bibby
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bibby's Discussions

Intolerable dry flaking skin on face and scalp

Started this discussion. Last reply by Aimee Feb 14, 2016. 2 Replies

I am wondering if anyone else is having this issue. I have incredible flaking skin on my scalp and face which coincides with a terrible itch. The rate of hair loss accelerates when this phenomenon is…Continue

DPCP caused 100% hairloss for me. WARNING

Started this discussion. Last reply by bibby Jul 29, 2014. 9 Replies

I started DPCP treatment under the care of a nurse in my local hospital June 2013. Its now July 2014 and all my hair is gone. I had mild alopecia areata since I was 9 years old , I am now 39. The…Continue

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Latest Activity

bibby replied to kevin's discussion Interleukin 2 low dose THE CURE
"Not wishing to hound you Chris but any further hair growth?"
Wednesday
bibby replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi Ben. What study was the derm referring to when he said the results were not good? From m research the results on most studies have showed the results were 70% positive"
Monday
bibby replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"The men becoming pregnant was only in the movie junior with Arnie. I think it was more a fictional situation though and nothing to do with xeljanz. It's known as a miracle drug but I think there are limits haha"
Jun 16
bibby replied to yumyummyum's discussion eyebrow wig or alternative? help!!
"I'm in the male category but I'll impart a solution which is a combo I did. I got my skin membrane eyebrow wigs but was slightly unhappy with the way they looked at the sides so I got a semi permanent micro blading at each side of each…"
Jun 7
bibby replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Thanks for the response mike and frankie. I'm a strange case. Scalp 100% loss. I've still got full uneffected eyelashes and 40% eyebrows. 60% beard remaining. Strangely under arm and finger hair completely uneffected. Not holding my breath…"
Jun 4
bibby replied to AlopeciaDestroyedMyLife's discussion Xeljanz (Tofacitinib Citrate): My experience on the trial
"Hi mike. Have you not had ANY results yet at all? Has your beard or eye brows or eye lashes not improved either ? Only asking as I'm starting xeljanz 11mg this month and also AU. Thanks in advance"
Jun 4
bibby replied to Alopecia World's discussion New Hair Growth Mechanism Discovered
"Agreed , they will flip between Tcells being the trigger for while now and next year it'll be back to good ole reliable stress theory being the trigger. All the while we hang on waiting an elusive cure. Sad but true."
Jun 1
bibby replied to Alopecia World's discussion New Hair Growth Mechanism Discovered
"I don't Want to sound pessimistic rather a realist but my question to this discovery is "so what now"? We have known for a long time that Tcells are responsible for our hair loss. This "discovery" realistically benefits none…"
Jun 1
bibby replied to chris_s's discussion New JAK inhibitor - CTP-543 by Concert Pharmaceuticals
"So presumably Cpt-543 is going to be a similar price as xeljanz when it's made available after the trials! I better hope my sales in my business increase to allow me to afford it haha!!"
May 28
bibby replied to kevin's discussion Interleukin 2 low dose THE CURE
"Black market ! ? You mean the Turkish pharmacies ? You would need a trusted medical professional to monitor I'd say though. Problem would be to get one of those based on incomplete trials. Very exciting drug all the same."
May 27
bibby replied to chris_s's discussion New JAK inhibitor - CTP-543 by Concert Pharmaceuticals
"I have not started xeljanz yet. Maybe during the summer. I'm awaiting 11mg XR xeljanz to become available in turkey to exploit the cost benefit to the higher doseage . It's worth the experiment to see if I respond to xeljanz and if fails…"
May 27
bibby replied to chris_s's discussion New JAK inhibitor - CTP-543 by Concert Pharmaceuticals
"Let's hope the time line is respected in reality. Looking at this product it appears to limit JAK 1 and JAK 2 where as xeljanz limits JAK 1 and JAK 3. Fundamentally they are very similar and xeljanz was cleared by the FDA so hopefully cpt543…"
May 27
bibby replied to kevin's discussion Interleukin 2 low dose THE CURE
"Hey returnlife. I've been following this treatment since the original 4 patients a few years ago. Having spoke to Dr passeron yourself are you aware if a patient can get this treatment by visiting his consultancy in France? If yes then do you…"
May 27
bibby replied to kevin's discussion Interleukin 2 low dose THE CURE
"How's the treatment going Kevin? A lot of people would love to know if this is a viable treatment and an update would help greatly. Thanks"
May 26
bibby replied to AileenC's discussion Stress?
"I personally cannot see how this condition relates to stress. I had AA first when I was 7 years old. A very happy stress free 7 year old. AA came and went through my early years , good hair / bad hair and through out all this time I had no stress to…"
May 26
bibby replied to kevin's discussion Interleukin 2 low dose THE CURE
"How is the treatment going for you Chris ? Any noticeable results so far ? "
May 21

Profile Information

Relationship Status:
Single
About Me:
have hairloss since i was 10
Do you have alopecia?
Alopecia areata
Are you age 18 or older?
Yes - I am 18 or older

Comment Wall (1 comment)

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At 11:22pm on March 3, 2011, LeslieAnn Butler said…
Hello and welcome, Bibby!
How are you today?
Leslie Ann
 
 
 

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