bibby
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bibby's Discussions

Intolerable dry flaking skin on face and scalp

Started this discussion. Last reply by Aimee Feb 14, 2016. 2 Replies

I am wondering if anyone else is having this issue. I have incredible flaking skin on my scalp and face which coincides with a terrible itch. The rate of hair loss accelerates when this phenomenon is…Continue

DPCP caused 100% hairloss for me. WARNING

Started this discussion. Last reply by bibby Jul 29, 2014. 9 Replies

I started DPCP treatment under the care of a nurse in my local hospital June 2013. Its now July 2014 and all my hair is gone. I had mild alopecia areata since I was 9 years old , I am now 39. The…Continue

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Latest Activity

bibby replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Phase 3 and then phase 4 and then a waiting period. Someone said on here it may be 2025 for completion (if it clears)"
Aug 7
bibby replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi frankie. Congrats on the response and it certainly sounds positive . How long are you on the 2 pills a day? Are they the 5mg or the 11mg ?"
Jul 31
bibby replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Too right. Let's keep this forum for xeljanz only as the topic title implies"
Jul 31
bibby replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"This shampoo was developed by wizards and it can switch off the t-cells that are coming from your immune system and magically redirect these hair destroying tcells out of your ears and on into the atmosphere. Patent pending by one "harry…"
Jul 28
bibby replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Don't give up hope on medical advancement soon. Xeljanz is not the only kid on the block that has shown promise. Ruxolitinib has yet to be tested by users to the same degree as xeljanz. It may have a broader positive result specifically for our…"
Jul 20
bibby replied to chris_s's discussion New JAK inhibitor - CTP-543 by Concert Pharmaceuticals
"Sorry for my ignorance on trials but generally speaking how many phases should we expect before it is available for public use ?"
Jul 10
bibby replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Too right. If stem cell therapy was really a cure then there would be PROVEN documented positive results. All that exists is conjecture and myths along with a topping of low resolution photos supposedly showing patients stages of regrowth. Why would…"
Jul 9
bibby replied to Starrynights61's discussion Wigs for boys
"I ordered from this site. It is UK based. I am a man in my early 40's , This was custom made (6-8 weeks) human hair swiss lace. £350.  Here is the link https://www.youtube.com/watch?v=8NUJlGSH0dM&t=64s The only way to get a…"
Jul 7
bibby replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Yes cws, that appears to be what has happened. There is not much decernible difference really in their product either , they only have 30 pills in the 11mg XR bottle vs the 60 pills 5mg standard so it really only helps the patient by requiring once…"
Jul 6
bibby replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"https://www.drugs.com/availability/generic-xeljanz.html Same site that said patent expiry Dec 2019 4 months ago (in fact I posted on this forum back 4 months ago when someone enquired about the patent expiry and I stated Dec 2019 as I referred to…"
Jul 6
bibby replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Sorry to tell you this but 2-3 years patent expiry is pie in the sky. I checked the patent expiry 4 months ago and it stated the expiry was Dec 2019. Then I checked again last week and this has jumped to Dec 2020. So who is to say in 6 months from…"
Jul 6
bibby replied to kevin's discussion Interleukin 2 low dose THE CURE
"Bloody Nora,,,, I'd be delighted to have my beard back. Congrats bud. I've an apt with my GP this week. Going to try and persuade him to prescribe xeljanz off label and failing that recommend a 2nd option with maybe a immunologist.…"
Jun 25
bibby replied to kevin's discussion Interleukin 2 low dose THE CURE
"Not wishing to hound you Chris but any further hair growth?"
Jun 21
bibby replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Ben. What study was the derm referring to when he said the results were not good? From m research the results on most studies have showed the results were 70% positive"
Jun 19
bibby replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"The men becoming pregnant was only in the movie junior with Arnie. I think it was more a fictional situation though and nothing to do with xeljanz. It's known as a miracle drug but I think there are limits haha"
Jun 16
bibby replied to yumyummyum's discussion eyebrow wig or alternative? help!!
"I'm in the male category but I'll impart a solution which is a combo I did. I got my skin membrane eyebrow wigs but was slightly unhappy with the way they looked at the sides so I got a semi permanent micro blading at each side of each…"
Jun 7

Profile Information

Relationship Status:
Single
About Me:
have hairloss since i was 10
Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

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At 11:22pm on March 3, 2011, LeslieAnn Butler said…
Hello and welcome, Bibby!
How are you today?
Leslie Ann
 
 
 

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