panuelo girl
  • Female
  • Denver, CO
  • United States
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  • tony deering
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  • Erika Vincent
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  • Tamara Reckley
  • sharon levers
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Latest Activity

Roger and panuelo girl are now friends
Aug 22, 2010
Mary left a comment for panuelo girl
"I married him! My husband Steve is a photographer...his website is www.stevegouldphotography.com. There are lots of underwater and other images. Thanks for your comment on the photos!"
Oct 3, 2009
panuelo girl left a comment for Mary
"Love the new photos! Maybe it's about time I did something like that. How did you decide on a photographer?"
Oct 3, 2009
panuelo girl and Erika Vincent are now friends
Sep 26, 2009
panuelo girl commented on Monica Witt's photo
Sep 20, 2009
panuelo girl commented on Carlotta Sezzi's photo
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"Woah...this is awesome."
Sep 20, 2009
panuelo girl commented on Carlotta Sezzi's photo
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"Nice...I love this!"
Sep 20, 2009
Karen Terleckyj commented on panuelo girl's blog post Trying to remember name of cream that turned my head purple
"I used this on my daughter and it is the Anthralin or Ditro-scalp cream. Did not turn her head purple but all clothes and towels it came in contact with. She does have some regrowth but hard to say if this worked as we also tried 3 other treatments."
Aug 18, 2009

Profile Information

Relationship Status:
Single
About Me:
I've been the girl who had combovers, the girl who wore berets, the girl who had a synthetic wig that didn't change styles even in a torrential downpour, the girl with beautiful auburn in the form of a vacuum seal prosthesis, and finally panuelo girl (Spanish for scarf)...Ah, alopecia...Now I blog about my thoughts, observations and experiences as a woman without hair. I've come a long way, baby!
http://twitter.com/panuelogirl
Do you have alopecia?
Alopecia areata
Are you age 18 or older?
No - I am not 18 or older
Your Website (Leave blank if you don't have one):
http://panuelogirl.blogspot.com

panuelo girl's Photos

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Panuelo girl's Blog

Trying to remember name of cream that turned my head purple

Posted on August 15, 2009 at 9:08am 4 Comments

I am trying to recreate my treatment history for alopecia, starting back in the '90s. One treatment was a cream that turned my head purple and itched me like crazy. I think the idea was to stimulate the hair follicles. I had to put it on with surgical gloves so as not to turn my hands purple. I don't remember what that was, and it's not in my medical file. Anyone else use it/remember what this is?

If I Had a Million Dollars

Posted on August 3, 2009 at 4:26pm 2 Comments

Baby fuzz. Say the words and hearts start melting. See that soft, fine hair on an infant’s head and your hand automatically reaches out to touch, pat, or pet. Oohs and ahhs and a drawn-out “aw” spontaneously slip from your mouth.



Now imagine that same soft, fine hair on the balding head of a grown woman. On me.



In my world, talks of baby fuzz mean I have a spot of new hair growth. My baby fuzz is soft, but not cute. Certainly not ooh-and-ahh inspiring or aw-worthy. More… Continue

What is the hair color of a bald girl?

Posted on July 1, 2009 at 10:40am 9 Comments

As I consider big changes in my life – new places to live, a new job, making new friends, maybe a new man – this is the question that keeps me up at night.



It’s such a trivial thing, but I have to be prepared. It comes up. When I get a new driver’s license, I may have to check a hair color box. If I sign up for online dating, I may have to identify my hair color, so that men with preferences can find me in a search. If I meet friends of friends at a bar, I have to be able to explain… Continue

The Sisterhood Fraud

Posted on June 21, 2009 at 3:13pm 2 Comments

This seems to come up a lot here on the site (and in my life). Here's what I wrote in my personal blog recently. I thought it would be good to share with you all, to see your thoughts.





It happened again.



I am shopping at Macy’s when a curly-haired brunette catches my eye from across the circular clearance rack.



“Chemo?”



“No,” I hold her gaze. “Alopecia.”



“Ah. I know alopecia. Your hair will grow back.”



In my alopecia… Continue

Oprah got it wrong...

Posted on June 18, 2009 at 3:01pm 23 Comments

I love me some Oprah, I do. She struggles with her weight. I struggle with my weight. She motivates people. I motivate people. She has a passion for sharing information that can help us improve our lives. I have a passion for sharing such information (though I’ve done it on a much smaller scale). When Oprah ran a marathon, I wanted to run a marathon. And I did run a marathon. Because Oprah inspired me. Because Oprah made me think it was possible.



Oprah usually gets it right. But for… Continue

Comment Wall (32 comments)

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At 4:58pm on October 3, 2009, Mary said…
I married him! My husband Steve is a photographer...his website is www.stevegouldphotography.com. There are lots of underwater and other images.

Thanks for your comment on the photos!
At 3:26pm on August 5, 2009, Aimee said…
Thanks for the add. You have such pretty scarves! Do you mix patterns? Like do you wear a patterned scarf if you're wearing a patterned shirt or skirt?
At 4:03pm on August 4, 2009, Amy said…
Hi Panuelo Girl. Thanks for friending me! Your photo's may inspire me to attempt the scarf look again. I seem to have the 'bandana' look down pat... but it may be time to branch out!
At 9:00pm on July 3, 2009, Pamela Rosse said…
Panuelo Girl, Mahalo Nui Loa, thank you from the heart & that is exactly where my thank you comes from my heart. Each of you made my day. I hope you have a wonderful, happy, safe & fun 4th of July.
At 7:46pm on June 30, 2009, Tamara Reckley said…
hey panuelo, whats up. My daughter has AU. All of her hair is gone including eyelashes and eyebrows. She's 7 so you could understand how hard it is for her. The starring, the pointing and the name calling. I try to remind her every day how beautiful she is. So nice to find people like her .Thought i was on my own. Especially down here in Nassau.
At 5:08pm on June 25, 2009, sharon levers said…
hi there thanks for your comments i know i have to be strong but its really hard some days im better than others. My friends have been great but i dont think they really understand how i feel so im hoping by talking to other people with alopecia i will be able to come to terms with it hope to talk to you again soon and thanks
At 3:01pm on June 24, 2009, Rebecca Anne Richardson said…
hello!! yes u found me :-) ....and im crazy too!! well thank u a lot for your comments,...it always means a lot when i hear that someone enjoyed the show :-) i hope to keep talking and hope u are well! thanks again for the hello
At 2:19pm on June 23, 2009, Zoey said…
Hello there.. I have been a busy gal.. Where have you been miss???
At 12:28pm on June 20, 2009, Bonnie Ajan said…
Wow, I agree with you. If she made the statement about the hair growing back, was her mind truly on what this woman was saying. She just has her breast removed and Oprah makes a comment about the hair???
At 8:28am on June 19, 2009, Izzy said…
Thanks so much for your very sweet comment!!! No I havent seen that show yet but I will have to check it out!!!
 
 
 
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