mandy
  • 39, Female
  • West Yorkshire
  • United Kingdom
Share on Facebook
Share Twitter

Mandy's Friends

  • Theresa
  • Sharan
  • Skin
  • Brighteyes
  • Hugh
  • Emma
  • linann
  • Nezz
  • Rachel
  • stacy
  • Ray
  • LORNA
  • Rose Marie'
  • Margareta Marcks von Würtemberg
  • narjiss

mandy's Groups

Music

Loading…

Gifts Received

Gift

mandy has not received any gifts yet

Give a Gift

 

Give yourself a second chance....Just in case no one else does

MY FAMILY

Latest Activity

Lois left a comment for mandy
"Mandy - Hi! You're brave to try that DCP stuff..my derm mentioned it as a possible treatment and I'm not brave enough to try it...makes blisters on your scalp, right? supposed to kick a reaction into gear on your scalp to promote (?) hair…"
Feb 6, 2009

Profile Information

Relationship Status:
Married
About Me:
Hiya i am Mandy and i have had ali-p for 17 years now,
I have AA (update 09/09/08 but i think it maybe AU now has i have no hair on my arm's and very patchy legs and no more shaving on the lady garden) but under arm hair grows for the world to much info i know lol (but what ali-p States am I cos i don't have a clue???)

I have a wonderful husband called Ricky and 3 beautiful kids,
Jade 17 yrs(Trainee nurse good job cos i need one lol) Adam 15yrs, and leah 11yrs

I have done the prednisone 5 tbs day 4 2 weeks than a drop down to 4 tbs a day for 2 weeks and then so on and so on and they worked well for me until i stopped them. then it all seemed to do what it wanted from gray to brown then ok i am leaving you again. Also done the jabs in scalp and the eye brows (god that was a killer) done the smelly creams and shampoo's everything works for a while but as soon as i stop treatment it all leaves me again so i think its time to just accept i am bald and beautiful and stick a wig on and go about my daily business lol (UPDATE 09/09/08)But now trying new treatment PUVA so lets give that ago (sorry to say this but i am not ready to give up yet!!!!)

Up date 28/01/09....

PUVA didn't work so now going for the DCP treatment,

I know some of you will think I'm mad maybe so, But I'm still not giving up on having a wee bit of tuff on my head lol
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

Mandy's Blog

The new treatment. (DCP)

Posted on January 28, 2009 at 10:00am 0 Comments

On the 21st January 2009,

I started DCP well getting sensitized to it, today 28th a week on had no reaction,

go back to hospital on the 4th february.



well its now 01 April 09,

still having treatment its going well. I will say the first few weeks were hell...Blisters and a head that if i had stuck it under the cold tap you could have got a red hot bath. Got really god growth at the back and were i was sensitized,

The right hand side is a stubbon bugger, but we will… Continue

mandy's Photos

Loading…
  • Add Photos
  • View All

Comment Wall (9 comments)

You need to be a member of Alopecia World to add comments!

Join Alopecia World

At 9:00pm on April 5, 2009, Lois said…
still think you have a high pain threshold to try dcp-no way I'd try that!
i keep plodding along accepting my patchy-bald look and folks around me
are evolving towards accepting me too (or they don't come up and visit with me, haha.)
have a nice week...cheerz!
At 12:22pm on February 5, 2009, Lois said…
Mandy - Hi!
You're brave to try that DCP stuff..my derm mentioned it as a possible treatment and I'm not brave enough to try it...makes blisters on your scalp, right? supposed to kick a reaction into gear on your scalp to promote (?)
hair growth...am I close? Like I said, you are brave...I won't put myself through that for some chance of hair sprouting...and guess I don't want to make myself a guinea pig for a derm. I don't even want to think of the $$$! Take care however and let me know how it goes.
At 5:29am on February 2, 2009, Ray said…
Lampard getting sent off ruined the game really but I am sure the Liverpool fans didn't mind.
At 3:38am on February 2, 2009, Ray said…
It was Liverpool and Chelsea on Sunday with anohter example of a poor decision by a poor referee.

United beat Everton on Saturday.
At 1:23pm on January 31, 2009, Karina said…
What type of wig is it?
At 1:22pm on January 31, 2009, Karina said…
What type of wig is it?
At 11:58am on January 28, 2009, Lois said…
I understand wanting a little "tuff" on your head.
I still have "bunch clumps" of hair but lots of scattered little bald spots and some big ones...I trim my hair short as I may as well show off the bald spots to my admiring public lol...really tho'...keeping it shorter and letting the scalp show through eases my journey to the buzz/shave.
Thanx for be-friending! Have a nice day!
At 9:55am on January 24, 2009, Lois said…
Hi Mandy.
Have a nice weekend.
Looks like you have a fun, happy family...yeah!
At 7:56pm on November 14, 2008, Rose Marie' said…
Hi Mandy

Thought I'd pop in and say hi. Hope all is well in the UK.

Rosy
 
 
 
YOUR AD HERE

Disclaimer

Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.

© 2012   Created by Alopecia World.

Badges  |  Report an Issue  |  Terms of Service