gldean1988
  • Female
  • Beaumont, TX
  • United States
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gldean1988's Discussions

Xeljanz and scary side effects

Started this discussion. Last reply by Ben Jan 6. 7 Replies

I have AU (used to be AA but has progressed into AU within just the last few months), and my doctor wants me to consider Xeljanz. I read all about it and the side effects and the lack of research…Continue

Hair Extensions

Started this discussion. Last reply by Suzie Mar 26, 2017. 7 Replies

I shaved my head about two years ago, and now, I finally have some hair. I've gone through a lot of shedding/regrowing (haven't achieved full regrowth since that episode two years ago/it's been off…Continue

When people try to be nice (and fail)

Started this discussion. Last reply by gldean1988 Mar 7, 2017. 2 Replies

Going through AA taught me a lot. One of the biggest lessons (although I already knew this---guess I need a reminder sometimes) was that I am not the center of the universe.Who would have thought I…Continue

Conquer Alopecia

Started this discussion. Last reply by rshakiyla Feb 1, 2016. 1 Reply

This was me six months ago. …Continue

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Latest Activity

Ben replied to gldean1988's discussion Xeljanz and scary side effects
"Hi, I'm based in ireland also and was wondering what doctor you were using to be prescribe  xenjanz thanks Ben. "
Jan 6
bibby replied to gldean1988's discussion Xeljanz and scary side effects
"I am based in Ireland and I have heard the research is being carried out for the IL2 in France so if there is anything positive in the future regarding it then I may be able to avail of it easier. It may take 3-5 years for conclusive info and proof…"
Dec 8, 2017
Return_life replied to gldean1988's discussion Xeljanz and scary side effects
"U nailed it. IL2 was in the past used for cancer. We know today for a fact it has an impact on alopecia. How good of an impact, well this we will know in the future but could this be an option for you? Maybe. Now if you are in North America low dose…"
Dec 7, 2017
bibby replied to gldean1988's discussion Xeljanz and scary side effects
"Yeah I reluctantly agree with you, I'd love to try xeljanz and even though I'm fully cured of my cancer any increase of poking that nightmare with a stick to reawaken it makes me shudder. I'm probably officially now kind of Alopecia…"
Dec 6, 2017
Return_life replied to gldean1988's discussion Xeljanz and scary side effects
"Immunosuppresor are nothing new. It's been prescribed for autoimmune disease for a long time.  I have been 10 years AU and I have been taking the medicine for a few months... i choose to continue taking it. No hair isn't everything. I…"
Dec 6, 2017
bibby replied to gldean1988's discussion Xeljanz and scary side effects
"Its not only the side effects that scare me. Its the word "cancer" that is mentioned as a extended risk associated to the taking of the drug. The fact that I am a cancer survivor makes the drug 100% NO GO for me according to my doctor. It…"
Dec 6, 2017
hagster replied to gldean1988's discussion Xeljanz and scary side effects
"There is lots of info, discussions and other stuff about Xeljanz on this site.  Just click on All Discussions at the upper left of this page and type in xeljanz, then pick what you want to read.  (Personally) I'm not willing to risk…"
Dec 6, 2017
gldean1988 posted a discussion

Xeljanz and scary side effects

I have AU (used to be AA but has progressed into AU within just the last few months), and my doctor wants me to consider Xeljanz. I read all about it and the side effects and the lack of research since it's so new...And, I'm horrified. It's an immunosuppressant, so you have to be careful when playing with the immune system. I read reports of people getting cancer dying from opportunistic infections (like tuberculosis or pneumonia). It really horrifies me. Now, other than AU, I am VERY healthy.…See More
Dec 6, 2017
Kamran liked gldean1988's photo
Nov 23, 2017

Profile Information

Relationship Status:
Single
About Me:
I learned that I had alopecia areata when I was 19. I have lost over 50% of my hair, but I have actually grown to love my baldness. I am a high school teacher and yoga practitioner.
Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older
Your Website (Leave blank if you don't have one):
http://namastates.com

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Gldean1988's Blog

Attachment to Suffering. Why did I have to be the one to lose my hair?

Posted on April 19, 2017 at 11:26am 0 Comments

“To be free from suffering, free yourself from attachments.”

 

They say being attached can lead to suffering, but we can also be attached to our suffering.

 

Every person living now is going through some kind of suffering……

 

There is death, sickness, poverty, injustice, cruelty, judgements, projections, failures, and insecurities.

 

Sometimes it is easy to forget that other…

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At 1:18am on March 23, 2017, scarredbeauty said…
At 7:14pm on November 1, 2015, LeslieAnn Butler said…

Hello and welcome!

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