chris_s
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chris_s's Discussions

Narrowband UVB phototherapy treatment for alopecia

Started this discussion. Last reply by bibby on Wednesday. 2 Replies

I wasn't able to find much about narrowband UVB treatments on this forum so I thought I'd post our experience for the record, in case anyone else is looking at it. I think there is some older…Continue

the ATI-50001 and ATI-50002 thread

Started Apr 11 0 Replies

ATI-50001 is another selective JAK inhibitor being developed by Aclaris Therapeutics. Aclaris is developing and testing an oral and topical version called ATI-50002. The oral version is currently in…Continue

The baricitinib thread

Started this discussion. Last reply by Sad1995 Apr 17. 4 Replies

baricitinib has come up in the big xeljanz thread a few times, but it's hard to follow topics and posts in a large thread like that so we should try to keep things organized. There was a user here,…Continue

Tofacib - commerically available topical xeljanz Tofacitinib cream

Started this discussion. Last reply by Camryn Apr 11. 2 Replies

this was mentioned in another thread here, but I thought it might warrant it's own thread. has anyone tried Tofacib cream? it is advertised as a 2% Tofacitinib cream for treating AA. It is currently…Continue

Tags: xeljanz, topical

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Latest Activity

bibby replied to chris_s's discussion Narrowband UVB phototherapy treatment for alopecia
"I went through Puva treatment in Dublin Ireland in the mid 1980's when I had AA as a kid. Probably 40% loss. After 6-8 weeks of treatment 3 days a week I regrew all my hair. This regrow the lasted about 2 months and the patches would start up…"
Wednesday
hagster replied to chris_s's discussion Narrowband UVB phototherapy treatment for alopecia
"Had UVB sessions last year for granuloma (another auto-immune skin disorder) on my entire body. Quit when I got burned from a still low level treatment. Made my granuloma worse and 8 months later I was diagnosed with AU. So ... draw your own…"
Tuesday
chris_s posted a discussion

Narrowband UVB phototherapy treatment for alopecia

I wasn't able to find much about narrowband UVB treatments on this forum so I thought I'd post our experience for the record, in case anyone else is looking at it. I think there is some older technology called PUVA that some have used, but I believe this is notably different.When my son reached about 90% hairloss his dermatologist suggested we try narrow band UVB. The reason it wasn't suggested before is because there wasn't enough exposed scalp.The treatment is in an upright booth, I think…See More
Monday
Sad1995 replied to chris_s's discussion The baricitinib thread
"You seriously think an immunosuppressant will ever be approved for cosmetic use? Okay good luck with that."
Apr 17
chris_s replied to chris_s's discussion The baricitinib thread
"source: http://www.fiercepharma.com/regulatory/fda-stuns-lilly-and-incyte-crl-for-much-anticipated-ra-drug-baricitinib this isn't necessary bad news for the alopecia group; the more safety documentation that accompanies a drug's approval…"
Apr 17
LIU CHUNXIU replied to chris_s's discussion The baricitinib thread
"how much is it?"
Apr 17
Sad1995 replied to chris_s's discussion The baricitinib thread
"The fda just rejected it for approval saying it needs more research for safety. A shame too. It's much much cheaper then xeljanz."
Apr 17
chris_s posted discussions
Apr 12
Camryn replied to chris_s's discussion Tofacib - commerically available topical xeljanz Tofacitinib cream
"A foreign company with nothing to back up its legitimacy seems a scary prospect as a place to order any kind of medicine from. How could you be sure it was genuinely Tofacitinib?"
Apr 11
chris_s replied to chris_s's discussion Tofacib - commerically available topical xeljanz Tofacitinib cream
"here's what I got from my sales information request: Hello!Tofacib about a month is available for order. For 10% of scalp 1-2 jar I think should be enough for 24 weeks. We do not conduct research, but we are solely engaged in…"
Apr 11
LIU CHUNXIU replied to chris_s's discussion New JAK inhibitor - CTP-543 by Concert Pharmaceuticals
"may be baratinib will be test."
Apr 11
chris_s replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"any details on the new drug? "
Apr 10
chris_s posted a discussion

Tofacib - commerically available topical xeljanz Tofacitinib cream

this was mentioned in another thread here, but I thought it might warrant it's own thread. has anyone tried Tofacib cream? it is advertised as a 2% Tofacitinib cream for treating AA. It is currently being sold out of China for "research purposes" and as such not requiring a prescription. No price listed on website though in another thread here I saw $375 for 50mg mentioned.Some cursory google research seems to show mydeox started posting things about Tofacib onto social media about 4 weeks ago,…See More
Apr 10
chris_s replied to chris_s's discussion New JAK inhibitor - CTP-543 by Concert Pharmaceuticals
"unfortunately it looks like phase 2a testing has been delayed until later this year http://www.reuters.com/article/brief-concert-pharmaceuticals-says-annou-idUSFWN1HD0CV I'm not entirely sure what "clinical tablet appearance issue"…"
Apr 10
chris_s replied to MacbethNellaNebbia's discussion Is Clobetasol the right choice?
"clobetasol is usually prescribed first, and that's because it has had good results for a lot of patients. Those people generally don't find themselves on this forum :) in my son's first episode of alopecia we didn't really get…"
Mar 29
chris_s replied to Yna Garcia's discussion Should I use Rogaine?
"my understanding is that rogaine helps existing active hair follicles grow faster but will not reactive follicles that are dormant due to autoimmune issues.  Our derm says the bit about hair falling out if you discontinue use is only…"
Mar 27

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Comment Wall (2 comments)

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At 3:08am on May 5, 2016, Pat said…

My Doctor today is willing to write a script for Topical Xeljanz however she doesn't know where I can buy it from. Is everyone buying the tabs and getting a compounding chemist to prepare it or can I purchase it as a cream without having to buy tabs first and find someone to prepare it for me? Any help would be appreciated. I live in Australia.

This site is great.

At 4:16pm on March 21, 2015, LeslieAnn Butler said…

Hello and welcome! 

How are you and your son today?

Leslie Ann

 
 
 

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