chris_s
  • winnipeg, mb
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chris_s's Discussions

clinical trial of PF-06651600 And PF-06700841 selective JAK inhibitors

Started this discussion. Last reply by bekind 2 hours ago. 2 Replies

I recently saw an ad for a local trial for the two jak inhibitors listed in the topic. These are not xeljanz or jakafi, they are selectively jak3 and jak 1 inhibitors respectively. My son is not…Continue

Narrowband UVB phototherapy treatment for alopecia

Started this discussion. Last reply by bibby Apr 26. 2 Replies

I wasn't able to find much about narrowband UVB treatments on this forum so I thought I'd post our experience for the record, in case anyone else is looking at it. I think there is some older…Continue

the ATI-50001 and ATI-50002 thread

Started Apr 11 0 Replies

ATI-50001 is another selective JAK inhibitor being developed by Aclaris Therapeutics. Aclaris is developing and testing an oral and topical version called ATI-50002. The oral version is currently in…Continue

The baricitinib thread

Started this discussion. Last reply by Sad1995 Apr 17. 4 Replies

baricitinib has come up in the big xeljanz thread a few times, but it's hard to follow topics and posts in a large thread like that so we should try to keep things organized. There was a user here,…Continue

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Latest Activity

GiloMilo replied to chris_s's discussion Topical Xeljanz
"Hi Pat, I got a script from our local GP, and the local compound pharmacist in Randwick is happy to make the cream, but it costs $1200. Not much point if noone out there has had regrowth."
Aug 6
GiloMilo replied to chris_s's discussion Topical Xeljanz
"Hi Pat, I've been following the thread on Xelijanz cream, and I am also in Australia. I plan to get some 2% cream made up for my 16 year son, who has AA, but I have not  yet found a reply in the discussion group that say their hair grew…"
Aug 6
Alo-mom replied to chris_s's discussion clinical trial of PF-06651600 And PF-06700841 selective JAK inhibitors
"Yes, I saw that too and it is being done in the Palm Springs area of California where I live. I went to meet the medical personal were is was being conducted and plan to stay in touch with them,"
Jul 27
chris_s posted a discussion

clinical trial of PF-06651600 And PF-06700841 selective JAK inhibitors

I recently saw an ad for a local trial for the two jak inhibitors listed in the topic. These are not xeljanz or jakafi, they are selectively jak3 and jak 1 inhibitors respectively. My son is not eligible as he's too young and hasn't had the condition long enough, but it is very promising to see new development on new drugs happening! https://clinicaltrials.gov/ct2/show/NCT02974868See More
Jul 15
Return_life replied to chris_s's discussion New JAK inhibitor - CTP-543 by Concert Pharmaceuticals
"preclinical and then u have 3 phases... phase 4 is postmarket"
Jul 10
bibby replied to chris_s's discussion New JAK inhibitor - CTP-543 by Concert Pharmaceuticals
"Sorry for my ignorance on trials but generally speaking how many phases should we expect before it is available for public use ?"
Jul 10
chris_s replied to chris_s's discussion New JAK inhibitor - CTP-543 by Concert Pharmaceuticals
"good catch, I've been scanning concert's press releases lately also. It's frustrating to have to wait, but safety first. seeing some of the discussion in the xeljanz thread (weight gain, fatigue) not to mention the looming risk of…"
Jul 10
singh replied to chris_s's discussion New JAK inhibitor - CTP-543 by Concert Pharmaceuticals
Jul 10
chris_s replied to Carmenj0nes's discussion Living and Treating AA
"it's easier said than done. Also a 6 year old boy places different weight on aesthetics than a 9 year old girl.  I try to really make it not a big deal in front of him, no obsessing over cumbersome treatments or unpleasant diets, no…"
Jul 7
sam replied to chris_s's discussion Topical Xeljanz
"Yes, pharmacy in Philadelphia."
Jun 16
Football fan replied to chris_s's discussion Topical Xeljanz
"Didn't work for me but either did the pills.Are you getting it from the Pennsylvania pharmacy?"
Jun 16
sam replied to chris_s's discussion Topical Xeljanz
"My son just started topical Xeljanz less than a week ago. Anyone here seeing results?"
Jun 15
chris_s replied to Carmenj0nes's discussion Living and Treating AA
"my approach would be less alopecia-centric. yes you have hair loss, no need to revolve your life around it. wear a few different wigs for style but not to hide. etc I think proactively taking a young child to a support group would only give them the…"
Jun 1
chris_s replied to Piupiu's discussion New Here Looking for Answers
"definitely not!  in my experience, we have had much more success treating my son's outbreaks sooner than later. if I start applying clobetasol (topical steroid) as soon as I notice 1-3 hairs missing we can knock that particular spot into…"
Jun 1
chris_s replied to Piupiu's discussion New Here Looking for Answers
"Yes it can start like that"
Jun 1
chris_s replied to Carmenj0nes's discussion Living and Treating AA
May 30

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At 3:08am on May 5, 2016, Pat said…

My Doctor today is willing to write a script for Topical Xeljanz however she doesn't know where I can buy it from. Is everyone buying the tabs and getting a compounding chemist to prepare it or can I purchase it as a cream without having to buy tabs first and find someone to prepare it for me? Any help would be appreciated. I live in Australia.

This site is great.

At 4:16pm on March 21, 2015, LeslieAnn Butler said…

Hello and welcome! 

How are you and your son today?

Leslie Ann

 
 
 

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