My purpose of being on here is to find support for my 8 year old daughter.

I have had alopecia since I was 12 (which fell out in 7 days), I am now 38 and my daughter, just two weeks ago developed a alopecia spot, it is slowly thinning out, and she seems to be going along the same path as me. However she has been lucky in the fact her mother (me) has experienced it. We have sent letters to the parents of the children in her school and she has had a question time with her class (the…

"Ok so the Journey Begins, 3rd time round and has to be the hardest, I'm 29 and have had Alopecia Areata since 15

"each time it was little patches grew hair again within a year this time it seems to be all going at a rapid pace....

handful here brush-full there, when does it stop, didn't think i had that much hair to begin with...

surrounded with beautiful girls with beautiful hair at cosmetology school 9-5 mon-fri is an incredibly hard mental battle. As much support as they give me Im not ignorant to their initial reactions. When i open up and show my hair loss everyone makes that same face... you know the one. Its a mix between shock, concern and disgust. I get it.. i do, it's not common for a perfectly healthy 21 year old girl to just wake up one day with bald spots. I dont feel pretty when i have to pull my hair…

Well thats it my hair is definitely coming out now and im am so gutted this is happening again and i have only had about 7months of enjoying my hair being back. I cant cope with this at all and cannot accept this. People around me have no idea how i am feeling and some say i cope well, but im crumbling inside. I am going to go for counselling to try help me accept this as i cant let it rule my life which it is doing just now. I went to order a new wig yesterday just in case all my hair came…

Since my first introduction into the alopecia community in August of 2010, I have experienced a wide range of emotions, and revelations.

My first thoughts when I was first diagnosed with alopecia as an 8 year old was horrified. How can something like this happen to me? And how can I possible live like this. Well obviously 28 years later I do continue to live. In fact I thrive.

A very quick overview of my experiences growing up with alopecia..... I was diagnosed at 8. It was…

Those of you who may have read my previous posts I did a post about wig frustration, I find it so hard to pick a wig there are often so many choices out there, colour, style, many styles start to look the same the more you look at the different ones, along with length etc. Well anyhow I am nearly getting to a point of actually making a choice, I have narrowed it all down to a few different things…

1) I decided to not bother with Human hair, unless I pay a LOT of money the human one I…

In 2006 miy best friend Missy, (who happened to be my aunt but we were only 5 years apart) died. It happened to be on Thanksgiving Day. By far this was the worst day of my life. One month later I noticed my hair was falling out. Not just a little, but huge patches. So to add to my grief, I lost my long brown hair. I went through HELL. I left my relationship of six years, (he was supportive) but I hated myself and everyone, besides my kids. Even my children were embarrassed, and I wore wigs…

Never Ever....EVER assume something about someone <3 I went on holiday to england and this one boy went to me "do you have cancer?" "No i dont i have somthing else" i said really shy *low confidence...* "Looks like it ?" I hate it when that happens they see someone with less than the average amount of hair and assume it cancer ? If you Assume you make an *ASS* out of *U* and *Me* <3

When my hair is combed just so, no one can see the many bald patches around my head. However, it's a different story when the wind blows, my long hair catches on the collar of my coat or I bend over. I decided this morning that I'm tired of constantly worrying if a patch is showing, especially as I continue to shed and have a wonderful trip to Europe coming up a few weeks that I don't want to be spoiled. I have made an appointment for a consultation tomorrow morning to see what my options…

i hope no one takes this the wrong way and i mean no disrespect because i have dealt with the emotional pain and the physical embarrassment of alopecia for years during an fragile time in my life. i don't know if a coincidence or not but when i first got alopecia i was about 12 years old and i struggled with it for the next 5 yrs. it wasn't until i was 17 when i started to smoke pot. 6 months later it was gone. the doctor said i just grew out of it but I'm not sure now because i just lost my…

its crazy the impact of having alopecia has had on my life and the others around me !.
I think that having alopecia has made me a better person,more understanding and i know never to judge someone simply by the way they look.
Sure i have doubted myself and felt not good enough but i also think it has made me more confident and willing to share my story.
Im also talking to others about it and therefor makeing them more understanding and to never judge a book by its cover. x

Wondering if anyone with Alopecia also has any joint issues. I have calcific tendonities both shoulders and arthritic hips feel sort of young for these issues and it has been 10 years or so diagnosed (Alopecia since 4)

This past January will be 4 years since I lost all my hair. I think I have coped pretty well with it, tried to stay strong & up; but, lately, it just seems I am missing my hair, angry at my body. The why's coming back. Why the eye brows & eye lashes, will they or my hair ever come back. Do we all go through this? I know that my wounds ar still fresh, 4 years isnt really that along. I admire so many Alopecian sisters & brothers who have delt with this damn disease with such…

Alopecia World turned four years old on March 8, 2012, and we could not be more pleased with its growth.

There is no doubt that Alopecia World is one of the leading social networking sites for people from around the world who are living with alopecia.

Who made it so?

You - the members of Alopecia World!

You provide the support. You provide the encouragement. You provide the inspiration and information Alopecia World's thousands of members and monthly visitors need…

I hadn't realized so much time had passed since we were first struggling to understand and cope with Shannon's hair loss. It's interesting how people adapt and cope with changes in their lives, to the point you forget it was ever any other way.

Shannon's hair started falling out the summer before her 6th grade year, and was completely gone by Thanksgiving. It was a scary and confusing time - trying to figure out what was wrong, getting to the specialist, arguing with him when he tried…

...and that's how it started for me, 8 months ago. That silver-dollar sized patch I found behind my ear has since spread almost to the part on the top of my head and continues to spread on either side. Not to be outdone, the other side has started a collection of competing, smaller patches and TODAY I noticed thinning in one eyebrow?! Just when I adjust to a new normal, normal becomes something else. :-( Been cycling in and out of depression, struggling to keep a positive outlook as my doc…

I just want to get my feelings out...I see people on this site especially parents asking what to do, and stuff...I don't know if I'd ever give good advice about it because we're all different, different strokes for different folks...

But I just wanted to say my peace...I've been full on bald since I was four years old. I was never normal well...I used to have a full head of curly black hair that I would never let anyone but my dad touch. I don't remember much of my years WITH hair as…

Hey everyone, just thought I'd write a quick blog about my trip to Nigeria( I went for a month, dec to jan) and what I experienced while I was there.I went to Nigeria for 2 of my cousins weddings, they were held in two different cities, I traveled to Lagos( a large city in the southern part of the country) and benin.I did wear my wig when I was there and it got really unconfortable, had to stick it out though. But what I really want to write about is the BIG cultural differences. When I got…

Im going to list my hardest moments and greatest moments from 1 to 5 :'D

Hardest:

5~Going compleatly bald!

4~Got called "baldy"

3~Me and my two bestfriends were sitting in music class , i was leaning on my chair and without realizing my wig got caught on the drum behind me and i put my chair down and it came off ! , i ran to the toilets and cryed all day and wouldnt come out till everyone went home.

2~A boy i liked was riding on his bike , he cicled past me and my…

Having alopecia means im differrent and being different makes me stand out and because i stand out that mean people notice me and if people notice me more people know me and if someone knows me they know alopecia x