"Hi Cate,Just wondering if you managed to contact CANAAF and how the presentation to the class is coming along? Cheers,Jenn"
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Need advice on talking to my son's class about alopecia
Started this discussion. Last reply by cate Nov 28, 2011. 7 Replies 1 Favorite
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cate left a comment for Jennifer Krahn"Hi Jennifer! Thank you so much for talking to Jim @ CANAAF about my situation! I just emailed him (my mom was visiting for the past few days, so I didn't see your message until now).
I really appreciate the help and support!
And by the way, you…"
cate replied to cate's discussion Need advice on talking to my son's class about alopecia"Hi everyone!
Sorry for dropping off the radar. My mom was in town to visit, so the last several days have been all about Zander, my son.
First of all, I want to say that I have spoken to him about coming to his class. The first time I mentioned it…"
"my daughter has AA. she is in 4th grade and the kids were starting to tease her saying she had lice, thats why her hair was falling out. I ended up making a power point to show the class. It discribed the condition, showed pictures that were…"
"Hey Cate,The Canadian Alopecia Association CANAAF may be able to provide you with a powerpoint presentation on Alopecia. They have some slides with kids in them and they are very fun and upbeat. Contact jim@canaaf.org. I'm sure he would be…"
Aimee replied to cate's discussion Need advice on talking to my son's class about alopecia"First of all, kudos to you for handling your son's alopecia the way you are! Glad you have such a great principal and supportive school!
I think one good way to explain it to kids is that you're allergic to your hair. Your body thinks hair…"
Profile Information
- Relationship Status:
- Married
- About Me:
- i am a 30-something mom to two beautiful boys (my oldest was just diagnosed with Alopecia - he's 6 years old). i have a wonderful husband who makes me feel beautiful everyday.
in the Spring of 1996, i went home for the summer after my college exams were over. my mom noticed that my hair looked thin. i was diagnosed with Alopecia in June of that year. by August, i was completely bald. i had just turned 22 years old.
while my hair was falling out and for the first year i was bald, i thought my life was over. my favourite part of myself had always been my long, blond hair. when it fell out, i didn't know how i could continue without it.
my parents took me to many places to try wigs on, and none of them made me feel better. i had the delusion that i could find something that made me look exactly as i did with my own hair. i soon realized that it was an exercise in futility, and was crushed. i spent so many hours crying in my room, wondering how i could face the world ever again.
i had an idea one day, and asked my incredibly talented mother to crochet me a "skull cap". what she came up with is what i still wear out in public. i've never worn a wig...i just wasn't comfortable with it, and felt more at ease if my baldness wasn't hidden
i made the tough decision to go back to school in September after losing all of my hair. it was one of the hardest things i've ever done, but probably one of the best. i knew if i didn't do it then, i was never going to go back.
i met my husband at college a year later, and the rest is history.
i've come to terms with the fact that i will most likely be bald for the rest of my life. i've tried a few treatments like DPCP, but Alopecia Universalis has a low rate of successful regrowth.
- Do you have alopecia?
- Alopecia universalis
- Are you age 18 or older?
- Yes - I am 18 or older
- Your Website (Leave blank if you don't have one):
- http://monkeysandmarbles.com
Comment Wall (15 comments)
- At 11:13am on December 6, 2011,
Jennifer Krahn said…
Hi Cate,
Just wondering if you managed to contact CANAAF and how the presentation to the class is coming along?
Cheers,
Jenn
- At 8:30pm on July 6, 2009,
Cheryl said… - hi i hate wigs - with a passion - too good to know not everyone wears them :)
my eyebrows have been tatooed twice and was easssy and now have my eyeliner done too can't believe i lived without it!!!
- At 3:25pm on March 29, 2009,
Craig S said… - Hi Cate- I met a lady who does very professional work using special pigments for eyebrows- don't go for the Tatoos! She is in Oakville and area and works with cosmetic surgeons etc. She has worked with many women with Alopeica doing eyebrows and eyelashes!
Her name is Ann-Marie at www.finessepermananentmakup.com
All the best!
Craig
- At 9:02pm on March 18, 2009,
- Hey there. you are gorgeous! Just wanted to give a friendly hello
- At 12:51pm on October 16, 2008,
Santi said… - Hi, I'm Santi, I'm new here and I have alopecia universalis since I was 3. I never had the chance to contact with other people like me and I would be very interested to share esperiences and stories with other members of this comunity, cause I think that helps a lot, so if you'd like to I'd be glad to chat with you or mail you anytime you wish. I'm just looking for friendship, cause I care about the stories and the people. That goes for everyone who reads this post too.
Hope to know from you very soon :) S.
- At 1:30pm on July 18, 2008,
Carol said…
- Hi Cate
Just popped in to say "Hi". I noticed you're in Canada too! Yay! :)
- At 5:20pm on May 27, 2008,
LeslieAnn Butler said…
- Hi Cate,
I had my eyebrows tattoed a long time ago and I just wasn't happy with them. They didn't look natural (being an artist, that's important to me!) and they faded pretty quickly. I now use "Beau-Ti-Full" temporary "tattoo" brows. They are very natural looking and I just love them. You can find them on the naaf.org Marketplace.
LeslieAnn
- At 11:06pm on May 5, 2008,
Kristen said… - Hi Cate - I think not wearing a wig agrees with you. You have such stunning features and it's best not to hide them under hair. :-) I hope to get to know you better! Cheers!
- At 10:29pm on March 28, 2008,
Katey said… - Nice to meet you too! Have a lovely day! :) Peace!
- At 3:33pm on March 26, 2008,
Sweet Mary HiLL said… - you are gorgeous. and you DO have a great smiLe. gLad you're here :]
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