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Tori S
- Female
- New York, NY
- United States
- Blog Posts (2)
- Discussions (1)
- Events (1)
- Groups
- Photos (3)
- Photo Albums (1)
- Videos
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Latest Activity
Tori S updated their profile photo
Suzanne Kennedy commented on Tori S's blog post 'Advocacy'
I figured if nothing else, maybe something good can come out of having this, right?
Suzanne Kennedy commented on Tori S's blog post 'Advocacy'
I just joined the Alopecia Areata Registry as well. Got my paperwork in the mail the other today and spent today filling out the forms. I'm excited that they might be able to learn something about it!
Jocelyn commented on Tori S's blog post 'Fundraiser'
I'm in for fundraising research and wigs for those who can't afford it. Jodi has an organization she is working on called If I only had my hair which sounds like an excellent charity to donate to. You can see it at her site…
Profile Information
- Relationship Status:
- Single
- About Me:
- AA since 16.
- Do you have alopecia?
- Alopecia areata
- Are you age 18 or older?
- Yes - I am 18 or older
Tori S's Photos
Tori S's Blog
Advocacy
Posted on March 11, 2010 at 11:27pm 9 Comments 0 Favorites
So it's been 6 years now, and I know that compared to some of the others on this website its just the beginning, but I feel as though I know the monster that i'm dealing with at this point. I think part of the only way to cope with this disadvantage is to help others, and raise awareness. Does anyone know any way I could start getting involved?? I surfed naaf.org, and the only advocacy I came across was telephone help, or becoming involved in the annual conference. I'd like to do more than… Continue
Fundraiser
Posted on March 7, 2010 at 12:43am 1 Comment 0 Favorites
So i've been really eager to get involved with fundraising, and I was thinking of creating my own event. Does anyone have any ideas? I was thinking something along the lines of a Fashion Show... Your input would be greatly appreciated :)
Tori
Tori
Comment Wall (10 comments)
- At 3:34pm on March 14, 2010,
Jocelyn said…
- Hey Tori .. I saw your blog on advocacy and notice Thea's response. I am working with her to prepare the Bagel Brunch in Manhattan and I think it would be a very cool thing to share with a fellow New Yorker. I feel like bringing awareness to others only makes the process easier for us. Let me know if you are interested in helping with the planning etc.
- At 8:21am on March 13, 2010,
Gale Moorman said… - Hey Tori, you could certainly get involved in many ways from having a support group for people in their 20s to starting an employment market for people with alopecia, to starting your fashion show. I'm an entrepreneur who was laid off 8 years ago from a major college in NYC. I went online to ask people's advice and talked with someone from England who said they clean pubs. With many conversations she convinced me to start my own cleaning service of which I have now in Manhattan and so glad I did it. Get back to me for possible ideas.
- At 4:15pm on March 12, 2010,
JeffreySF said…
- Hi Tori,
Stopped in to say hello.
Jeffrey
- At 7:20pm on March 9, 2010,
Jocelyn said…
- Hey Tori
Yes I was :) It was great to meet you there.
- At 7:36am on February 14, 2010,
Jocelyn said…
- Hey Tori
I struggled with AA as a teen as well and now it's frustrating to deal with it in my 20s. Do you wear wigs or are you able to style your hair around it?
- At 1:39pm on October 24, 2009,
Jo Jo said…
- Your are still very young and obviously beautiful. Do not allow this too take its toll on you girl. Stay focused on all aspects of life not just the superficial one although I now it can be stressful at times. I remember having a conversation with someone and all the while throughout our conversation I could see her eyes moving up and down- from my eyes to my head, back to my eyes then up to my head- it made me very self-conscious in that moment but then realized that people know no better adn that it is usually just a natural reaction but after about 10 minutes of this I looked her straight in the eye and said WHEN YOU LOOK AT ME MIJA (that's means girl in spanish) TRY TO FOCUS ON ME, I AM ME , I AM NOT MY HAIR. She shrugged, chucked and has not really conversated with me since...... OH WELL!
JoJO
- At 7:37pm on October 6, 2009,
Wakana said… - hey. im wakana. :)
- At 12:36am on August 18, 2009,
Essence said… - you're really pretty =)
- At 12:22pm on August 3, 2009,
Cheryl, Co-founder said… - Hi Tori, I wanted to welcome you to Alopecia World. I can honestly say that we are a great community here and I hope you enjoy the time you spend with us.
Cheryl
- At 7:59pm on August 2, 2009,
LeslieAnn Butler said…
- Hello and welcome, Tori!
I'm sorry you're struggling. I know how hard alopecia can be; I have had it for about 30 years. Let me know if you need help or support. One thing that you might be interested in is my book, written for women, called "If Your Hair Falls Out, Keep Dancing!" (It just won two national awards!) It has a lot of good info in it, it can answer many questions, and it's a fun read, too. You can find out more on my page. It's available on Amazon.com, and on this site under "Bookshelf."
Let me know if there's anything else I can do! I am here to help.
LeslieAnn
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