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Yuko
- Female
- Panama City Beach, FL
- United States
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Yuko's Discussions
Has anyone heard about or been treated with Amevive?
Started this discussion. Last reply by Yuko Mar 10, 2009. 2 Replies 0 Favorites
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Yuko replied to Marie's discussion Favorites in the group Hat Lovers"I really like newsboy caps and baseball caps, although when my hair is really falling out, I tend to shy away from wearing my baseball caps because of the see-thru mesh in the back. In the summer I wear a lot of bandannas and scarves since it is so…"
Yuko replied to Marie's discussion Favorites in the group Hat Lovers"I really like newsboy caps and baseball caps, although when my hair is really falling out, I tend to shy away from wearing my baseball caps because of the see-thru mesh in the back. In the summer I wear a lot of bandannas and scarves since it is so…"
Yuko joined Maya's group
Hat Lovers
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Yuko replied to Alopecia World's discussion Wigs and insurance companies"I am insured through Tricare as my husband is in the Navy. According to Tricare,
"TRICARE covers one wig per beneficiary per lifetime, when the attending physician certifies that alopecia (hair loss) results from the treatment of a malignant…"
Yuko replied to sharon's discussion customise your wigs"I used to wear a 3/4 fall with either a hat or a headband. It was made out of human hair. Once it started to thin out, I went to Sally's and bought more hair to add on. Once that hair started to frizz up, I just shortened it to shoulder-length.…"
Yuko replied to Jen's discussion What things do you hear when out in the world?"I had a neighbor once who joked it was too bad I didn't have cancer. At least I would have a good reason as to WHY my hair was falling out :(
I know she meant well and really all I could do was to laugh it off uncomfortably. She was not a close…"
Yuko replied to Yuko's discussion Has anyone heard about or been treated with Amevive?"Ugh. How frustrating. My dermatologist was so adamant it might work. Of course, he doesn't have alopecia :p
I will definitely look up the website. Thanks so much for the reply.
Yuko"
Profile Information
- Relationship Status:
- Married
- About Me:
- Hi. I have alopecia areata. My hair has been falling out in patches for the last 8 or 9 years. For the first 6 years, I could hide the patches by styling my hair a certain way. In the past 2 years or so, I have had to cover my head with hats and have even gone so far as to buy wigs, 3/4 falls, extensions, etc. I am looking forward to hearing about other's experiences in dealing with hair loss and hopefully providing support for those who need a friendly ear :)
- Do you have alopecia?
- Alopecia areata
- Are you age 18 or older?
- Yes - I am 18 or older
Yuko's Photos
Comment Wall (3 comments)
- At 3:52pm on March 6, 2009,
Rose Marie' said… - Hi Yuko
You popped a question up on the board asking how much a Freedom wig costs. It depends on where you live in the world. If you go to the freedom webpage and then the 'contact us' page you can contact someone close to where you live and find out the cost.
Hope that helps.
Rosy
- At 3:53pm on March 2, 2009,
LeslieAnn Butler said…
- You can get the book on Amazon.com, or any other online bookstore. If you read it, let me know how you like it!
Big hugs!
- At 8:18pm on February 28, 2009,
- Hello and welcome, Yuko!
I know how hard it can be. I have had alopecia for about 30 years and have gone through all the stages that you are experiencing. After I became the spokesperson for the National Alopecia Areata Foundation, a lot of women were needing my help and support, so I wrote a book called, "If Your Hair Falls Out, Keep Dancing!" It might make you feel better. You can find out more on my page -- and let me know if there's anything else I can do!
LeslieAnn
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