February 2013 Blog Posts (35)

Don't judge me

You always hear : dont judge a person til you walked a mile in their shoes. This has become so apparent this past week, with my friends and family. You really cant blame or judge another for the choices they have made in life. We each have our own issues, adversities and ghosts in the closets. We each have made the best decisions with the resources we had at the time with the knowledge in which we had it. How can you sit in your glass house and judge them for those choices. I personally grew…

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Added by Bald and Fabulous AKA Terri on February 27, 2013 at 6:00pm — No Comments

Stay strong

Hi im Casey and Im 13 years old with Alopecia;) Dont worry...we can fight it together!!!

Added by tobincasey2 on February 27, 2013 at 6:00pm — No Comments

The road to acceptance

 

I wake up every day to light kisses on my cheeks, my sleepy eyes, my lips, the tip of my nose, my forehead, and lastly, my bald head. Lately I have been waking to heaven. The sight of my Superman smiling at me when I open my eyes is simply amazing. This seems to have been my husband’s morning routine lately. And I’m not the one to complain about it. I took it all with open arms. Like I said, it was heaven. This routine actually made me feel loved and accepted (first thing every…

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Added by IcedBit on February 26, 2013 at 12:00pm — 5 Comments

How do you tell your children?

It has been a really long time since I was last on this site but I am in need of some suggestions, ideas or input please...

I have a new baby (girl) and I am wondering how others with children have chosen to tell their kids about their alopecia? I know that I have time (though it goes fast) before she will be able to ask questions, but I am still uncertain about how I'll respond.

I have never hidden my alopecia from my baby, nor have I hidden my wigs. However, when she's old…

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Added by amanda~ on February 25, 2013 at 4:21pm — 8 Comments

Shave for a cure debate

So yesterday I got into a heated debate on Facebook with my friend and her friends. She announced that she was going to do Shave For A Cure.

I advised her against it, and told her the stares and general nastiness from people all the time isn't worth it, and suggested she simply donate the money. It just makes me sad to think of a young woman in her 20s with a perfectly healthy head of long hair, looking the thickest and shiniest it will ever look in her life, and shaving it all off to…

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Added by Holly on February 23, 2013 at 9:30pm — 16 Comments

Sensitive scalp

I thought I was alone with experiencing the itchy and sensitive skin. I can not wear the synthetic wigs or lace fronts.I can not use any fragrance type scents. If I wear perfumes, which are a little pricey. I believe that the alcoholis high in content and gives me some type of reaction. Does anyone have any suggestions?

I'm also looking to find the full lace fronts that are made with virgin hair and has not been treated

Added by Johnyette Sloan on February 23, 2013 at 9:30am — 2 Comments

It's been a while

Hey guys! I hope all is well with you guys. As you may have noticed my life got a bit crazy and busy. I haven't been on here in over a year so here is a little bit about what's been going on in my life. My divorce is almost final so that makes me happy and sad all at the same time. Marrying some one to me ment spending the rest of my life with them but when the person I was with couldn't handle my disease and abused me because he wanted me to feel like a piece of trash, took me a long time…

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Added by Izzy on February 23, 2013 at 2:30am — 2 Comments

Anybody here have success with Hair Up by Schmuel Gonen?

Anybody here have success with hair up by schmuel gonen?

Added by MychildhasAT on February 22, 2013 at 5:30pm — 7 Comments

Just another manic bald day

One of the joys of having Alopecia Areata and opting for the bald path is the need to shave every few days. I decided I will not learn to shave my own head, and have my husband do it to me instead. This way he’d have some participation in the delights of my Alopecia, because I’m nice like that. I have also decided to refer to him as “Superman” on this blog, because he is my superman (and this is my lame attempt at flattering him). So, every couple of days I would be niggling Superman into…

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Added by IcedBit on February 22, 2013 at 11:30am — 4 Comments

Need wedding hat. HELP!

Still looking for a perfect hat for my wedding. Any ideas where to go to? I have tried google, etsy, everything.

Added by HeatherRae on February 21, 2013 at 5:00pm — 10 Comments

1 year old losing hair

Anyone else experience this with their children. It's shedding everywhere and dr said its normal. I am freaking out cause my husband and I both have hair loss. Does anyone else seem to think it is stange that we all have hair issues. I am starting to think its our apartment or water. I don't know what to think anymore.

Added by Michelle on February 20, 2013 at 6:26pm — 3 Comments

It's rude to stare

Some people should really be reminded of their manners, from curious looks to downright stare fest, seriously. I have been getting this a lot lately. Yes, I am bald. Yes, I’m a woman. No, it wasn’t by choice that I’m bald. No, I’m not on Chemotherapy. Yes, those are extra-bald patches you see scattered all over the backside of my head. Yes, it’s a disease; and before you give me that look, no, it’s not infectious. It’s Alopecia Areata. Google it. Get over it.

I would say I found out…

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Added by IcedBit on February 20, 2013 at 5:00am — 7 Comments

Regrowth

Well my hair is growing back at a very rapid pace no bald spots just lots of hair don't like the colour grey and white though Hey but it's hair

Added by Annette on February 19, 2013 at 4:38pm — 15 Comments

It does come back sometimes!

Hey everyone, just dropping in to let everyone know that my hair did come back. Not perfectly, but beggars cant be choosers hey! Took 2 years though and still haven't got my facial back

Added by Shane Beard on February 18, 2013 at 7:12pm — 1 Comment

Cortisone injections are working to treat my nails

Hi - it's been a while since my last post about my nails that were lifting away from the nailbed. I've found something that seems to work - - although I have to say, it's pretty extreme. On two of my most affected nails where the nail had almost completely lifted away from the nail bed, I've received a cortisone injection at the cuticle line. Painful, but it seems to work. Next time, I'll apply some numbing agent the dr. prescribed before my next appointment.

Added by JMEL on February 17, 2013 at 1:00am — 3 Comments

Baby Let Your Hair Hang Down is now available on DVD and Amazon VOD - finally!!

Hi Everyone!

I am so so so so excited to be able to write on here to tell you all that the film that I have been talking to so many of you about over the years is finally on sale. My documentary - BABY LET YOUR HAIR HANG DOWN - about my journey with Alopecia Areata is available for you to watch. You can buy a DVD or download it from Amazon VOD.

The link to the film is here:…

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Added by Georgia Van C on February 16, 2013 at 9:45pm — No Comments

Re-Growth

Hi Everyone. It has been one year this month since I first lost all my hair and posted on Alopecia World.

I am happy to say it is growing back in. I still have a few small bald spots and the new hair growth is baby fine.But I will take what I can get.

I do want to say thank you to everyone on this sight for the support, it has really helped me cope.I did not feel so alone!!!!.…

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Added by Klo on February 16, 2013 at 4:58pm — 4 Comments

Question

Does anyone know of this treatment research? Is it old, new? I was just searching around and found it.…



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Added by Ryan on February 15, 2013 at 11:54pm — 2 Comments

Twitter

Hey Everyone! I've decided to take a new step in embracing my beautiful bald head and started a twitter account. It's called Bald_Sarah. What I'd really like to do is start raising more awareness in our community. I would appreciate it greatly if you could follow this account in hopes more people will see it. I'm also creating a new hashtag #nohairdontcare

If you don't want to follow me, use this hashtag! lots of people have told me it's really funny. That's actually where I got the…

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Added by Sarah Bitar on February 12, 2013 at 8:42pm — No Comments

Feeling quite melancholic about my hair loss...and also feel alone

I'm glad to chance upon this site and I've only joined last night. Guess I'll start at the beginning. I used to have a tremendous amount of hair when I was 18 (am now 46) except it was a very fine, frizzy type hair and back in the 80's, there wasn't the kind of hair products or curling iron straighteners we have today and so the only solution was to perm my hair. One day, I got my step mom to perm my hair but she pulled the curlers too tight which resulted in the perm solution literally…

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Added by Meloncholy on February 12, 2013 at 4:30pm — 2 Comments

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