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holyhairlossbatman!! replied to jj's discussion 'Not sure I want treatment' in the group Newly Diagnosed with Alopecia
Ok. I knew about 2 weeks in that there would be no chasing it for me. Everyone I know had something- some kind of advice, or cream or pill or something. And I already had ruled out some stuff before I even visited a doctor. I researched many…
Jul 17, 2011
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Catherine replied to jj's discussion 'Not sure I want treatment' in the group Newly Diagnosed with Alopecia
I think like the others on here I stopped treatment when it got the point where it obviously wasn't working, and my hair was falling out faster than it would ever grow back. I think if you only have a couple of patches then it wouldn't…
May 14, 2011
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Leah England replied to jj's discussion 'Not sure I want treatment' in the group Newly Diagnosed with Alopecia
Oh Alice I was EXACTLY where you are now, when I first started all of this crap too. You are SO wise to be honest with yourself and allow yourself to FEEL the way you FEEL. I felt horrible and desperate too, but was met on most fronts (family,…
Mar 15, 2011
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Jennifer Schlueter replied to jj's discussion 'Not sure I want treatment' in the group Newly Diagnosed with Alopecia
Thank you for sharing! I've been newly diagnosed as well, and have been pondering the exact same question! Is it really all worth it? It looks like there are so many great looking wigs out there and they could actually be fun? I don't have…
Feb 3, 2011
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Sharon Mather replied to jj's discussion 'Not sure I want treatment' in the group Newly Diagnosed with Alopecia
Oh my goodness, Carolina - that wa the mot inspirational thing I've ever read! I discovered my bald patches just before Christmas and the doctor told me it wasn't alopecia, it will grow back and it's all in my imagination!!! I went…
Jan 15, 2011
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Cheryl, Co-founder replied to jj's discussion 'Not sure I want treatment' in the group Newly Diagnosed with Alopecia
Hi Leah, I find there are always more than 1 way to handle a situation. For most of us, it is to just get things back to the way they were. Our families have good intentions, but the hard facts are that in more cases than not these treatments…
Nov 11, 2010
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Leah England replied to jj's discussion 'Not sure I want treatment' in the group Newly Diagnosed with Alopecia
Dorna, don't wait too long before you decide though, I keep reading that 2 yrs and your treatment repsonse chances are next to zero. I lost my hair so slowly that I waited over 2 years (thinking it was stress) and now my chances are crap. maybe…
Nov 11, 2010
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dorna wright replied to jj's discussion 'Not sure I want treatment' in the group Newly Diagnosed with Alopecia
I'm with you, I haven't read very good reviews of the different treatments. I just have one 3" spot so maybe it's too early to worry a lot about it. Hang in there.
Nov 11, 2010

Profile Information

Relationship Status:
Single
About Me:
Very recently diagnosed with Alopecia. Still in the "devastated" phase.

All my life I have been praised for my healthy, shiny, thick hair. It has been a huge part of my identity, as it is for everyone. For me though, I think it became of greater importance than normal. Perhaps I'm going through this to learn an important lesson :)
Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes

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Jj's Blog

jj

Not sure what's going on

Posted on September 8, 2008 at 7:17pm 4 Comments

Well, it's been several weeks now since we identified that I'm Alopecian. I'm finding it increasingly difficult to hide the spots and seem to have some sparse grey hairs coming in where the spots are (although the spots continue to grow!?)



The summer was horrid. My condo flooded ($15,000 worth of damage and much arguing with the insurers), lost my uncle, found out they're checking me out for cervical cancer, alopecia, sprained my ankle, lost my grandfather ... and now struggling with… Continue

Comment Wall (15 comments)

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At 1:00am on May 29, 2009, Cheryl, Co-founderCheryl, Co-founder said…
HI JJ, Wanted to drop by and say hello! Hello!
At 9:49pm on December 30, 2008, Nants the Rebellion DogNants the Rebellion Dog said…
Okay, so you left me hanging here. Last we heard you were debating shaving or not (I thought your picture with you bald was awesome!) and I just want to know what you decided to do. Hope all is well!
At 5:10pm on August 14, 2008, LeslieAnn ButlerLeslieAnn Butler said…
Hi Jj,
So great to see you here! I just wanted to say hello and welcome you.
Are you an artist? I love the paintings! I'm an artist, too.
Hugs, LeslieAnn
At 11:31pm on August 13, 2008, Cheryl, Co-founderCheryl, Co-founder said…
Oh my goodness! I am TOTALLY impressed. I love it!
At 11:30pm on August 13, 2008, Cheryl, Co-founderCheryl, Co-founder said…
I have similar type of photo on my wall at home.

At 11:25pm on August 13, 2008, Cheryl, Co-founderCheryl, Co-founder said…
JJ, who is the artist of your first picture on your slide show. I love it.
At 11:33am on August 12, 2008, RogerRoger said…
Welcome.

Roger.
At 11:17am on August 12, 2008, Cheryl, Co-founderCheryl, Co-founder said…
Hey JJ, Nice to see your face ;)
At 6:42am on August 12, 2008, CarolCarol said…
Hi jj
I'm happy that you found alopecia world! I'm sure you'll meet tons of great people! :)
At 5:25am on August 12, 2008, tamgirltamgirl said…
Hi

i love your attitude and the comment you wrote on a blog.
Welcome to Alopecia world, i hope you find the support what can help you on this journey.

Tam
 
 
 
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