I know many of you have had this illness for a while now. Sometimes you feel like you've become an authority. Well, like many others who've spent years in their particular industry -- you've all become SMB (subject matter experts) in your field of Alopecia. :)
You are entitled to:
http://www.newagemedia.ca/au/au_degree.jpg
Print one and hang it on your wall -- only a few people around the world have earned one. You…
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Added by Drakes on January 14, 2010 at 2:25pm —
3 Comments
Has anybody ever bought a wig from Best Wig Outlet? I found a really cute human hair piece, Sepia - HB Prom, and it was a really really good price for Human hair. I am so leary about buying online. I have one now that I got thru an area salon. It is supposed to be human hair and it was rather pricy. To put it bluntly, I hate it. I haven't had it a year yet even and have only been able to wear it in a ponytail. It is supposed to be human hair, but it seems to "rat up" in the back just like some…
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Added by Mary Sarra on January 14, 2010 at 2:00pm —
5 Comments
Hi Everyone!!
I have thought long and hard about updating on Alopecia World - I didn't want to upset anyone with my good news...but then thought...HEY...If this could give even one person a bit of hope...it's very much worth it!!
The good news is that I have 100% complete regrowth. I shaved my head on January 24th 2009, and by October 2009, the last patch had grown over.
One year later, I am patch free and just waiting for my hair to grow long again. I still…
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Added by Christie on January 12, 2010 at 9:24am —
10 Comments
I feel like this community has taken a huge weight off my shoulders. For so long, I felt like I was the only one dealing with this. I'd seen women losing their hair on hair transplant tv commercials, but never really gotten to talk to anyone dealing with the condition. It's such a releif to talk to people who understand and can let me know what to expect down the road. It also really helps to see women on here who have everything I want-husbands, children, and successful careers, and didn't let…
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Added by Andrea on January 12, 2010 at 9:20am —
6 Comments
Okay, my hairloss was about 80-90% due to my Lupus. I have now been on Plaquinel since Nov 23 and a Biotin/Fish Oil regimen since Nov 1. The first picture shows the peak of my loss before I noticed that I didn't seem to be losing and the second picture is today. Just Friday I thought I saw 1/2" hairs among the 2-3" hairs. My mother looked and sure enough she saw a lot. So I got the rest of my hair shorn to 1" to even it out. I tried to duplicate the exact lighting so it shows the same but you…
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Added by Andrea on January 11, 2010 at 4:02pm —
4 Comments
Here goes my RANT! please take it for what its worth, no more no less, I am a repair technician, I fix things for a living, therefore find it difficult to except my medical Doctors disheartening prognosises concerning the very obvious autoimune desease alopecia totalis that I have been plagued with as incurable due to lack of knowledge on there part. Basically all four docs said in not so many words you got and autoimmune desease we no nothing about, good luck with that, see ya would not want…
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Added by George Ortiz on January 11, 2010 at 8:07am —
7 Comments
It seemed like my AA was taking a vacation as I hadn't noticed any new bald patches for quite some time. And then BAM over the last week I've lost a LOT of hair. I woke up last Thursday with two partial eyebrows, so I shaved the rest. I have also lost a lot of body hair, which feels weird (I was pretty hairy). My clothes actually feel different. I am trying hard not to let this rule my life, but I have found myself leaving the house less. I'm single and unemployed and really don't want to fall…
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Added by Victor on January 8, 2010 at 5:04pm —
10 Comments
Rather than send out an email to all those on my friend's list I thought I would post a blog for everyone to read. I grew up with alopecia and found it very difficult to cope with. Even my parents has a hard time knowing what to say or do. I urge you all to make a difference in an alopecian child's life by helping them attend a conference specifically for children with alopecia and their parents by visiting the link below and making a small donation to our cause. Read the information I've…
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Added by Carol on January 8, 2010 at 1:16pm —
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recently more and more of my hair has begin to fall out even though i just recently got it back. i feel so, out of myself. in the shower i can feel the hair covering my back and my hands and i have to wipe myself down after showers because i have hair all over my body, it makes me feel disgusting. i hate it. i hate my hair when it falls out. now dont get me wrong ive had alopecia for three years now and im all about being positive and accepting it but i feel like im rewinding and its so painful…
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Added by Brittany Peterson on January 7, 2010 at 11:25pm —
5 Comments
I was diagnosed with Alopecia Universalis around Thanksgiving of 09 while I was 6 or 7 months pregnant with my 3rd child. The last picture taken of me was November 6th and I had a full head of hair; the same hair I'd had my whole life. By the 2nd week of December I had lost all of my hair, body hair, eyelashes, and most of my eyebrows. It has been extremely hard for me to cope with this because I have never had problems of any kind up until now and my doctor is telling me that AU usually…
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Added by Anna Thomas on January 7, 2010 at 3:12pm —
10 Comments
Hello Sweet Women!
I have not posted, or messaged, or blogged, or commented in FOREVER! But, I just had to take a minute to connect with all of you – old and new members.
Today, I was looking at what I wrote in my profile when I joined. I had written, “I look forward to the day when I wake up NOT thinking about my hair. When that day comes, however, it will have nothing to do with alopecia and everything to do with me.” Well, I realize that day has finally come, and I was…
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Added by Marie on January 7, 2010 at 2:38am —
18 Comments
So it's been around 7 months since I went gluten free and I couldn't be happier. I even quit wearing my wig a couple weeks ago. My hair is still thin, but I've always had naturally thin hair anyway. My one eye without the eyelashes has yet to grow back, oh well. I'm just happy it's come this far. My dermatologist seemed really excited for me back in October, I can't wait to see what he has to say here in a couple weeks. I did upload some before and after pics but am not sure if only friends can…
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Added by Amanda on January 7, 2010 at 12:42am —
1 Comment
Hey everyone, I was just thinking about life and alopecia. I was recently diagnosed with Asthma. I had my first attack in late Nov. I had to go to the ER twice since then. It was the scariest thing I have ever gone through...not being able to breathe. It's still scary.
Anyways, it reminded me of when I first got AU 2 1/2 yrs ago. I was so scared then too. Well, as far as I'm concerned, I'de take AU over Asthma ANY DAY . I WISH AU was my biggest problem. When it comes to life or death, we…
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Added by Lee on January 6, 2010 at 3:03am —
6 Comments
Alopecia became a part of my life this Christmas. As my hair continues to fall out, the bare scalp is burning. Anyone experience this and have any suggestions to make this more comfortable. I have been very good about protecting my scalp with the harsh new england weather. Any suggestions would be greatly appreciated. Heather
Added by Heather Lynn Peckham on January 4, 2010 at 6:54pm —
12 Comments
This is some new information on my Granddaughther, Merari, she is learning how to play the piano/organ and she is doing good...overall she is coping fine with the Alopecia issue..but right now our concern is that the Organization who gave her a free wig, no longer will be able to give her a new free one....the one that she got is kind of old and she needs urgently a new one...can afford to pay for one...any advice will really be appreciated....
Thanks
a worried Grandma
Added by ESTHER M on January 4, 2010 at 11:26am —
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My mum is constantly looking for something that doesn't have any harmful side-effects that might be able to help get rid of my alopecia, and she recently came across thymuskin. Apparently it helps the thymus in someway (lost the piece of paper but will look for it lol) by providing nutrients and helping create antibodies that the body needs. It says it can take 9-12 months to work so I am going to try it for my mum because it can't hurt and it smells like vanilla! So I will post some pics on my…
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Added by Dielle on January 4, 2010 at 2:35am —
2 Comments
Alot has changed for me in the past little while. When i first started on this site I was dealing with alot of emotions linked to my alopecia. I was debating on whether or not to go talk to a therapist and i finally did. I had a couple of appointments but found that talking to her didnt really help much (to each their own right) but I did it for my mom. I actually found writting in a journal helped alot more then anything, it was almost like taking all of it out of my soul and leaving it on the…
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Added by Danielle on January 4, 2010 at 12:36am —
1 Comment
It's been a while since we blogged last, so I thought that I'd give a bit of an update.
Nathan is still progessing really well. I thought that perhaps we'd hit a point and it would all catch up with him, but for now at least that doesn't seem to be the case.
Most of the time he just doesn't bother about hat or bandana, and at Christmas, he actually asked for me to come in cause he wanted to show his cousins and I think needed the reassurance in case they asked questions.…
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Added by Judith on January 3, 2010 at 11:02pm —
No Comments
Hi All,
I have been thinking about all of the lack of research/treatments/cures for our disease. There are so many great people on this site. Why can't we start something that raises money devoted to find a cure? I know two people who have a child with a condition (not alopecia and fatal unfortunately) that have devoted so much time and effort into raising money for a cure....and both work full time. I was just thinking if we really put some thought into this, could we make a difference? I…
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Added by Kathleen on January 3, 2010 at 7:03pm —
2 Comments
Well, this is the first time I have written a blog on here, but I figure it's a good way of getting things off my chest.
I first noticed a tiny bald patch about the size of a penny on the top of my head back in August and I started to panic. I went to the doctor and chatted with friends and they all told me not to worry as it was most likely stress. This made me feel a lot better. I was travelling to Canada for 7 weeks 2 days later for work, so I went and put the bald patch out of my…
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Added by Sarah McA on January 3, 2010 at 3:12pm —
15 Comments