sadele
  • Female
  • Kirkland, WA
  • United States
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Latest Activity

sadele replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I got the prescription from my Derm for it but am currently battling insurance to cover it. They need a pre-authorization so it’s just a juggle game between my Dr and my insurance. She’s starting me on 2mg for a couple weeks then bumping…"
Jul 19, 2022
sadele replied to Alo-mom's discussion Eli Lilly's approved drug for Alopecia Olumiant
"I saw this today as well... this is very good news and gives more hope then we have ever had for a treatment."
Jun 14, 2022
sadele replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Kevin, Are you able to get Ruxolitinib from Beacon?"
May 24, 2022
sadele replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I have a question, does anyone have breast implants? I'm asking because I have them and have read a lot of Breast Implant Illness and it being linked to hair loss... just curious if it's just me that has them and got alopecia or if…"
May 24, 2022
sadele replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Katiegirl, Thank you for your reply! I do think that I'm more of an "incomplete responder" to Xeljanz and perhaps I've developed an immunity of some sorts to it.... I don't know... I've heard about Barcitinib and…"
May 23, 2022
sadele replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Starshine and Football Fan, I use to be very active on here as well... but stopped because my hair eventually grew back (not my eyelashes or brows tho). I had my hair growing for about 3 years and about 9 months ago most o it fell out again :(…"
May 23, 2022
Apple left a comment for sadele
"I am interested in where to buy xeljanz in mexico, omg I looked up pharmacies and am even more stressed than before my meds run out 1/12/2020"
Jan 7, 2020
sadele replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"It's been a long road. I don't come on very often either but I like to check in once in a while."
Jul 5, 2019
sadele replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I'm going to stay on the medication for sure for a couple more years. I don't want to risk losing what I have."
Jul 5, 2019
sadele replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"It’s being fussy on my phone. I just added another one that is smaller in size so I hope it worked!"
Jul 3, 2019
sadele replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Here is the picture "
Jul 3, 2019
sadele replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Here is the picture "
Jul 3, 2019
sadele replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi All, I haven't been on here in a really long time but wanted to give an update. Just a Recap: I lost all the hair on my head in 2013 when I was pregnant with my daughter. A year later all my hair grew back naturally with no medication. In…"
Jul 3, 2019

Profile Information

Relationship Status:
Married
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (6 comments)

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At 3:03pm on January 7, 2020, Apple said…

I am interested in where to buy xeljanz in mexico, omg I looked up pharmacies and am even more stressed than before my meds run out 1/12/2020

At 7:31pm on December 31, 2018, Rajeev Gupta said…

Hello Sadele,

HNY 2019, I am Rajeev Gupta from Bellevue and need your assistance on getting Xeljanz from Mexico as I have been suffering from AU from last more than 6 years. Kindly Help please.

I came across your posts and I understand you might have had some similar life and good Xeljanz experiences, so I was hoping we could connect. Any advice or suggestions or experiences you would be willing to share is VERY MUCH appreciated. I'm trying to stay positive, hoping and praying that if I get to purchase Xeljanz, my hair will once again return.

As you are aware that in US Xeljanz cost is sky rocketing and more or less no insurance company approves it, even after repeated appeals they keep on rejecting. I even tried looking at Pfizers support program but haven't call them as yet, but again its a limited time option, so When I was going through your posts mention of cheap Xeljanz from Mexico and that too without prescription, it is sounding something an option I can give a try with your help and support on giving me a contact information and referring me if possible.

I also tried Vancouver option Dr. Donovan clinic in Whistler but his consultation fees is quite hefty.

I would highly appreciate your support and if you prefer to meet in person in public place in and around Redmond or Bellevue, Redmond is my work place. I work for a big telecom company here and I am a very legit person.

I sincerely appreciate your valuable support and kindness to AU community.

Hope to hear back soon with a positive help and support.

Thanks & Best Regards,

Rajeev Gupta.

At 12:43pm on January 21, 2018, LauraL said…

Hi Sadele,

My name is Laura - I live in Boston with my husband of 3 years. I am 4 months pregnant with our first child. I have Alopecia Universalis.

I had been taking Xeljanz under Dr. King's care, with tremendous success - I was completely bald a few years ago, and with Xeljanz grew back all of my hair (in about 6 months since starting).

Flash forward to today, and I have stopped Xeljanz since pregnant - Things appeared to be stable for the first 2 months of being off Xeljanz, but as of month 3 and 4, my hair is falling out rapidly. Very scary and sad :(, especially for someone who has been down this road before. 

I came across your posts and I understand you might have had some similar life and Xeljanz experiences, so I was hoping we could connect. Any advice or suggestions or experiences you would be willing to share is VERY MUCH appreciated. I'm trying to stay positive, hoping and praying that if and when I do go back on Xeljanz (post-pregnancy), my hair will once again return.

Thank you! Thank you! Thank you!

At 6:03pm on October 21, 2016, strawberry said…

Hi Sadele, I hope this question isn't too personal but I was just wondering whether Xeljanz had any effect on your birth control pill's effectiveness? I ask because it's my only form of birth control as of right now. Has your derm/doctor mentioned anything about taking both Xeljanz and BCP together? Thanks.

At 12:19pm on October 28, 2015, Football fan said…
You are not alone.Some days I don't Even want to go out of the house.Right now I would be happy to see vellus hair on my head.Is this your first time seeing Doctor King?He's the expert there is still hope don't give up!
At 1:37pm on March 21, 2015, LeslieAnn Butler said…

Hello and welcome!
How are you today?

 
 
 

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