bibby
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Intolerable dry flaking skin on face and scalp

Started this discussion. Last reply by Aimee Feb 14, 2016. 2 Replies

I am wondering if anyone else is having this issue. I have incredible flaking skin on my scalp and face which coincides with a terrible itch. The rate of hair loss accelerates when this phenomenon is…Continue

DPCP caused 100% hairloss for me. WARNING

Started this discussion. Last reply by bibby Jul 29, 2014. 9 Replies

I started DPCP treatment under the care of a nurse in my local hospital June 2013. Its now July 2014 and all my hair is gone. I had mild alopecia areata since I was 9 years old , I am now 39. The…Continue

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Latest Activity

bibby replied to Camryn's discussion Head pain with alopecia
"Yes , I have also felt this. Feels like I have a bruise on the area. Also feels like tightening of the skin."
Mar 13
bibby replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I hope you do not mind me asking but what is the cost in Lira or Euro per bottle ? "
Mar 3
bibby replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Sorry but am I getting this straight , you got this growth with 2 or 3 tablets (11mg) PER WEEK ! ? What was the level of the condition before you started ? AA / AU / AT ? "
Feb 23
bibby replied to LIU CHUNXIU's discussion Extensive alopecia areata is reversed by IL-12IL-23p40 cytokine antagonism
"Est-ce que l'IL-2 agit sur votre système immunitaire?"
Feb 17
bibby replied to LIU CHUNXIU's discussion Extensive alopecia areata is reversed by IL-12IL-23p40 cytokine antagonism
"Hi. I know this is off topic but would really like to know what price you paid per bottle of xenjanz. Since you are Turkish I assume you would have the latest price deal and this could be of great help to this forums community. Thanks in advance ,,…"
Feb 16
bibby replied to LIU CHUNXIU's discussion Extensive alopecia areata is reversed by IL-12IL-23p40 cytokine antagonism
"So present day low dose il-2 trials do not exist then? All very confusing and mysterious really. The original article was about 4-5 patients treated by dr passeron with extensive alopecia had full regrowth on a 1 year follow up back in circa…"
Feb 16
bibby replied to LIU CHUNXIU's discussion Extensive alopecia areata is reversed by IL-12IL-23p40 cytokine antagonism
"Hi Kevin  Does the trial start in 2018 or does the trial end in 2018 ? I thought I read somewhere that the trial started in June 2016. "
Feb 12
bibby replied to LIU CHUNXIU's discussion Extensive alopecia areata is reversed by IL-12IL-23p40 cytokine antagonism
"I'm wondering if it's possible to get this treatment by Dr passeron in France on a private consultancy basis. I'd be willing to go to France if it was available. If anyone has any info it would be appreciated."
Feb 12
bibby replied to LIU CHUNXIU's discussion Extensive alopecia areata is reversed by IL-12IL-23p40 cytokine antagonism
"Back in November of last year I asked my very well respected dermatologist about this treatment for Alopecia. I will never forget the impression on her face. Complete shock. Then she laughed and said "sure thats used for skin cancer"…"
Feb 10
bibby replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Yeah , I used dermatch when I had AA (now TT). I found it fantastic. It seemed to multiply what hair I had and it blended my existing hair to the fine hair on the regrowth hair perfectly. As a result the wind never represented a problem with both…"
Feb 4
bibby replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Wow. I'd kill for that much hair haha. It looks like you are close to 100% regrowth. In the interim though have you heard of dermatch ? It's a concealer and would add some great volume to the hair you have now."
Feb 2
Ben and bibby are now friends
Jan 8
bibby and Dolly are now friends
Jan 7
bibby replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"What is the cost of the 11mg tablets ? Is it possible to cut/split these tablets to save money ? "
Jan 4
bibby replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thanks for the info Singh , It makes no real sense to arrange a US trip just to get 3 bottles on the co-pay if I can just go to Turkey and get the same amount of pills for the same cost of the US trip. I would really appreciate your imput as to what…"
Jan 1
bibby replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"I too am preparing to visit turkey on a 1 day trip. I'll be buying 6 months supply. Just awaiting a derms advise in Ireland but reckon my minds made up regardless. Do you have up to date prices in turkey per box?"
Aug 10, 2016

Profile Information

Relationship Status:
Single
About Me:
have hairloss since i was 10
Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

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At 11:22pm on March 3, 2011, LeslieAnn Butler said…
Hello and welcome, Bibby!
How are you today?
Leslie Ann
 
 
 

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