hagster
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  • Wichita, KS
  • United States
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hagster's Discussions

Regrowing hair in 'odd' places

Started Oct 25 0 Replies

After 16 plus years of remission from AA, I was slammed with AU last fall. Lost every single hair on my body, my eyelashes, in my nose & in my ears; learned to deal.Now, all of a sudden, I have…Continue

Tags: regrowth, hair, white

7-24 Ninja Warrior show has Alopecian

Started this discussion. Last reply by JessicaStinkle Oct 7. 2 Replies

American Ninja Warrior is going to have a guy named Kevin in the competetion tonight who just happens to have Alopecia. The promos say he has no hair and that he is a role model for kids just like…Continue

Can we talk about keeping a wig on a bald head, and other things?

Started this discussion. Last reply by Stacie Apr 30. 1 Reply

I noticed that a lot of the discussions were started about 3 years ago, and surely there is new products and information available.I wore wigs back in the 69s & 70s, then started again about 4…Continue

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Latest Activity

hagster replied to Carma Harper's discussion Symtoms, treatment, research
"AA is for the duration of your life.  You may have periods of remission and hair regrowth or you may not.  It treats everyone differently - with no set pattern.   I hope you have read the discussions on Xeljanz that are available on…"
Monday
hagster replied to gldean1988's discussion Xeljanz and scary side effects
"There is lots of info, discussions and other stuff about Xeljanz on this site.  Just click on All Discussions at the upper left of this page and type in xeljanz, then pick what you want to read.  (Personally) I'm not willing to risk…"
Dec 6
hagster replied to The HIGHGROUNG's discussion Alopecia Totalis is much mooooore better than Alopecia Areata
"I totally agree as to asthetics. When I hit about 30% hair left on my head, I shaved it so it would be easier to manage. I haven't had any hair growth in the few scalp haur I had left, so haven't even had to shave my scalp in about a…"
Dec 2
hagster replied to AlopeciaAndBononos's discussion alopecia universalis - successful treatment
"harsh? I like to think of it as factual and to the point. Of course you're only reading and can inflect any tone you want to the written word."
Dec 1
hagster replied to AlopeciaAndBononos's discussion alopecia universalis - successful treatment
"Don't understand what you're asking. The word forever was not used. However, if Xeljanz only grows hair as long as it is taken, and one wants to keep their hair for the rest of their life, then xeljanz must be taken…"
Dec 1
hagster replied to AlopeciaAndBononos's discussion alopecia universalis - successful treatment
"..."once I finish the Xeljanz". fyi - you never finish the Xeljanz. If one quits taking it, then usually the loss of hair occurs within 6 months. Leaky Gut Syndrome has been linked to Alopecia for some time. Don't know anything about…"
Nov 30
hagster replied to eleven11's discussion Tape gets smell with activity
"Never dealt with 'smelly' tape. Could it be the brand? I use Walkers double sided tape from 3-M that I buy online from a place in Vegas. I (personally) like the sew in silicone to grip the front of my wigs. It used to be called Derma…"
Nov 23
hagster replied to Lynn's discussion Bald Friend Needing Help with ADVOCACY
"Hi, Lynn: 1. Was diagnosed originally in June 2001 with AA. Hair loss spots grew back with steroid injections and no further loss until Nov 2016 - when I lost every hair on my body (AU) in a couple of weeks. However, hair had been thinning for…"
Nov 19
hagster and Khalil are now friends
Nov 12
hagster replied to Katie-skywalker's discussion Decisions
"There is some info available about a correlation between Merina (sp) and AA."
Nov 6
hagster replied to Hhh1999's discussion Hair coming back, orange hair
"Regrowth is usually white, then darkens. So, are you saying that since you stopped masterbating a month ago, your pubic hair is turning from black to orange? Or, do you have total body hair loss and you're getting orange pubic hair? Your post…"
Nov 6
hagster replied to HRLIM's discussion Scared and freaking out
"You will soon discover that AA treats all of us differently. Some people take years to lose their hair; others, like me, lose all the hair on their body in less than a month. Some manage their hair loss for years with shots, etc. and some of us just…"
Nov 6
hagster replied to Starshine's discussion Has anyone had any success with Latisse for eyebrows or eyelashes?
"You don't even need a prescription for Latisse any longer. I saw it advertised on Groupon this morning - (along with about a dozen like products)."
Nov 6
hagster liked Raya's discussion No one has perfect hair
Nov 5
hagster replied to Cow's discussion Is it possible that Alopecia Areata could be caused by fake jewelry?
"Please Google / read about how autoimmunity works - as AA is an autoimmune disease - and draw your own conclusions."
Oct 30
hagster replied to Erica1985's discussion I need help finding Human Hair Bun extensions for Caucasian hair
"Google for ponytail extensions. Maybe even on eBay."
Oct 26

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Relationship Status:
In a Relationship
Do you have alopecia?
Alopecia universalis
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (1 comment)

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At 8:23pm on May 26, 2017, Jan said…
I too grew up in the 50's and 60's and I hardly ever read of anyone getting Alopecia when they are middle aged. While I found my first spot last August, it got bigger. Only I could see it unless I pulled my hair back. More spots came and hair grew back. Again I am losing hair, but no one can see but me and my hair stylist. I commend all the people that have self acceptance but I wonder if the older you are at the time of the fist occurrence the more self conscious you are.
 
 
 

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