chris_s
  • winnipeg, mb
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chris_s's Discussions

Narrowband UVB phototherapy treatment for alopecia

Started this discussion. Last reply by bibby Apr 26. 2 Replies

I wasn't able to find much about narrowband UVB treatments on this forum so I thought I'd post our experience for the record, in case anyone else is looking at it. I think there is some older…Continue

the ATI-50001 and ATI-50002 thread

Started Apr 11 0 Replies

ATI-50001 is another selective JAK inhibitor being developed by Aclaris Therapeutics. Aclaris is developing and testing an oral and topical version called ATI-50002. The oral version is currently in…Continue

The baricitinib thread

Started this discussion. Last reply by Sad1995 Apr 17. 4 Replies

baricitinib has come up in the big xeljanz thread a few times, but it's hard to follow topics and posts in a large thread like that so we should try to keep things organized. There was a user here,…Continue

Tofacib - commerically available topical xeljanz Tofacitinib cream

Started this discussion. Last reply by Camryn Apr 11. 2 Replies

this was mentioned in another thread here, but I thought it might warrant it's own thread. has anyone tried Tofacib cream? it is advertised as a 2% Tofacitinib cream for treating AA. It is currently…Continue

Tags: xeljanz, topical

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Latest Activity

sam replied to chris_s's discussion Topical Xeljanz
"Yes, pharmacy in Philadelphia."
Jun 16
Football fan replied to chris_s's discussion Topical Xeljanz
"Didn't work for me but either did the pills.Are you getting it from the Pennsylvania pharmacy?"
Jun 16
sam replied to chris_s's discussion Topical Xeljanz
"My son just started topical Xeljanz less than a week ago. Anyone here seeing results?"
Jun 15
chris_s replied to Carmenj0nes's discussion Living and Treating AA
"my approach would be less alopecia-centric. yes you have hair loss, no need to revolve your life around it. wear a few different wigs for style but not to hide. etc I think proactively taking a young child to a support group would only give them the…"
Jun 1
chris_s replied to Piupiu's discussion New Here Looking for Answers
"definitely not!  in my experience, we have had much more success treating my son's outbreaks sooner than later. if I start applying clobetasol (topical steroid) as soon as I notice 1-3 hairs missing we can knock that particular spot into…"
Jun 1
chris_s replied to Piupiu's discussion New Here Looking for Answers
"Yes it can start like that"
Jun 1
chris_s replied to Carmenj0nes's discussion Living and Treating AA
May 30
chris_s replied to kevin's discussion Interleukin 2 low dose THE CURE
"thanks for the update, bon journey kevin! translated: Hello I finished May 12 the last cure. I had 4 cures of 5 injections per day with temperature monitoring of heartbeat tension and a bite a week to monitor my blood. Effect: small nausea,…"
May 29
chris_s replied to chris_s's discussion New JAK inhibitor - CTP-543 by Concert Pharmaceuticals
"I think the idea behind ctp543 is that it is being developed specifically for alopecia and will be covered by insurance for that application, where xeljanz and ruxolitinib are currently being used off-label for alopecia so they are not eligible for…"
May 29
singh replied to chris_s's discussion New JAK inhibitor - CTP-543 by Concert Pharmaceuticals
"Hopefully ctp-543 will be covered through insurance.."
May 29
bibby replied to chris_s's discussion New JAK inhibitor - CTP-543 by Concert Pharmaceuticals
"So presumably Cpt-543 is going to be a similar price as xeljanz when it's made available after the trials! I better hope my sales in my business increase to allow me to afford it haha!!"
May 28
singh replied to chris_s's discussion New JAK inhibitor - CTP-543 by Concert Pharmaceuticals
"The price is like 4 times as much as xeljanz a year."
May 28
sadele replied to chris_s's discussion New JAK inhibitor - CTP-543 by Concert Pharmaceuticals
"Ruxolitinib is over $10,000 a month."
May 28
Return_life replied to chris_s's discussion New JAK inhibitor - CTP-543 by Concert Pharmaceuticals
"why do we need to wait for cpt543 when we can get ruxolitinib off label? like xeljanz now it is prescribed off label."
May 27
bibby replied to chris_s's discussion New JAK inhibitor - CTP-543 by Concert Pharmaceuticals
"I have not started xeljanz yet. Maybe during the summer. I'm awaiting 11mg XR xeljanz to become available in turkey to exploit the cost benefit to the higher doseage . It's worth the experiment to see if I respond to xeljanz and if fails…"
May 27
sadele replied to chris_s's discussion New JAK inhibitor - CTP-543 by Concert Pharmaceuticals
"From my understanding of what Dr King told me last time I saw him (about 2 weeks ago) those who are incomplete or no -responders on xeljanz have a good chance of responding on CPT-543. It's basically the same as Jakafi. He told me they tweaked…"
May 27

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Comment Wall (2 comments)

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At 3:08am on May 5, 2016, Pat said…

My Doctor today is willing to write a script for Topical Xeljanz however she doesn't know where I can buy it from. Is everyone buying the tabs and getting a compounding chemist to prepare it or can I purchase it as a cream without having to buy tabs first and find someone to prepare it for me? Any help would be appreciated. I live in Australia.

This site is great.

At 4:16pm on March 21, 2015, LeslieAnn Butler said…

Hello and welcome! 

How are you and your son today?

Leslie Ann

 
 
 

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