"Hello All!
I just wanted to thank everyone for sharing their stories. This hasn't been the easiest thing to deal with. I've told maybe, 20 people, of my condition. The people who I expected the most support from (parents, sister), do not…"
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Mar S replied to carly's discussion Alopecia Universalis?? in the group Alopecia Universalis"I lost my scalp hair first, at first slowly in patches, then when it thinned out so badly it just came out in chunks. Body hair was next, then eyelashes and eyebrows at the same time. I tried injections in the eyebrows (that really hurt) but they…"
Ellen replied to carly's discussion Alopecia Universalis?? in the group Alopecia Universalis"What you are describing is quite typical. My hair fell out first, and then eyelashes/brows, then arms,legs, and then the rest..."
Rebecca replied to carly's discussion Alopecia Universalis?? in the group Alopecia Universalis"Hi Carly,
The one thing I have learned about having AA and AU is that it is totally unpredictable. After years (25) of having AA, it developed into AU. For me, my scalp hair was the first to go, then all body hair, and finally my eyebrows and…"
Terri replied to carly's discussion Alopecia Universalis?? in the group Alopecia Universalis"For me it was kinda an over the entire body loss at the same time. Slowly. Scalp hair was the last to go, but I figure that was due to doing the injections and other various treatments for so long. Personally I kinda like not having the body hair.…"
Jennifer replied to carly's discussion Alopecia Universalis?? in the group Alopecia Universalis"I lost my head hair first & the rest left pretty evenly, which I have come to understand is pretty normal.
Keep in touch - you have love and support here...."
Joan Glover replied to carly's discussion Alopecia Universalis?? in the group Alopecia Universalis"For me, I lost all my scalp hair first, then bdy and pubic hair. Eyelashes were last (and hardest to lose)"
"Carly --
For me, my pubic hair was the last to go -- and when it fell out, it all went very quickly, virtually overnight after all the rest of my body hair and my eyebrows and eyelashes had faded away over several weeks. But, of course, I…"
carly added a discussion to the group Alopecia Universalis
Alopecia Universalis??
Hello All,A few questions if you don't mind, but here's a little about myself first.I noticed a patch of hair missing from the back of my neck a year ago, after I dyed my hair. I thought it was some sort of reaction and ignored it. I noticed it getting visably worse by September. My GP diagnosed me with AA and referred me to a derm who didn't have an opening until November.In those few weeks, I had self diagnosed myself with the ophiasis pattern. Then I noticed not only the hair from my neck…See More
carly joined Alopecia World's groupAlopecia Universalis
Join today to meet, support and share information with others who are also living with all loss of hair on their bodies.
carly replied to carly's discussion newly diagnosed by GP in the group Newly Diagnosed with Alopecia"Hi Stephanie!!
I hope I'm not bothering you, but I have a few questions. Did you go totalis? How long did it take? Did you have steroid treatments for regrowth?
This has been going on for a year now. I still have 75-80% of my hair left,…"
Tanya Stone replied to carly's discussion newly diagnosed by GP in the group Newly Diagnosed with Alopecia"HI Stephanie, Did you do anything for the hair to grow back and how long did it take to grow back?"
carly joined Wissam's group
False natural looking eyebrows/lashes
This group was formed to help those who are looking for solutions to their eyebrows/lashes. If you have found a satisfying solution for your eyebrows and/or lashes, please share your experience and tips with us
carly joined Francie's group
Makeup,Fashion and Skincare advice for Alopecia
A place we can help each other out with beauty and skincare! Share your tricks, tips & advice!Photo Model: Eve SalvailSee More
carly joined Beth's group
Who cuts your hairpiece?
It is often a challenge to make wigs look natural. This is a site for members to discuss and give tips on styling hairpieces. This site should also be used to recommend hairdressers that are experienced in cutting and styling all types of hairpieces
Profile Information
- Relationship Status:
- Single
- About Me:
- Recently diagnosed
- Do you have alopecia?
- Other type of alopecia
- Are you age 18 or older?
- Yes - I am 18 or older
Comment Wall (1 comment)
- At 11:11pm on September 24, 2010,
LeslieAnn Butler said…
- Hello and welcome, Carly!
How are you today?
Leslie Ann
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