. know what she is talking about! Would appreciate any comments.
Thanks,
Katie

Added by Katie on April 14, 2009 at 7:22pm — 2 Comments

Follow Up with Dr. Lovely Mc Needles

I saw my lovely Dermatologist today and she shot up my eyebrows with the Kenalog injections. She said to pick an area on each brow and add the Lumigan to see if it helps in filling out the area between appointents- "it can't hurt" -as the Lumigan is really a serendipitous (is that a word?) use of the Lumigan product anyway..



So lots of "ouchies" today- I must say I would rather be hammer fisted once in the groin as a consolation to the multiple ouchies, but I can't be a wuss! If it… Continue

Added by Craig S on April 14, 2009 at 4:18pm — 2 Comments

Acceptance

As I move on down path of being AU I try to keep up to date on the various Alopecia Websites and I was pleased to read about one young lady who had AU showing lots of re growth. It is amazing that she has so much hair again and I hope that she gets all of it back and it stays with her for ever. What I hope for more than that though is that she is not let down by the dreaded Alopecia. She seems so happy with her re growth and I really hope that she is not hurt by a turn in fortune. We all know… Continue

Added by Ray on April 14, 2009 at 1:02pm — 3 Comments

Update- back from the specialist

Well I finally had the appointment with the Good Doctors at Sunnybrook Hospital in Toronto- it is a teaching hospital and part of the University of Toronto Faculty of Medicine.



I met with the Dermatology spcialists- a great Intern and Dr. Yeung. Basically they run a clinic for patients with Alopecia and use DPHP I think it's called..a chemical compound used to trigger hair regrowth in AA, AT and some AU patients.



In my case, I had too many negative factors to be a good… Continue

Added by Craig S on April 13, 2009 at 11:37pm — 4 Comments

Struggling with a decision.... looking for opinions.

I have Alopecia Areata, a very large patch on the side/back of my head, still hidden underneath my hair but BARELY and I think I have officially decided that I am going to shave it because I am wearing wigs right now anyways in the fear that someone will see my half bald head and I don't want the stares and questions and it makes me feel uncomfortable.



Anyways, I am a Shift manager at McDonalds and my owner is aware that I have alopecia, I should mention first of all that he is a… Continue

Added by Tenille Gee on April 13, 2009 at 8:49pm — 3 Comments

Easter update

Last month on my Birthday I decided to start seeing a Naturopath. I had spent a long time researching and confirming with my insurance until I finally found someone. She's wonderful. She listens, she cares, she spends time with me, she is looking at the whole picture....me. Frankly, the time I've had to put in with her is worth it.



So, she confirmed that I do indeed fall into the Hashimoto Thyroid category....meaning that my thyroid is terribly unstable in it's low state. It explains… Continue

Added by Georgie on April 13, 2009 at 12:30am — No Comments

Injections: Cure or Needless Pain?

I remember back when I was about 8 or 9 my dermatologist telling my mother about receiving injections in my scalp. Even though my mother waited a while and discussed it over with me before agreeing with the treatment, nothing could've prepared me for these injections. Everyone is different and everyone don't have the same experiences that I may have had, but it was not a pleasant experience. I can't remember what the exact name of the medications were, but the results were not enough for me to… Continue

Added by Elaine on April 12, 2009 at 11:12pm — 4 Comments

A waddle to the finish line!!!

Just a few more weeks to go!! Baby is almost here, and I couldnt be more excited, and more scared at the same time. You would think that childbirth wouldnt be so scary the second time around...but it is. I am excited to be not prego any more...dont get me wrong I love the whole baby thing, but after 9months, IM DONE!! lol. It sucks that I found out about my alopecia when I first found out I was pregnant. It was a really big stress for the first few months......but since december, i havent… Continue

Added by May on April 12, 2009 at 11:03pm — 1 Comment

hmmmm.....

I hate alopecia. I go from extremes, where i'm ok with it and act like it's not a big deal, to where i cry myself to sleep, hating everygthing about it. I wish i just had patches, that'd be so great. I hate losing my lashes adn brows, and i hate having to wear a wig, and i hate being bald.



I hate it so so much. I really do. It just makes me so sad and feel so revolting and i look like a freak, I feel like a freak. I hate it.



And then to make it worse, everyone else around… Continue

Added by SportyAusGirl on April 12, 2009 at 9:55pm — 3 Comments

lace wigs?

hi~

does anyone have any advice on full lace wigs and lace front wigs. i've been researching online forever and get so many mixed reviews. i really want to buy one asap but i want a nice one without too much cost. i don't want to pay over 200. this is the first wig purchase i'll have ever made. please give me some advice based on your experiences:)

Added by elle on April 11, 2009 at 1:34pm — 2 Comments

Here we are a year later and just plain fed up

Well here I am a year later after I discovered the very first bald spot......I still have hair but holy cow not that much..... I have to say this is the most frustrating thing I have ever been through in my life.



I went into wigs in January because the delightful bald spots were becoming too big... I have I am not sure of the correct term but the Ophiasis pattern? The hairloss is all the bottom of my head and the side kind of like a turban effect. Well at least that is how it started… Continue

Added by Lori M on April 10, 2009 at 10:08am — 8 Comments

Minoxidil

Ok so I'm looking for a treatment for my daughter and i've been reading so many different types of treatments and am very confussed! Has anyone had any luck with topical Minoxidil?

Added by Camille Paddock on April 10, 2009 at 9:50am — 3 Comments

Acceptance :)

I love how everyone is so accepting here, :)!

Added by Ashleigh on April 8, 2009 at 9:55pm — 1 Comment

In desperate need of help and advice

Hello everyone.I'm 35 years old and since last summer have noticed that my hair is thinning on my right side.It started in the corner of my forehead and has got thinner down the side near my ear.I have no bald patches as such it is just noticably thinner than the other side.My doctor won't help me and says it's nothing.The hair that is growing on the thin side is coming through white and thinner.Can anybody tell me what this is?I'm worried sick.My doctor says it's not alopecia but i think it… Continue

Added by nina on April 8, 2009 at 9:32pm — 3 Comments

Finally...time to face the music.

My name is Jennifer and I've been dealing with AA on my own for about 7 years now. Not because I've had to be on my own but because I've chosen to. I am surrounded by family and friends that love me dearly but as much as they sympathize they can never understand. All my life I had gorgeous, thick, long hair and suddenly after tremendous heartbreak it started falling out (or jumping off)! On December 22, 2001 I found out my dad had cancer and sadly on December 24, 2001 he was gone. A week later… Continue

Added by Jennifer Wooldridge on April 7, 2009 at 10:35pm — 3 Comments

Has anyone had any luck with Calosol?

My daughter who is 10 with alopecia has been using Calosol for about 4 weeks now. She has two spots on her head and lost most of her one eyebrow and losing hair on her other one. I see little white hairs on her eyebrow but i'm not sure if it is hair growth or not. Anyone else use it; please let me know what your results were!!

thank you,
melissa and camille

Added by Camille Paddock on April 7, 2009 at 5:07pm — 4 Comments

Today was a VERY bad day

As i explained in my other blog I have been dealing with this for 4 years and just recently came clean to my mom about my true feelings about my alopecia. When we had discussed it further she asked if I would talk to someone about this. Today I went and saw my doctor about talking to someone about my feelings and that was really hard for me. My mom went with me and afterwards i felt really crumby. I feel like I have given up that i am too weak to deal with it on my own and that everyone i have… Continue

Added by Danielle on April 7, 2009 at 4:12pm — 7 Comments

My Alopecia Life

My hair first started falling out at age 4. My parents brought me to several doctors for a few years until we found a doctor in New York City that started injecting my scalp with steroids. This went on from age 6 til about age 12. My hair had grown, although it was thin in ceratin spots, I had a full head of hair and as I got older into high school and began cutting it more often it would grow in stronger. I was very popular in high school, excelled at sports, had a girlfriend, was very well… Continue

Added by Just Ask on April 7, 2009 at 2:11pm — 1 Comment

Sulfasalazine works! My daughter received the "cured" stamp! Please read this!

My daughter was diagnosed with AA when she was three and progressed to totalis about a year and a half ago. After many treatments that didn't work--everything from natural to rogaine to creams, DPCP, (the only thing we did not do was steroids or shots, she was too young) we found out about the drug sulfasalazine and it's positive effects on alopecia patients. We started her on this treatment a year ago and she now has a full head of hair! She also has all of her eyelashes and almost all of her… Continue

Added by Katie Beth on April 7, 2009 at 9:03am — 8 Comments

HELP.. Wig advice, synthetic that is going REALLY frizzy.

I knew when I bought this wig that it was a cheap synthetic wig, that being said, I still thought that it would last more than a week. I have only been wearing it for a week, maybe two and only on the days that I have gone out to do things in the afternoon/evening with friends, maybe 5-6 times. The back part now feels stringy and looks like half of the hair is broken and really frizzy. Walking up to me you would not really notice it but it feels horrible and gets knotted really easily and I end… Continue

Added by Tenille Gee on April 6, 2009 at 11:31pm — 5 Comments

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